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No diagnosis

Aug 22, 2018 5:29 AM

Besides me anyone still not hav a diagnosis me no in 2 years

Aug 22, 2018 9:58 AM

Welcome to the community Horrorfan1613. I know there are others without a diagnosis. Not everyone gets on here every day so it might take awhile before anyone responds.

Aug 24, 2018 3:06 AM

Believe it or not my doctor said she doesn't like putting dx out there because insurance causes problems in treatment.

Sep 15, 2018 5:05 PM

It took me close to 3 years before I got my diagnosis. Hang in there! Xx

Sep 23, 2018 8:26 AM

Welcome Horrorfan1613! It's not unusual to take years for a true diagnosis to be found. So many different diseases have similar symptoms. I started having dry eyes and yeast infections in the 1980s. Then dry nose and mouth. It wasn't until I developed a (twice misdiagnosed) rash inside the cheek of my mouth, and the rheumatologist sent me to a dentist for an oral biopsy, that Sjogrens was diagnosed, in 2012. I had been diagnosed with fibromyalgia in 2011, although my PCP began to suspect it in 2009. When I was out on plaquenil for the Sjogrens my pain was cut in half! I had no idea until I studied & researched that Sjogrens can also attack joints. Hugs love & prayers you will get answers sooner rather than later! 🙂❤🙏🌼

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