Hi 👋🏼 everyone. I am a newbie here. Your stories truly resonate with me. I was diagnosed 5 years ago with Reactive Arthritis (never heard of it) some doctors now have called it Spondyla Arthritis. The pain initially began behind my left knee as I took off my boot after a country swing dance so I naturally thought I pulled a muscle. Boy was I ever wrong. By week 3 inflammation encircled my kneecap front to back, my knee looked like a huge hot cantaloupe and the pain was absolutely intolerable. Additionally, I also had severe pain in each of the tendons running down from the knee to the foot. It was a stabbing pain I will never forget. I had to lift my leg in and out of the car with 2 large ice packs aced bandaged to my leg to keep them from moving. The orthopedic on call at the ER sent me away with advil. I recall the long walk the next day for an MRI as the most pain one could possibly bear in a life time. Because the machine requires you to sit close with your leg pushed straight in I simply couldn't do it. Straightening my leg was excruciating I just couldn't. I cried as the tech tried to manipulate my leg in that damn machine. When it was over I had to walk several corridors to get to my car. I wish I had the courage then to ask for a wheelchair. Fast forward 3 more weeks and I couldn't hardly move at all the inflammation had now spread to many joints in my body including shoulders, neck and the hips being the worst hit. I was referred to a rheumatologist as no tears were found on MRI. And this time I was in a wheelchair. She started me on large doses of steroids, Sulfasilazine and more advil. I was determined to never ever go on a biologic. I tried acupuncture for a couple months. It helped the sciatica yet nothing else. After 4 months though I reluctantly agreed to try Humira because I now had to take tramadol and remission was said to be possible while on it. I had no plans beyond that one word ’remission’ it gave me hope. My 3 month check up was not good. I was told I would also need to take Methotrexate, another drug I took reluctantly. Within a year Humira stopped working. I was on Enbrel next which stopped working after 18 months. I could not tolerate the methotrexate so stopped that. Now I’m on Remicade and reaching my 3rd infusion. My worst pain hovers above an 8 in both hips especially when I walk or sit for longer than 15 minutes. The Remicade is helping my painful stiff neck, knees and the costochondritis that showed up in my chest in March. I have given up at this point for full remission. It's now quality of life. My rheumy suggested fibro as a co-factor but I'm not 100% convinced of this diagnosis. Has anyone been told they might also have fibromyalgia after going on biologics for an autoimmune inflammatory arthritis? How did your doctors diagnosis this?
My rheumy did say therapeutic massage was helpful to some.
Has anyone gotten any pain relief from massage? Did it hurt? I can't lay on my sides, sit or walk for too long before both hip sockets explode in a hot mess of pain and inflammation. When not moving the area is extremely tender to the touch. The thought of pressing and kneeding that area sounds like it would leave me not feeling better but in a lot more pain like physical therapy did.
If you have had any pain relief from massage therapy please tell me more about your experience. The type of condition and massage and how long you did it.
Thanks so much in advance.