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Not sure if this is a FLARE or medication

Nov 12, 2015 6:54 PM

Today has been interesting. I've been a total wash out all day. Mood is low energy is low I've been hungry all day but not able to eat. My pain has been round a 7/8 at times. Every movement is agony even laying still is uncomfortable. Joints feel swollen and tight . I've been on lyrica for a week and today was the fisrt day of a dose increase plus I start my hormone therapy tomorrow. Today is the worst ive felt in a few days. I though I was getting better two days ago I went for a walk several days in a row. I was excited about my increased activity. However today I've wanted to cry but could not get up enough energy out to cry. My mom and dad are both sick along with my sister . my medication does not seem to be working I'm gonna keep taking it on schedule and pray it starts working . I just want to start feeling better. I hate this.
My mom ask what can she do and I'm in so much pain I don't even know what to say. I can't even think of what to do. Any help or advice and as always all the prayers I can get right now are welcome .

Nov 12, 2015 8:00 PM

Newfibrogirl, it's possible you overdid the walk. Or you could be entering a flare, with this freaky weather. We were 75 today but drop to the 30's tonight. I can already feel the cold seeping into my joints and bones, especially my hands and feet. Just rest up and hopefully you can walk again in a day or two. Just be careful not to over walk. Good luck! πŸ™πŸŒΌ

Nov 12, 2015 8:08 PM

Thanks flappys.. I can feel it too. I have a hard time getting my mom to understand that I can feel the the change in weather before it comes. She still has the air on right now and its not really working for me. I think maybe i did over work on the walk. I'm struggling to fit excerise into my life. I use to love working out along with a host of of other things.. Ha... It's hard to balance

Nov 12, 2015 8:15 PM

I started 2-3 months ago, doing 10 minute walks once a day, then twice, and now three times a day. I'm also using stretch bands and 2 lb hand weights now, 2-5 minutes each. Slow & steady. We won't get out of the 60's the next 3 days and I dread it. But I've got my hand gloves, toe socks and sweats! πŸ™πŸŒΌ

Nov 12, 2015 8:46 PM

Might be a sickness too, I know I caught something

Nov 15, 2015 11:42 AM

I've been diagnosed with SjΓΆgren's syndrome, hashimoto's disorder, fibromyalgia, Djd lower back L5 & L6
Lately I've noticed that I've been holding fluid and feeling puffy in my face, arms, & legs. I'm taking vitmains and my routine meds, I am taking thyroid meds for the past 5 years. My biggest problem resurfaced In August ,I've been coughing spariticly a hard deep cough which results in production of a thick salty tasting mucous and a post nasal drip which makes my throat sore. When I first had theese coughing episodes I was working as a Nurse and that's when the Doctor dignoised Lupus after further testing the above diagnosis came up Can anyone give me some insight on the coughing spells. The rheumatologist always ask my about my flare up, which leaves me puzzled. As a Nurse I've never taken care of anyone who said anything about a "flare" Please help me decide what symptoms the Doctor is fishing for

Nov 15, 2015 11:44 AM

My research on my Dxs , say I should have problems with being dry? I'm the opposite

Nov 15, 2015 2:23 PM

Newfibrogirl, this sounds like typical Lyrica side effects (increased appetite, dizziness, sleepiness). Are you taking it for Fibromyalgia? The only sound indications are neuropathic pain and anxiety disorder. But it's often given in a "trial and error" approach for any form of chronic pain. Side effects are usually strong. Most patients don't tolerate it well. I never give it myself except for the indications mentioned before. Ask your doctor about his experiences with lyrica and set yourself a time limit for how long you want to try it. Keep tracking your pain on the Diary and try to find out works other than drugs (exercise, relaxation, distraction, certain foods). A pedometer can help you with graded exercise so you don't overdo it. Feel free to ask a question with your specific info.

Nov 15, 2015 2:28 PM

Thanks Dr Marc. I would love to hesr a Dr view on this topic but I and imnsure a few of us are already struggling financially so I can not pay for an answer if I pay for a medical answer it will be with my own Dr. It would be nice if your medical advice was given at no charge but I do understand you guys have bills too. If I have to pay for your advice please don't respond to my posting. With much respect thanks. Newfibrogirl..

Nov 15, 2015 3:08 PM

That's alright, my patients are in similar situations. Keep a positive expectation, the mind is powerful too.

Nov 15, 2015 9:23 PM

Sisterstarr2, I just saw my ENT on Friday due to a sore throat, hoarseness, and mucous cough. She dx post nasal drainage, & thrush (from asthma inhalers). She prescribed a medicine for the yeast and told me to use Mucinex DM to thin the mucous. I have Sjogrens and my nose, mouth and throat stay dry, so I was baffled I had sinus mucous. I hope you can get relief soon! πŸ™πŸŒΌ

Nov 15, 2015 10:50 PM

I had trouble with Lyrica, even though I have nerve pain, it caused increased swelling, turned me into a zombie, and made the pain worse so it felt addictive every time it wore off, until I realized I had less pain at night with further between doses

Nov 16, 2015 7:33 AM

I feel that way as far as the feeling zoned out thankfully I don't swell but I've only been on it for a short time. I do notice I use less pain meds when during the day .

Dec 06, 2015 5:34 AM

Thank you Flappyslady81 for responding to my post, I had to get antibiotic treatment , which cleared up the coloring of the mucous but I still cough up some clear thick mucous daily. MD said it was a nasal drip condition that I'm not gonna get ride of , so I have to use a nasal spay , which has its side effects. It seems I just can't win but it's a relief to know there are people out there that understand my discomforts. My family looks at my like I'm a psycho I'm always telling them to look up my illness so they will have some insight to what I'm felling
The always say you don't look sick

Dec 07, 2015 8:15 PM

Sisterstarr2, I actually was keeping sinus infections (infx) in 2005-2006. They finally did an MRI and I had a deviated septum that was preventing draining. I had surgery and the recuperation for the first 36-48 hours was awful pain, but once the packing came out I've been so much better and rarely get infx. I have yearly allergies so it's something i deal with year round.πŸ™πŸŒΌ

Dec 07, 2015 10:46 PM

Flappy, just a thought from me, I have "chronic sinusitis" after every year ending up needing some treatment from urgent care to deal with breathing problems, usually solely caused by sinus issues. Kinda sucks, because it means runny nose, wet and sensitive or crusty eyes, dehydration, dry throat, etc.

I'm suspecting Sjogrens, but hey, maybe we just happen to have a string of identical dx, but if it is genetic, then the same MTHFR mutations might not just be a coincidence?

Also, right now my family is fighting a flare, from stress, and possibly illness too. It majorly sucks because confluence is Thursday, and my memory is dead but I need to know my pitch. Hey, our game looks pretty cool, actually, and dress rehearsal is tomorrow, and my group has a new friend in it which is nice.

Dec 08, 2015 10:44 AM

Ferretbandit, I don't know if it does or not. It would be interesting to find out. πŸ™πŸŒΌ

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