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No-to-low flare streak exploded 🌋💥

Jun 28, 2019 10:55 PM

When my fibro was diagnosed in 2008 followed by Sjogrens in 2011 they always came together, back to back & rough, but as the years passed they lessened in intensity. Then over the past 12-18 months my fibro and Sjogrens flares have been very mild and very short, and sometimes solo flares without the other. I guess the stress of taking care of everyone else the past 2 years was why, maybe? I guess I got use to that and forgot how ugly it can be...

When I got up this morning I felt pretty good except for a few aches here and there. As each hour passed those aches became more intense and encompass my whole body by tonight. I am having a Sjogrens flare of joint pain and a mouth full of tiny burning stinging blisters and thrush with hoarseness and sinus congestion. Add to that a fibro flare of all over muscle pain, leg cramps & extreme fatigue, more than I've been use to in a long time.

And then to top it all off I've got newer symptoms that I'm not sure what's the cause for: painful throbbing in multiple finger joints and extreme painful sensitivity to touch on my knees, feet & low back. I mean literally my small dog was sitting between my legs scratching his neck with his back foot & as his foot hit my knee I'm like "Whoa, that hurts!" He weighs 20 pounds so his foot can't even weigh 1 lb. What is going on?

At this point I've taken all the meds I can safely take and I still hurt too much to even get any rest let alone sleep. I do wish I could get into an Epsom salt bath, but even if I managed to get in I'd never get out of the tub with my hip issue right now.

I have to wonder if it's the weather change coming? It's been humid for 3 days and we've had a lot of that dust cloud from the African dessert in the air which they say is affecting us. And now a ridge of heat is coming in so we could hit triple digits by Monday. Georgia is not suppose to have this heat & humidity until August, in what we call the "dog days of summer!" 🌡🔥😰This weekend is gonna be a rough one. I sure hope everyone else has a better one than mine is looking! Hugs love & prayers for all... And thanks for listening.🙂❤🙏🌼

Jun 28, 2019 11:12 PM

Hi flappy sorry to hear 👂 but I’ll pray for you and others here also . Hug gently night Shore🦋🌈🌈❤️

Jun 29, 2019 6:19 AM

I'm so sorry you're having so much pain. Prayerfully it won't last long.

Jun 29, 2019 11:29 PM

Wow FlappysLady! I’m so sorry your having so much pain. Your mouth ought to be really painful 😖 I sure wish I could reassure you that you’ll be pain free but unfortunately I can’t. These darn weather changes can be brutal. This last week we had 4 out of 7 days with rain and high humidity. Dang felt like winter when I have my worse days. Can’t say that anymore. Lol 😂 This next week I see a 5 day stretch with rain again! What the heck!🤪 I’ve been plagued with a lot of muscle spasms to my feet/legs recently and unusually even in my hands. Never got that before either. I hope you soon start feeling better. Taking anything for the thrush? FlappysLady I sure hope your health soon gets better and your weather gets better. You sure need it! Sending you 💕{{🤗}}😘🌺

Jun 30, 2019 6:08 PM

Thanks to you all for your support! Although I don't feel that great today, it's better than yesterday or Friday was. I actually realized I've been building into this flare since last weekend. And I wonder if my physical therapy Thursday, where they increased exercises, weight pounds used, and repetitions caused it to suddenly worsen to such extreme on Friday & into yesterday. I only managed 3 hr of sleep last night due to pain, poor sleep. I was on my tramadol, Baclofen muscle relaxers and gabapentin around the clock for over 48 hours; a long stretch of so much all at once for me. But it's the only reason my pain is manageable today. And the new symptoms have me baffled, like the hands & finger joints, knee joints and since yesterday cystitis or urethritis flare up (I'm drinking lots of water because my Sjogrens had me so dehydrated my lips & tongue are cracking). I'm using "Magic Mouthwash" for the thrush and burning mouth symptoms, a RX from my dentist and it's wonderful!! I just have to think positive and hope yesterday was the worst and I'll continue to improve over the next few days. I'm super glad my new PT sessions are at 8 am because they were at 5 pm, and we will be close to 100 defrees the rest of this week...and the humidity is like breathing inside a sauna! Hugs love & prayers everyone has a peaceful night! 🙂❤🙏🌼

Jul 01, 2019 9:50 PM

Sorry to hear about you being in a flare. Their the pits aren’t they? PT sessions at 8 am are hard for me. I get up about then and hard to start the exercises then.10 amm better. Lol I’m wondering to if it’s not the PT that’s bringing on a flare for you. They did muscle exercises on my Achilles’ tendon and it’s been 4 days since then that I’ve continued having muscle spasms in my legs in the backs. Hopingbyour flare is over now for you. Thank God it’s not that hot here! 80’s hot enough for me. Not the heat that’s bad but the humidity is horrible. Like you said”Like breathing inside a sauna”. Hopefully it drops some soon. Love and best wishes to you my friend 😘🤗🌺🦋

Jul 05, 2019 9:31 AM

Painwarrior, normally I would choose the 11 am slot for my PT, but the earlier time is best while my hubby has to take me, before he goes to work. I just got back from PT this morning and she went up on the weights and repetitions again, and I already feel it; I'm sure it's affecting my flare up. But I can say even though I'm still feeling very tired I don't have the unbearable all over pain, so I hope I'm on the upwards swing. My left hand is still hurting pretty bad, especially in 3 joints, and I'm wondering if it's ever going to feel better. Hope you have a blessed day! 🙂❤🙏🌼

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