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Newly diagnosed with fibro

Jul 15, 2015 9:06 PM

I was diagnosed in March 2015 with fibromyalgia and an over active immune system. Rheumatologist only prescribed me plaquinil. I work full time and take care of my disabled husband. Having hard time coping with everything. I don't like for him to see me in pain. Any suggestions on coping mechanisms?

Jul 16, 2015 9:03 AM

Take care of yourself well so you can care for someone else. I am disabled. I don't need my wife to do everything but I can't clean and she needs to do most the cooking. She doesn't have to help me with personal care. But one thing I make sure of is that she takes care of herself. She comes first. I need her to tell me when she can't do something. I don't know the extent of your husbands disability. I am not talking about a selfish me first. But I mean you need to replenish yourself. If you have Fibro, make sure you are getting the right amount of rest. If their are jobs you can't do any more like mowing or something and you can pay someone, do that. Take some personal time to rejuvenate your mind. Everyone needs a little alone time. I don't know about you. But I use to love missing my wife. It was nice to come home and have something that we did not share together that I could tell her about. So even though my wife doesn't do it, I recommend going out with a girlfriend every now and then. It will be good for both of you. It will replenish you and it will give you something new to talk about that you didn't share together. Meditation and relaxation. I think if you do some deep breathing with a picture of something peaceful imagining your body is slowly getting warm from your feet in increments up to your head over a thirty minute period, letting all your muscles just drop. It will help you tremendously. That is something that helps me with pain.. I am sure others have other things more specific for fibro. Oh, if you use amazon. There is this product we really love for pain called biofreeze. We like the spray. Basically in the Ben-Gay family, not the smell, works way so much better. We love it for so many pains. I wish I could afford it in bulk. The plain spray is just fine. I think you would be impressed I have tried many different creams and things. I have not found anything that comes even half as close to comparing to it. Best wishes to you and I hope this is one of your better days.

Jul 16, 2015 9:33 AM

Tammy73, I've had fibro for several years. This year I've been diagnosed with hypothyroidism and sjogrens, both immunity issues. My rheumy doc put me on Plaquenil about a month ago and she told me it would take several months before I would likely feel a difference, and probably six months before the med reached mad level of improvement for me. I have noticed only a slight difference so far, but even that has helped.

I had to go to Mayo yesterday for some tests and it definitely aggravated every site of my body. My legs were so swollen and hard, and they were burning and singing with pain. Days like yesterday are going to be the exception where it is going to hurt and be difficult.

Just be patient and give it some time. The doc may have to add a meds like gabapentin, lyrics of such. I have gabapentin but I've been told to hold off until they find what's causing my tremors imbalance and dizzy spells. You'll be in my thoughts and prayers. 🙏🌼

Jul 16, 2015 11:55 AM

Tammy 73 I take 800 mg of Gabapentin 4 x day,as well as Savella 50 mg 2x day. My insurance doesn't carry the Savella on their formulary so I have to get my Dr to request it for me every year. They made me take Lyrica for 3 months and it was like taking Tylenol. I also take for pain Fentonyl patches 50 mg x 3 days, and Hydrocodn / Acetaminophen 7.5 / 325 x 6 hrs as needed for pain. I also use OTC Equate Cool & Heat roll on it helps some, and Aspercreme pain releaving creme on my arm it has helped a little on the nerve pain. I also use rice packs made out of large washcloths,sew up 3 sides and use plain white rice,don't over fill then sew fourth side up. Pop in microwave for 3 min. Put on whatever is hurting and place it then get under the cover, it stays warm for a long time. Don't use any kind of pain releaving creme or roll on's, and then use the hot pack over it. I have Fibromyalgia, Osteoarthritis, Syringomyelia,Syrinx, herniated disk with a uprooted nerve. Spondylosis, degenerative disk disease, and several other back disease's.Type 2 Diabetes, High Blood Pessure. As well as other health problems. I have fluid inside my spinal cord starting at CS 7 and going down to TS 12, this causes pressure on the nerves and muscles that causes deterioration of them. I have a appt with my Neuro on the 21st and I intend to ask him about having a shunt placed in the there to constantly drain the Syrinx.

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