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Newbie ... Question

Aug 29, 2016 3:45 PM

Greetings all, I've been learning, laughing and crying reading the posts here ... Thanks to all.

So the thought that doesn't leave my mind is the comment of going to the Dr in an unkept state and getting a better response.

I'm almost at the two year mark applying for disability here in Ontario Canada .. a system that is all about rejection .. I have another tribunal in late fall ... Soooo do I start applying a lazy attitude to appearance in such circumstances? It goes against my grain in needing to appear "together" ... I've lived with chronic pain since emergency surgery almost 8 yrs ago and after acquired depression, anxiety and the ever lovely PTSD and the latest cherry is fibromyalgia ... Which I knew, but Dr finally listened this summer.

So take it down a notch in all my upcoming appts?

Thanks in advance... Fog gurl

Aug 29, 2016 4:10 PM

I tend to dress to how I feel... last two weeks I have just put pjs on.. I think if you are feeling bad then dress to reflect that. Xx

Aug 30, 2016 4:10 AM

I have my last appeal at the tribunal in the fall as well. I also live in Ontario Canada ...it is almost impossible to win disability here! I wish you the best of luck!

Aug 30, 2016 6:17 AM

Thanks Anna ... Yes the system is designed for rejection ... Good luck to you as well ...

Aug 30, 2016 6:33 AM

If u look together to a person not in chronic pain... they assume u need no help 😚 its wrong but unfortunately a fact. ⚘ i wish u so much luck... 🌷
πŸ€— i wore no buckles or buttons.... i wore my hair in a loose pony/mess because i could not do it myself...( they seem to view these things...as meaning u can All the time..)😲. i wore jogging pants... i guess i looked like i needed help! πŸ˜‰ oh soooo Not me at allπŸ˜‰ i might add!πŸͺ Im a tart...🐫 gotta have makeup on to smile at my postie each day (its for me really) 🐴

I shouldnt matter... the world shouldnt be this way... but it is what it is!πŸ€—

Aug 30, 2016 6:43 AM

Uggg! Yeah that's what I'm coming to terms with ... So I will plan accordingly. It is nuts ... I really need this to be able to move forward.
Thanks.

Sep 20, 2016 12:11 PM

foggurl, Hi I am new also. I saw on another post you said you had emergency cauda equina surgery. Can you tell me a little more about how it happened to you? I have almost all symptoms of that or Conus Medullaris. But none of my Dr's will even consider checking me for either. Was your onset immediate or gradual? Thank you

Sep 20, 2016 12:32 PM

Hi ... Hmmnm my condition happened in a short period of time but following and extremely stressful 10 plus month period. So I honestly only remember being tired before I lifted one of the last things from my home I sold ... So that was the original injury ... Which for whatever reason got worse with unpacking and caring for my four year autistic son ... He's a big lad and would still need to be carried regardless the state of my back.

I went to my chiropractor often (regret this - it was just before he retired and I believe he was off his game ... He should have sent me to emeg and not treated me ).. he'd adjust me and tell me to rest ... It never did in less then 3 weeks I went from sore back, pulling over to throw up up from pain to start losing bladder function .. that is pretty much a free pass into surgery. I had full saddle nerve damage with the pain still there ... Great surgeon, blessed to walk and regained some feeling ... It's been 8 years since the surgery.
The surgeon said this was a chronic condition (can't say I knew) with people who sit for a career like bus drivers ...

Because it was an emergency I didn't follow the usual path for treatment.

Hope that helps ... The pain was through my sciatica ..

Sep 20, 2016 12:55 PM

Bless your heart. See that's where mine is a lot different. I have been in pain for 8+ years, had a lumbar fusion (which wasn't needed). Found out 3 years later, after pain got worse, from surgery that I am HLA B27 Positive. An autoimmune disease. Which I have all the signs of. But no one wants to say that is what is causing my pain. My main problem /pain is coming from the Dermatone S2 area. Which can be caused by A.S. &/or both of those syndromes. But Neuro wants me to have another back surgery on L3 & 4 before he will consider looking at anything else. Ugghh.. I am not happy with that because of the 1st one being uncalled for, made me worse & ended up with a staph infection in site one month later. I don't have loss of bladder control but I do have urine retention. Which is worse in late evening & all of the other issues that they mention as symptoms. But they all keep telling me if I had one of those syndromes that I would have been Emergent surgery by now. Which I understand. But was wondering if it could possibly start off slowly. I am going to Cleveland Clinic in Ohio in Nov. So hopefully they will be able to tell me more.

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