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Newly diagnosed with fibr and lupus

Mar 05, 2016 4:28 PM

So am feeling like I'm drowning ATM. I'm fed up with being in pain all day then at night it increasing. My ankles my knees and my wrists are the worse plus my back shoulders and neck when it's really bad, then I can hardly move. My body swells so I can hardly move n have no energy. I sometimes feel I may fall asleep driving and it scares me. How do you all cope with this what are the strategies please? The docotros speak at you but don't understand the level of pain etc plus the mental torture that comes with this please help me anyone??

Mar 05, 2016 5:37 PM

Hi Kitkat
Welcome aboard !
My advise is just learn to pace yourself it takes a bit of getting used to but stay positive your body will tell you when you done to much and you'll learn from it.
My PMA is always the way I get through my days X
Good luck and again Welcome

Mar 05, 2016 5:46 PM

I to would like to welcome you. I too am newly diagnosed with fibromayalgia and Chronic pain syndrome with possible Lupus. Idont have any magic bullets of advice for u but I will say and eco what fibrogirl said you have to take the time to learn your new body. You will find your new limits and then you ha e to educate those around you how to respect your new limits. Once you discover that and start living in it you'll find your days more fulfilling. Even though youay be tired of resting it right now that what u need rest and relax and practice mindfulness meditation. You find your way. I know the pain is draining and ever going but once you find a pattern and getting a schedule for yourself you'll find the pain does not over take your day as much. Hope this is helpful and I look forward bto hearing more from soon.

Mar 05, 2016 5:48 PM

Hi new
How you feeling theses days you're sounding more positive x

Mar 05, 2016 5:59 PM

Welcome Kitkat, So glad you found us and decided to join us. You will find many of the things you may not get from your non Cyber family and friends. Support, understanding, empathy, nonjudgmental responses. Most certainly a place where you can be transparent... Even naked if you will. So come in.. Get comfortable, take your shoes off... Don't worry about the smell...LOL we accept you with all your aches and pains, venting allowed with no apologies necessary! Grace & Peace !!

Mar 05, 2016 6:06 PM

Hey fibrogirl.. I'm doing alright.. I'm haveing my ups and downs like most us..but I'm trying to be uplifted especially with the new comers I want to invitng. You should come join me and some others in the fire circle. It's on Facebook. How have you been. Fibrogirl?

Mar 05, 2016 7:10 PM

My attempt at coping is counseling, knowing and trying to accept limitations and rest. I do watch small children throwing tantrums with envy though. Unfortunately there is no magical button or winning combination that really works.

Mar 06, 2016 12:22 AM

How do I cope? Pug cuddles...and, on days I can tolerate it, knitting (I hope my physiotherapist isn't lurking. She'd have my head for knitting!). I may still be in pain, but my stress level is fantastically low.

Mar 08, 2016 11:38 AM

Ho newfibro
I doing really well stopped drinking diet juices and my pain has really improved although I do still have aches and pains. Been trying to loose some weight as well which is pointless coz those duloxotine just keep me fat . Has anyone else had problems with them it would be interesting to know xx

Mar 08, 2016 11:51 AM

Hi kitkat! Welcome to the family.

Mar 08, 2016 12:39 PM

Yes every time I take the Cymbalta my pain gets worsen, dry mouth, heart racing and bowel backup etc.

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