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Newbie here. How long do your flares generally last?

Apr 27, 2018 11:25 AM

I was just diagnosed with fibromyalgia. I've been in pain off an on for years but I've been told it was all in my head. It's been bad for a couple of months now with hand tremors and difficulty walking.
So how low do the flares generally last? I've been put on Lyrica and the rheumatolagist will see me in 5 weeks. What should I do until then?

Apr 27, 2018 12:01 PM

It's difficult to say tbh. At one point before my meds were changed I hadn't held my children for 6 months because it was too painful. I cannot tolerate being touched on my shoulders. I'm currently experiencing a flare up of my fibromyalgia, so far I'm 6 days in. At the moment my usual tricks are not helping which happens sometimes. Usually I have a hot bath in Epsom salts (lavender scented to aid sleep), use diclofenic gel, regular pain medication, wrist supports for when my hands, fingers and wrists hurt and take naps through out the day. Sometimes deep breathing exercises can be beneficial. There are some great yoga videos on YouTube but you have to be able to push through it and be able to stick with it.

Hope that helps.

Take care Hayley 🌈

Apr 27, 2018 5:20 PM

Thank you for responding. I'm so confused right now. I don't know what's fibro pain and what's not. I've been hurting for a long time and I'm willing to try anything. But I read on here about flare kits like they last hours and I just get more confused.

Apr 28, 2018 5:49 AM

It's overwhelming, there is so much conflicting information about. My advice is if something is safe and affordable try it. If it helps great! If not it's one more thing off the list. That's how I approach trying to control my pain. Stress can be a huge factor in pain. I use a lot of incense and relaxing bath oils to try and de-stress. I'm looking into a anti inflammatory diet right now. Some of the guy's on here have left some great tips. Hope you're having a low pain day 🌈

Apr 28, 2018 8:59 AM

My flares vary usually 2hours-1year

May 04, 2018 10:00 AM

It varies. Sometimes it feels like I haven't had a break in years. The pain is always there in varying degrees. Research research research. Fibromyalgia is a very individual illness so what works for others may not work for you. Pharmaceutical drugs have never worked for me. After about the 10th drug I was prescribed I started researching supplements specific to my symptoms. I bought a whole bunch of vitamins and tried different things. Changed my diet, bioidentical hormones, gentle exercises, lots of Sleep, and medical marijuana. I learn something new all the time and some days are definitely more of a struggle than others. In the past 2 years I have lost 50 lbs (which I gained with all the different medications) and I have more mobility than before. Any extra weight makes me feel more pain and the drugs the Dr kept giving me made me fat. Listen to your body. Talk to your Dr and research research Research! Best of luck!

May 08, 2018 6:20 AM

My Fibro flairs usual last one day to three weeks. I am currently in week 2. Heat,and rest. I do have muscles relaxers and pain meds to help. Antiinflammatories help some people but I am unable to take them because they interfere with my kidney function. Hope you feel better.

May 09, 2018 8:25 PM

My niece has it terribly, I was just given the dx to add to my list, lol. My niece started teaching me about e oils, helped my through a clean eatting program. But if you try the e oils make sure they are pure, if it does not say you can swallow them stay clear. But on the clean eating I use it for my whole body inflammation. Any little bit helps.

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