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Newly diagnosed

Mar 16, 2017 10:46 AM

Hello my name is Katherine I'm newly diagnosed I've been taking trazodone for depression for years and it keeps my mood stable but I'm now changing over to amitriptilyne I really hope it helps. I'm having difficulty explaining my diagnosis to people, family, college I don't think they really understand it. Any tips on how to approach the topic with other people and how to manage pain would be really helpful πŸ™‚

Mar 16, 2017 11:00 AM

Hello!!!!
I've been in trazodon a few times for a short period of time.
I know what works for me...
I don't t tell people what I have and I look normal so people think I'm lazy or just missing workπŸ™„.
I find my positive for the day and my alarm plays happy music or my fav song.
I'd rather do the natural stuff without the medication so I tend to try and research home remedies.
I've surrounded myself with Doctors that don't want to push meds at me!

Most importantly I am my own cheerleader!
Don't get me wrong I have my down times it's not easy but I'll be the first to say....
I decided when I quit!

Welcome!
I've been in the site for a week or two. I love it bc I'm getting good information and at times great appreciation for the things I don't have . I truly believe there is always someone worse off then me!

It feels good to know I'm not the only one who struggles with work. It validates that I'm not crazy.

Be strong !πŸ’‹

Mar 16, 2017 11:27 AM

Hi Katherine. Welcome 😊 I been on here for maybe 4 days now and love the support and nobody is judging on here..
I was one trazodone . Woke up with a swelling mouth. Wasn't good . I don't know anything about amitriptyline. I hope it all works out for you.

I am the same way as cougarlicious. I let people think what they want about me . I understand wanting to talk to your family about it . My opion just tell them what you feel comfortable with . And go from there. If they seem like they understand or want to try to understand and be support to you . Then you can slowly open up as you feel the time is right

If you don't feel right about letting them in then you don't have too

Best of luck 😊

Mar 16, 2017 11:49 AM

Hi
I'm Jade. I've been on for 4 or 5 days now. I was diagnosed with fibromyalgia 4 years ago. I was ok at first but for the last year I have been in much pain. I also dont like meds, I rather try natural remedies. Lately pain has been so bad I was prescribed Cymbalta. I have yet to take it. I also have many allergies to many meds, so the thought of trying something new gives me anxiety. My family feels that since I don't take meds I'm just allowing myself to be in pain. To keep myself busy, I take a sign language class, I read. I watch my favorite shows, and I pray.

Mar 16, 2017 2:19 PM

I truly wish I had a magic wand and give people a taste of my pain.
I'd like to see my kids Dad function.
Hell, I'd like to give it to Administration see if they can jangle my job and pain.

If I was that powerful to imagine and endure. I would imagine millions and endure the luxury of SPENDING IT!

Mar 17, 2017 4:17 PM

Hi Katherine....And everybody else who's new here (I've been a bit absent lately but I'm catching up slowly!) I've found sometimes you need a little crazy and a lot of humour just to push through the day.....You know that laughing released the good endorphins that make you feel good so laugh as much as you can as hard as you can.

Back to point Katherine are they giving you amitriptyline for depression or as a pain med?
I have been on amitriptyline for years, firstly as a low dose to prevent migraines and now on a much higher dose for my trigeminal neuralgia pain (and now for my freshly DX fibromyalgia). Unfortunately all the normal meds for trigeminal neuralgia are the same meds for fibro and they all make me feel so bad that they counter act the good they do even on the low doses and the only thing that helps is the amitriptyline BUT it does nothing for my depression and anxiety so I'm also on duloxotine for that.
It's a really hard and long drawn out process to find the right meds for you as everyone is different, what works for me might not work for you and what works for you might not work for me.

With regards to telling people, as everyone else says you tell them what you want to tell them, it's your business not theirs and if you do tell people you might also want to give them what is called "The Spoon Theory" and/or "The Letter To Normals" they are great for explaining your energy levels and how different things take that away etc....
You can find both be Googling them. They've been very useful for the people in my life who actually want to help and understand.

I hope this helps a little.
Sending you positive vibes and warm loving hugs xx

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