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New with fibro

Oct 18, 2018 1:00 AM

Hi! I was recently diagnosed with fibromyalgia and I am currently taking cymbalta and tramadol to treat my pain. This is my first fall/winter to deal with it and I am very afraid. The weather went from 90/100+ to high30s/lower40s and my body HURTS! I feel like I’m taking too many pain meds and even those aren’t helping. I went from 4 to 6, sometimes 7 a day. Nobody in my family has ever heard of this and they think I’m addicted to pain pills. Doesn’t help that my husband thinks I’m flat out lazy. I need support and help on how to deal with this pain. TIA

Oct 18, 2018 2:03 AM

I've dealt with this ugly monster for more than 10 years now. Medications that work for one person may not work for another person. I take 1/8 of a dose of 50 mg Naltrexone tablet per day. It took it about 3 months to work. This medication improved my muscle pain. It took years of begging my doctor to try me on the medication. He finally did because nothing else worked. Nowm several of his patients use it. I'm not like I was before this Fibro decided to vacation in my body. The horrible word oxycodone is my relief for break through pain. There are always other issues that accompany fibromyalgia. I have chronic migraine, that won't go away. IBS is also an issue for me. Sleep is another hard issue. I use Lunesta nightly and doxepin. I also have to take mirapex for restless leg. Muscle relaxers are a part of the daily routine as well, but to the muscle in my neck being so tight. If your doctor doesn't respond to you, find another one. This is no easy road. They may see you as a drug seeker. Be very careful how you approach them. If you find information backing up your claims, take it with you to your visits for discussion. It's also helpful to take a friend to hear what is being said. Best wishes, and I hope you feel better.

Oct 18, 2018 2:44 AM

Thank you mebjo! That helps a lot! I’ve had a headache or migraine (not sure which one) for 3 days now. I go see my dr tomorrow. I stay up all night (every night) go to sleep when my son goes to school and wake up when he gets out. Right now it is 2:40am in Texas. I have noticed I am forgetting a lot. I’m only 26 and I forget more than my mom who is in her 60s. I set alarms on my phone to remind me simple daily tasks. I am super depressed bc I feel like maybe this is in my head like people say but the pain reminds me this is very real!
My dr referred me to a rheumatologist bc I had a positive ANA but I just wasn’t comfortable with him and asked my primary to treat me. He is very understanding and I am super comfortable with him.
I was reading online and came across this website/app for support. I am hoping to better understand what is wrong with me and feel like I’m not alone.

Oct 18, 2018 8:15 PM

Epsom salt baths help me alot also get a good heating pad.

Oct 19, 2018 1:22 PM

Welcome ALuna, I've had fibro since about 10 years ago and OA, DDD, migraines, IBS, hypothroidism, and Sjogrens, anxiety and depression, along with other issues. It's taken trial and errors to find what works for me. I have gabapentin and Tramadol, baclofen muscle relaxers, plaquenil, migraine meds, etc. Cymbalta worked very well for me until 6 most later when I started having suicidal thoughts and was taken off of it. I use pain ointments, heat (pads, patches & showers), dress warm in cold weather & cool in hot weather, including gloves with open finger tips. I can't stand, walk, or sit more than 30 minutes at a time, so when I sleep I suffer greatly when I wake up. I have sleep issues too, but am limited on prescription meds because my body became dependent upon it, so melatonin & relaxation is a must nightly routine, and it doesn't always work. Try many suggestions to find what right for you. Ask your husband to go with you to your doctor appts. Mine was skeptical about my issues too, until he heard it from my doctors; now he is my biggest supporter and advocate to all nay-sayers & critics. Hugs love & prayers your family will become more supportive.🙂❤🙏🌼

Oct 21, 2018 11:04 AM

Hi ALuna, sorry to hear about all the pain you are experiencing. Fibromyalgia is a nightmare especially when our loved ones don't understand. Have you asked your husband to come with you to hospital appointments? That might help. Or giving him some fibromyalgia literature to read - he still may not understand but he maybe able to empathise better.

I've lost count of the amount of tablets I take. A fellow fibromyalgia warrior told me "if you didn't need them the dr's wouldn't prescribe them", after that I stopped worrying. As long as they help I'm good.

Hope you're having a good day today 🌹

Take care

Love Hayley x

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