Hi, my name is yvonne and I'm 22 years old.
I'm not sure where to start but I'm very happy I found this app because for so long I've felt alone and ashamed and question if I'm faking my pain and ailments or not.
When I was young I would get very sick alot. The doctors never really believed me though because I am autistic, although we didn't know that at the time, and I had alot of sensory issues with the doctors so they just asumed I was faking it all. Another reason they never believed me was because my dad died when I was four so they asumed my single mom was babying me and I just was acting out for attention.
Later on I started getting sick more often and having pains when I was a pre teen. I had terrible migraines and my legs hurt often. As a teenage I just was in pain alot. My right ankle and legs hurt. I couldn't stand for too long or walk too long without hurting later. I got married at 18 to my high school sweetheart and the first month of our marriage I got very sick for 3 months. I live in a small back room with my husband seperate from the main house that my mom lives in. We have everything in here like a fridge and tv and microwave, except a bathroom and running water (other than the drinking water from the fridge ). SO for those 3 months I moved back into the main house with my mom and slept alot and her and my husband took care of me. I don't remember much because I kinda drowned myself in niquil just to escape the fever and everything. But presently I get partially sick alot. It almost feels like I'm ABOUT to get sick. I can feel a fever under my skin but my temp is just below a actual fever so it's still technically normal. My legs feel what I call sicky sore. Not sore after you've ran or worked out but that sore you get when your sick. My lymph nodes on my neck swell and I just feel terrible. Sometimes u even feel like I'm ABOUT to get a sore throat but don't have one. This has been my life for years now. Lucky recently I think I've finally met a doctor who might actually diagnose me with something. So far I know why I feel a few of my pains. My ankle is perminently damaged because as a kid another kid tripped me and I twisted my ankle and it never was put in a cast so it never fully healed. My migraines are caused by my irlen syndrome. I get a bad rash on my arms because im allergic to the sun. And my cold nose knees and fingers and toes are Raynaud Syndrome. My polycistic ovaries make my hurt below my belly button sometimes. But that's about it. I still don't know what the sharp pains on my spine are and why my knees get cold and hurt but I don't have arthritis. Or why I get sick alot and seem to have a weak immune system but my tests come out fine and I look healthy (I have nice color skin and alot of hair and apparently those would be signs I had a bad immune system ). And why I stand and walk weird. I stand with my knees popped back and my husband has told me I almost stand like someone with cerebral palsy. But I know I don't have that. I have just went through some tests and have a dr appointment next Friday so maybe I'm getting closer to answers. So this is me. And I hope to meet other people and maybe get answers soon and just feel valid by being around others who go through the same thing. And maybe get an idea what's wrong by talking and reading about others and I can talk to my doctor about it. Also because I'm autistic I have a hard time socializing normally so this is a much more comfortable platform for me and I can get contact with others.