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CatchMyPain Community and Pain Diary App to manage chronic illness

Newbie in here, professional at living with pain

Sep 07, 2017 8:55 PM

Hello there! I'm 35 years old and mother of three. I've been working only about 3 years in my entire life, because of my illnesses. I have many things but the worst are fibromyalgia and panic disorder- the pain is always on and panics effect for things I do or can't do. Last 9 months I've been without any life outside home. I haven't seen any of my own friends, only friends of my fiancé, I've been to market to buy food only 3-4 times within these months and I feel myself like some weirdo. There's no one person who has understanding for my illnesses, most of them think I'm acting because I want attention or an excuse. If they had to carry all the s*** for one day what I've been carrying on my shoulders my whole life, the times I just wanted to give up- fall asleep and never wake up again, they would realise that I have survived 'cos I chose not to give up. I don't pity myself never, I'm grateful of my awesome kids (also the reason to exist,
I could never leave them), of my fiancé 'cos he's the first person who lets me be me, small moments with them, the home we have, nature around us. I get happy with really small things and I love to play with words when talking with people by a way that makes them feel happy or laugh. I get good feeling if I see other people happy, or if I can somehow give help for those who need.
I'd love to hear your ways of coping with your pain and the reality that your body is older than its true age.
Thanks already just for existing, all my best wishes for all of you💖

Sep 07, 2017 10:01 PM

Welcome 😀 I'm sure you will get lots of support here! I have fibromyalgia and I'm manly housebound too so I know how lonely and frustrating that can be.
I'm sorry no one in your life is understanding of your illnesses I have a lot of family members who don't believe I'm ill so I know how extremely hard that is and your right I wish they could experience it for one day! If you ever need advice or support please put a post on here and we will all try our best to help you ❤️❤️❤️

Sep 07, 2017 11:04 PM

Welcome! We are a very supportive group here! I suffer with fibromyalgia as well as other things! I suffer with panic issues as well! My family doesn't understand the pain I go through at times! I get frustrated with my body and its inabilities at times! I am retired early as I am not able to work due to my health! Long story short, we understand! If you need to talk just pm me! Again welcome to our family!😊💕

Sep 08, 2017 4:20 AM

Welcome to the community. I have fibro and osteoarthritis. I don't do much. I'm home most of the time.

Sep 08, 2017 7:06 AM

Welcome lilimarlene. It's extremely difficult when people dont understand. You will find people who DO here and are very supportive. ❤️

Sep 08, 2017 5:39 PM

You have found one of the most caring and supportive groups I have ever had the pleasure of being a part of. I don't post nearly as much as I should, but even if you don't see me I'm here.

Sep 08, 2017 10:12 PM

Welcome to our support group 😊😊

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