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Newly diagnosed with Fibromyalgia

Nov 28, 2017 4:08 PM

I have been following the discussions in this site for almost a year now. However I have recently been diagnosed with fibromyalgia less than two months ago.

I have made some lifestyle changes that have helped some of the symptoms, however I am having a lot of difficulty dealing with the “life sentence”.

I was a regular weight lifting and cardio exerciser, along with ball hockey....however the pain without a diagnosed cause most of this to stop. Now I need and want to get back to this but it’s such a slow process due to the pain.

I guess why I’m putting it out here is to ask for some help for everyone or someone. I have the regular flare up box of things that help...weighted heated blanket, ear phones(plugs), pain meds and books. But I guess I looking for other things....like if anyone as experience with homeopath or natural oils that help. I have completely done a diet overall about a year and a bit ago. But want to get this acitivity I so need back.

Hoping this all makes sense. Thank you.

Nov 28, 2017 8:09 PM

I too have struggled with the "life sentence".
1. If you don't have a support system surrounding you, get one! Surround yourself with people that will encourage and push you to get up and move when all you want to do is pull the blankets over your head.
2. Eat nutritious food. Use food as fuel and nurishment rather than something you must do to stay alive. That means avoid processed foods as much as you can. Not always possible I know.
3. Essential Oils do help. The downside is you have to use them a lot throughout the day. I keep my go to oils with me at all times. Lemon, peppermint, lavender and a muscle relief blend. When I first started I thought you could only get oils thru MLM companies. Not true. I've been using Edens Garden for years and you won't have anyone pressing you to help them level up!
4. Magnesium. If your not taking it you should. It's an essential nutrient that most of us do not get enough of.
5. Jacuzzi baths if you are able. Soaking in Epsom salt helps with achy muscles. When you soak be sure to drink plenty of water. Or you can soak your feet in Epsom salt.
6. Get enough sleep. Rest is essential to good health whether you have fibro or not.
7. Can't sleep bc of the pain. Ask your doctor for a mild muscle relaxer. You must sleep!
8. Laugh. Laugh as much as you can and have fun. Enjoy every moment bc everyday whether you have pain or not is a gift.
9. Love deeply. When the pain is so great focus on someone you love and remind yourself how much you love them. Out loud. May sound weird but their is scientific studies that show this is beneficial to overcoming some forms of pain. Not only that when you focus on what you love you can't help but smile.
10. Yoga. The stretching works wonders. I'm not talking head stands or anything like that. Just light stretching. Done at night may help you sleep.
11. Fibro is frustrating and everyone who hears you have it all of a sudden has a medical degree and freely vomits unsolicited opinions on what is going to "cure" you. They mean well. Give them grace. As ignorant as they are forgive quickly...they mean well. With that said, darling, here is the last of my two cents.
12. What works for me or others may not work for you. And what brought you relief last week may do nothing for you this week. Frustrating I know but don't give up. It may be a life sentence but it is not a death sentence. Although there have been times I prayed for Jesus to take me home. For me, once I came to grips that my life was going to be different and certain things I had to change life got better. I regained my joy bc I started focusing more on the things that really really mattered. Everyone I have met are the strongest people I know! One final thought. Give yourself grace. Lots of it!

Nov 29, 2017 11:12 PM

Thank you @beautifullymade. Thankfully I do have a good support group. My husband and children (although young) are sooooo supportive. I have been eating well and avoiding processed foods the best I can.

It is good to know I’m not alone. There is only one person I know with fibro in my acquaintance. So I think I need to find something in the city. Like a support group or something.

Thank you so much for your comment. I truly do appreciate.

Nov 30, 2017 12:18 AM

Beautifullymade: Loving your advice. 100 percent correct. Glad you could write it so beautifully. I'm better at talking.
To add to your wonderful list.

1. Get your Blood Tested. I was soo low on D and B-12. Since taking them(liquid form) helping alot!!!
2. Seeds: Chia seeds, pumpkins seeds, walnuts, almond, etc..(natural, organic)
3. Check your Pillow: You need sleep more then most, find a great pillow(only one).
4. Better Sleep: Have sleep issues before, now Fibro. even worse, be diagnosed with Restless Leg Syndrome to help MELATONIN(liquid better then pills) No more sleeping pills.😁
5. Water: not any water, Kagan Water can't get right now? Arrowhead Water.
6. Pain Meds: CBS, Not your parents "hash" (LOL) or Real Pain- Maxx(awesome cream to help with full body pain)
With Beautifullymade list and mine you have most of the receipt for a better life. Some people might not get it and that is okay. But after 20+ years of all this pain, I was over all the different Drs, meds, etc..So, I started something new. 1st. Laughter, yoga, a puppy, better support system, better water, seeds, etc.... and my life has changed soo much. Happier, looking and feeling good, now don't let the list full you, I still have pain, right now I do,(Why I've replied soo much). But, I have more great days then not. Didn't have that before. Keep smiling. Always here to help.

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