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CatchMyPain Community and Pain Diary App to manage chronic illness

New to this. 25yr old female seeking help

Dec 25, 2015 6:01 AM

Hi, my names Brodie.

I've literally just downloaded this app hoping for some tips to help pain that I may not have thought of or tried(even though it seems I've tried so many different therapies etc)

I have fibromyalgia, chronic pain syndrome, Spondylolysis, TMJ disorder, chronic depression, anxiety disorders, costocondrytis & probably more I've forgotten.
I'm 25 years old & have suffered with everyday pain for 10 years. I don't remember a day without pain. So I'm just hoping you guys might be able to give me some advice on treatments(natural, home remedies etc) as I've tried multiple medical therapies for my illnesses.

Any advice/personal tips would be muchly appreciated!

Cheers,
Brodie.

Dec 25, 2015 9:34 AM

Brodie, welcome to our family community. I'm sorry that you are suffering with chronic pain and that it has been for so long and at such a young age. I have all of the things you mention as well as a laundry list of others. It's a nightmare. I've been dealing with pain for 23 years and have had 29 surgeries. I can tell you that taking old washcloths and sewing them
Into a pillow and putting rice in it is great for a heating pad. It absorbes the moisture so it's not a totally dry heat and it may help sore joints, you can make two and have the other in the freezer. Try gentle stretches, perhaps yoga (just lite stuff), biofeedback, meditation, listen to music that makes you happy and do some deep breathing while you do. I don't know if you've tried acupuncture or massage. There are also herbs and natural things to add to your diet to help with inflammation. You can eliminate gluten (as much as possible), use valerian root, Ginger, etc.. I hope that you find much helpful information here. Know that this is a safe forum where you can bring your troubles and get them off your chest. We are all here for different diagnosis but we all share the issue of chronic pain. We are all here to support one another, help each other through bad times and celebrate with them through good times. It doesn't matter what your beliefs are, we pray for one another, we send positive vibes and cyber hugs. There's always someone to reach out to help you and you will never be alone day or night. There's always someone who will come to your aid when you need it. There are no judgements here, we understand. It makes you feel not so alone when you know you're chatting with folks that "get it". I hope that you settle in and stay with us. You will find that it is a wonderful place to be when you need to be heard. I am sending you warm welcome, positive vibes, gentle {{{Hugs}}} and prayers that you have a better day with less pain. πŸŒ»πŸ™πŸ»

Dec 25, 2015 12:01 PM

Hey Brodie, Merry Christmas, and welcome.Always is right there are tons of natural,holistic approaches to deal pain. This community is active. There is always someone who will catch up with you and give support. From what I can tell we have a lot of young "folk" in this community that you will get to know. You are so welcome here to vent rant rave or cry we are here for each other. Love and Blessings, Terri

Dec 25, 2015 2:49 PM

Welcome to our community Brodie! I wish it was under better circumstances that we all meet, but at least we have a great community; more like family. AlwayZ has covered everything very well. I also have the same symptoms as you, and then some, with many surgeries and/or complications. I'm 54 and have been dealing with various chronic pain issues since I was 30. I can't sew any longer, so I put white rice in 2 tube socks then knotted he ends. They work well in the freezer or microwave. Staying relaxed helps with my pain. Listening to the little signals to rest has taken time to learn, and I do rest when I need to. I'm allergic to most pain rx meds but I have Tramadol for flares, and muscle relaxers. Trying to occupy my mind with anything to ignore the pain n helps. I worked until 2010 when I needed surgery for a pelvic mass. I've had complications and a minimum 6-7 new dx (diagnosed) problems, and my PCP doc says I'll never work again. My fibro started while the mass was growing but wasn't dx until 2012. The pain was avg 7-8 daily, then I was dx with Sjogrens this year. After being put on plaza my avg daily pain dropped to a 3-4. I have a team of docs who work together, like endocrinologist, rheumatologist, cardiologist, pulmonologist, pain specialist, etc. Having them communicate with me & each other is vitally important. I use warm shower to relax and limber up, voltaren gel rx too.

I hope you can find suggestions to help you find some relief. As others join the post there will be other suggestions. (((Hugs))) & prayers! πŸ™‚πŸ™πŸŒΌπŸŽ„

Dec 25, 2015 7:19 PM

Hello Brodie, welcome to this wonderful family! Everyone has provided much support and advice, which I have listened too. I have some of the conditions you listed and can relate.

I haven't been on as often as j want and need to be, though I am changing that!

Dec 25, 2015 10:38 PM

Welcome Bodie to our family of pain. I have a Syrinx, Syringomyelia, Osteoarthritis, Fibromyalgia, Degenerative disk disease, Spondylosis, Herniated disk @L4S1, and some more health problems. I use over the counter ointments and roll on's, as well as rice bags I make them with two large washcloths sew up 3 sides on the 4th side leave a hole large enough to pour plain white rice in don't over fill, when you have it sewn up put it in the microwave for 2 min. It stays warm for a long g time. Or you can put it in the freezer. I can't take the cold anymore so I strictly use mine in the microwave.

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