As I sit here, watching my husband and daughter drive away to go have fun at our friends, I'm just crying my eyes out. I never get to go out and have fun and if I do I pay for it largely the next day. I just feel like I'm sitting on the sidelines and my daughter's life this is not what I pictured when I thought of being a mother. Getting fibromyalgia from giving birth to this beautiful absolutely perfect human being how could this happen why did it happen it's just so unfair.
Hi there. You are not alone in those thoughts. I have felt the exact same way while watching my kids, and now my grandson, grow. It is hard to sit by and watch things happen around you and not be able to join them. Please don't beat yourself up over it. It is a terrible thing that we have and I am sure both your husband and daughter know how much you love them and wish you could join them.
I think we all feel the same way most of the time. Just do the very best you can do. Depending on your daughters age she can see how you feel and how you get around and the lack there of. Children really are sponges they see and absorb all. Be as honest with her as possible based on her age. Tell her how precious she is to you and how much you love her. Find something you can do with her. Reading, coloring maybe making types if beading and be her biggest cheerleader at home. Make a big deal and try to display as much as you can. I still have a large box of things my child made me when sh was little (put dates on the back). You have to rotate realisticly how much you can put up at a time. Fell free to PM me if you ever want to talk. Try to not beat up on yourself she might think she did something wrong and that is NOT the case. There is nothing wrong with telling her mommy hurts bad today, so can you make me a beautiful picture to make me feel better and put it up somewhere special. I promise you are not alone. ☆I just tried to PM you and it looks like you are using Catch My Pain and that does not have the PM option. Go to the app store and load the sister program Pain Companion and you will be able to PM and see the same chats. The biggest difference is CMP is better for logging your pain but no option to PM. You can use both. I dropped CMP because I was getting more depressed logging pain daily. I do occasionally log to look for trends but I just add it in my note section on Pain Companion.