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CatchMyPain Community and Pain Diary App to manage chronic illness

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Oct 20, 2017 5:39 PM

Hello. Ive just signed up and dont really know what im doing.

Ive been in constant pain for 3 years. Doctors have done lots of investigations and have said everythings fine so its ‘all in my head’ and to ‘just take painkillers’. They have sent me home previously with a rediculous amount of hard hitting painkillers that barely touch the pain but naturally they effect my day to day living so i stopped taking them.

Ive recently found a new doctor who is listening and wants to and has schedualled more tests. Im scared of what it could be.

Sorry for the over share! But any advice on how to deal with the pain on a day to day basis would be sooooo appreciated!

Oct 20, 2017 10:12 PM

Welcome to our community. I don't have a lot of good advice because I'm still adjusting to living with chronic pain. One thing that helps is to pace yourself and experiment doing tasks in a way that reduces your pain. Remember that not everything needs to be accomplished at one. Don't forget that it's perfectly okay to ask for help.

Oct 21, 2017 5:32 AM

Welcome to the community. Does heat help? Soak in tub with 1-2 cups Epsom salt in warm water. Heating pad or electric blanket. Hope this helps.

Oct 21, 2017 5:58 AM

Thank you so much!
Yeah i think thats my problem to be honest. My partner is always telling me off for trying to do too much so pacing myself is good advice! Ill try haha!

Heat doesnt tend to help the pain but relaxation wise a bath usually just chills me out more than anything. Ive never tried an electric blanket, do they work? Thank you so much!

Oct 21, 2017 7:22 AM

Electric blanket let's you be rapped up in heat

Oct 21, 2017 7:25 AM

Ill have to give it a go! Im willing to try anything! X

Oct 21, 2017 2:52 PM

I like ice and a tens unit. Stretch every morning and before bed. A good pillow. Going to the gym or home workouts every other day. A journal. And learning to not push yourself. That I find is the hardest. Be ok with not getting things done. Get a routine. Have only one thing to get done daily and at least one day of nothing. Good luck.

Oct 22, 2017 5:09 AM

Thank you so much! I dont stretch so ill definately try that! I use a tens machine and go to the gym 3 times a week. My other halfs always at me for trying to hard to keep things ‘normal’ and that i need to pace myself so i know exactly what you mean!

Oct 22, 2017 5:30 AM

Hey I read your post and have dealt with chronic back pain from a Herniated disc in the L3 L4 of my spine since I was 18 and I’m 26 now and teach special education at an elementary school where I’m on my feet constantly. I also had doctors that fir the first 4 or so years just prescribed me at first Lortab then Percocet till eventually I was taking 60 mg MS Contin 3X daily which was extended release Morphine and 350mg Soma 4 Times daily An sure my pain was relieved but it made me sluggish and just not feeling normal so finally I had enough and wanted to make a change so me An my mom researched everything and all sorts of pain doctors until I found a doctor that made me feel like myself again and did things differently. Anyways now I take 8mg Buprenorphine (Subutex) Twice a day so 16mg daily and it not only works way better than the other crap all the other pain doctors had gave me in the past or also gave me a better quality of life at the same time. So I just wanted to share my story with you and give you enough information about it and if you decide to end up taking it I wish you the best of luck and I hope you get to experience the better pain relief and everything else as well

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