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CatchMyPain Community and Pain Diary App to manage chronic illness

Newbie, barley hanging in there :(

Feb 20, 2015 4:49 PM

I am in so much pain ATM. Sorry it's not like me to carry on about my pain. It's quiet ironic I am so lonely and can't talk to anyone about my pain, even though I have a husband and 3 kids. They are over it and just ignore me especially when they can see I'm in pain :(

Feb 20, 2015 4:54 PM

Hi, I know exactly how you feel!! I have 3 sisters and they are so sick of me talking about my pain, it's hard as we're always thinking about it and they just don't get it I think.. Try and take it easy

Feb 20, 2015 5:00 PM

Thanx for the support janiceC. I really do appreciate it. I'm not used to support. Thankyou

Feb 20, 2015 6:18 PM

I understand, my wife just expects me to complain at some point during the day. Though I have nothing else to do besides talk about my pain since I am not working and rarely do anything because of the pain. Here's to hoping for better days.

Feb 20, 2015 6:58 PM

I'm lucky my boyfriend is as supportive as he is but I know it bothers him to hear me complain all the time. I try to keep my complaints at a minimum at work too but sometimes I get tired of hearing stupid complaints like my feet hurt from coworkers. Wish they understood what it was like to have pain all over all the time.

Feb 20, 2015 8:07 PM

Welcome Earthangel. You'll find support and more here. And we all know your feelings & share them. Just today I suffered a vertigo attack and my husband had to leave work to drive me to my appt. On the way he jerked the wheel and slammed the brakes suddenly, several times, causing me to get nauseated. When I ask him to please drive more careful he belittled my symptoms with an "oh good grief.". I snapped back at him, " just once I wish you could suffer one day of my life!". Needless to say he apologized and drove more carefully.

Feb 20, 2015 8:17 PM

Hi all and welcome. It definitely is difficult talking to anyone that doesn't experience what we feel on a daily basis. Even the most sympathetic and caring people have their limits. My mother who is 30 yrs older than I has some of the same health problems as I ( fibro and chronic back pain to say the least) and she has always seen the glass half empty while I have always seen the glass half full. Well-- I have a hard time calling her as she is quick to complain every single day and goes on and on and on. I try to be supportive but the truth is that I get sick of hearing her negativity. And then I talk to myself and hope that that is not how others perceive me. But , I don't know really. Overall I try to keep it to myself most of the time except when I feel worse than usual. I did start keeping a journal on my iPad where I write my thoughts, feelings, worries, aches etc... And this has helped in addition to this community. But it's super great when someone asks me how I am doing and really cares and wants to hear about you. Oh well. Have to make the best of it I guess.

Feb 20, 2015 8:51 PM

I really can feel where you're coming from!!! My family loves me but you can see their expression change as soon as I say something about my pain... Whether it's a new symptom, the normal everyday pain or trying to express my sadness, loneliness or frustration of feeling like this each and every day without a break. So, I isolate, keep my thoughts and feelings to myself (unless my day is so horrific, I can't stand it). It's a lonely existence and I have lost friends, I'm not asked to go places, and I'm no longer welcome to go on a family vacation each Fall because they "need to get away from me". (I think that was one of the hardest things to get over, thinking (knowing) my own Mom and Dad want to get away from me and that the rest of my family doesn't want me to go because I'll ruin their time. Well, every cloud has a silver lining and when they go away, I have the entire house to myself and it's great!! I can stay downstairs, watch movies on the big flat screen TV and do whatever I want. In all fairness, I have to say that I can understand them not wanting to hear it because I'M tired of feeling it and hearing myself say it. I'm so glad for everyone here because even though we share some of the same diseases, some of the same symptoms, we ALL share the fact we have this hideous pain. I pray for you ALL and I'm here to listen and try to help. All the very best to you and I hope you all have a peaceful night.

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