Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Newbie - J9

Mar 31, 2015 4:02 PM

Hi I am new here but not to having pain :( I have suffered for over 4yrs but was only diagnosed with Fibromyalgia in November 2013. Just wanted to say hello to everyone

Mar 31, 2015 5:25 PM

Hi welcome to our community. I was diagnosed with fibro just a couple months ago. :)

Mar 31, 2015 6:21 PM

Jnine, welcome, and glad you're taking advantage of this community! Everyone here can relate to pain and we're all supportive without judging. You'll not here anyone here say, "you should have tried harder." We're more inclined to say "try to find ways to relax and destress," and "don't beat yourself up when you can't do." You'll find lots of support and helpful hints here.

I'm 53 and was diagnosed with fibromyalgia 2 yr ago, but have had it since '08-'09. It hit full force after I had a large mass removed from my abdomen in 2010. The mass grew from missed ovarian tissue when they took my ovaries in '03. It caused major body wide inflammation and many other issues. I had to quit my job to recuperate, thinking I'd return to work. That wasn't to be and I finally accepted that last year. I also have DDD, osteoarthritis, osteopenia, hypothyroidism, migraines, radiculopathy, DJD, and other painful issues. But out of all of them fibro is my toughest because it wears me down the most.

I hope you'll feel free to share your ups, downs and in betweens...and we all like a laugh now and then. Have a good night and I'll be praying for your fibro pain. 🙏🌼

Mar 31, 2015 9:32 PM

Hi Jnine..fibro here since at least 2005 diagnosed 2014. Anxiety, depression, hashimoto's thyroid, exhaustion and 24 other diagnosed ailments. Undiagnosed and Dr's are trying to figure out, uncontrolled shaking, rash, hives, joint popping and now I have been told I have tendon and or ligament popping all with burning.

Currently unemployed for over a year, applied social security and denied in round 1 on to round 2, lost a good 75 percent of everything I owned. Right now is food stamps and begging from charities.

Loosing your dignity, self respect, self value and so forth should be a medical condition itself.

My best advice 1. If you are still working save, save, then save more 2. keep a list of all symptoms and carry it with you to all doctors. Seems like with fibro it is a case of when it rains it pours 3. Start educating family and friends as to what fibro is now because you will need them to be supportive down the road when it gets really bad. Not judgemental or those wonderful you look fine comments. I so wish 10 years ago someone would have gave me that advice.

Mar 31, 2015 11:44 PM

Hi! Welcome.

Ready to start relieving your pain?

Join Community