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No cysts/PCOS

May 22, 2016 8:21 PM

So now I'm going to talk to my new OBGYN about Endometriosis on the 24th. I hope this one takes me seriously.

May 24, 2016 8:22 AM

Hugs& prayers this doc will be who you've needed all along! πŸ™‚πŸ™πŸŒΌπŸ’•

May 26, 2016 1:50 AM

Dear Frailfairy,
I have a scope on May 31st to confirm endometriosis. I am also going to be loosing my right ovary with a abnormal longtime growing cyst. You can search my name. I have talked about my journey lots since sept/October 2015. I did ask for a second opinion. First one said go gluten free and you will feel like a new woman in 6 months. My return appt was I was pooping, but my my pain increased. She said well you either accept the pain or we will do a total hysterectomy. Total 3 minutes in her office. Never saw her again. Even though I have held out so long with the same possible outcome. We tried things before removing everything. My current gyne doctor doing my surgery had me fill out an 8 page history. After that she believed I do have endo, will confirm on Tuesday. Depending on damage I may have to have a total hysterectomy. I do not want a total. I have tried many types of hormone therapy, pain meds. Not a great experience. Tried Lupron something I did not want to do but was extremely desperate. Now I live with the consequences wishing I did not do it.
The questionnaire asked about: sex, sex partners, upbringing, rape, habits smoking, drugs, reactions to medications what worked what didn't, diet, do I expect to be pain free, home life, coping, life strategies, self care like heating pad, movement, family history pain, pelvic problems, bowel habits, type of pain, where and when in my cycle, diagnosis, goal of coming to this clinic.
Hope this can give some insight and strength to your concerns.

May 26, 2016 7:14 AM

What did the Lupron do? My doctor suggested that and I was debating it but in just so afraid

May 26, 2016 1:29 PM

If you google Lupron, it has had some bad effects, some of them being permanent that part I didn't know. IT SAID THAT IT MAY GIVE TEMPORARY RELIEF. TEMPORARY NOT PERMANENT FIX FOR THE PROBLEM. You can only be on this drug I think for a year? FOR ME IT WAS A DRUG FROM HELL AND THE SIDE EFFECTS WERE BRUTAL AND CAN BE LONG-LASTING OR PERMANENT. 24 hour/day migraines and excruciating eye pain right from a couple hours after the first injection. I did 2 rounds in 2 months. The migraines and eye continued a couple weeks coming off of it. I was useless for those two months. I have had 2 migraines in the past month, which is now not a big whoop. Plus the eye pain is much less, but vision still a problem. I was told by gyne that my pain would increase for a week after the first injection then drop off. No it was 2.5 weeks of 24/day. This pain was like labour or miscarriage pain with out the drugs. I felt my body was in a terrible flair and attaching itself. I continue to have lots of muscle pain, weird joint pain, wobbly painful joints - never had this one before, fatigue, I now sleep 18-20 hours a day. I am back into a major depression with increased anxiety and chest pain.
It did give me 1.5 weeks of less pelvic pain and then the pain went wild again, still increasing in severity of the pain. It's like cruel punishment, like just kill me kind.
Knowing this now I would of went straight to a scope for the gyne Doctor to confirm the endometriosis. BECAUSE LUPRON IS FOR A TEMPORARY RELIEF NOT PERMANENT !!! What if it doesn't help, you still need to be scoped for a firm diagnosis of endometriosis. The scope will need to come eventually.
The gyne Doctor described the way that Lupron works is by putting my ovaries into hibernation. By temporarily shutting down my ovaries, estrogen is stopped being produced. Endometriosis thrives on estrogen. With this comes temporary menopause, more to add to the pile. Bears hibernate but I guess I am more like a dog which is not nice to say because I have a beautiful female dog. The bitch in me came out full force plus dealing with all this. I think my family was happy when I would forget what I was talking about. Or was sleeping. Lost my nouns, my daughters name.
Oh my gosh.
This is just my thoughts of my experience, doesn't mean it will happen to you. 😬
I am 47, I am ok to go into the next phase of my life. How old are you? Are you wanting to get pregnant or done having kids.

Take care of yourself,

May 26, 2016 2:03 PM

The bitch in me would now ask if the Lupron rep has been around lately. At this point I think I have grown some balls to ask that. Lupron is an expensive drug. Doctors are not immune to getting kick backs for the drugs they prescribe. I would simply ask if they have any samples and if they don't And give you a card that is another sign that that they could be getting a kickback πŸ€” kickbacks can come to them in many ways. They say that the government does not allow this. But the drug companies just change their way of doing business. Look around your doctor's office if there is someone there well dressed with a case of some sort or without it COULD be a pharmaceutical business call. Especially if they are 20-30 looking, exceptionally good looks, very perky, with good rack. I used to get free samples of medications now I understand why. My friend went on all types of trips. Even to another continent. Everything was paid for by the drug reps or medical supply companies.
That's my rant. Beets

May 26, 2016 6:01 PM

I don't think I'm gonna take it. I'm 20 right now and already experience most of those symptoms from chemo lol I can't have kids but they still won't just remove my ovaries and uterus because I'm so young. I'm thinking my pain is more related to my tumors than anything else

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