Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Not sure what to do now

Feb 20, 2018 12:42 PM

I’m 21 and just finally got diagnosed with fibromyalgia. I’ve been searching for years about since I was 10 for answers as to why I was so tired and so sensitive to pain and touch. I’ve been through about 5 different specialists from cardiologist to endocrinologist with no answer. I had pretty much broke down because I’d always get a call saying your labs are fine and every time I because more and more sure I was crazy. Up until about a month ago I’d finally decided I’m just crazy, I’m not feeling physical pain I just have sever depression and anxiety and that’s why i feel like I’m hurting. I finally got sent to a rheumatologist and for the first time I’ve got some answers and it’s such a relief but now I honestly don’t know what to do. My rheumatologist kind of gave me some guidance but not much. I feel like I have this huge life Change ahead of me but I don’t even know where to start. Heck I can’t even half think straight because I feel so foggy so how am I supposed to figure this out on my own.

Feb 20, 2018 1:03 PM

Are you able to access a social worker through your rheumatology clinic or hospital? A social worker can help you to plan a schedule that will be easier on your body, help you access financial support, and connect you to resources for emotional support such as counselling or support groups.

Feb 20, 2018 1:13 PM

I have no clue my rheumatologist pretty much told me she doesn’t just treat fibromyalgia it has to be along with a autoimmune for her to treat so I’m even more lost

Feb 20, 2018 5:10 PM

I would suggest you try to find another rheumatologist or pain specialist.

Feb 20, 2018 5:10 PM

Rheumatologists are trained to treat both musculoskeletal conditions and autoimmune conditions.

Feb 20, 2018 8:13 PM

I know so I’m not sure where to turn too? Can my family doctor help

Ready to start relieving your pain?

Join Community