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NotFeelingSupport

Jan 19, 2016 5:50 PM

Sorry, but I've replied to many post, liked many replies. So what am I doing wrong? Only the administrators have replied. I'm thinking to stay away from the forums & just keep up with my pain. Hurt Newbury!!

Jan 19, 2016 6:10 PM

Tired of pain.. What type of support would u need? I'm sure that no one here us intentionally ignoring you. As u may have noticed we are an active gruop worldwide. I don't want to speak for anyone else but depending on what kind of day I'm having it can take me hours to read through just one post and several more hours to reply with any type clarity. I know sometimes it can take hours for a post to be seen and responded to. We hate to see anyone leave unless they are abusive and a discration. I'm sure your replys to other lost were very welcomed and helpful.

Jan 19, 2016 6:17 PM

Thank you newfibrogirl :)
I guess just when I post questions the only people who reply are the admin. I'd like a little feed back from the community too. Maybe Im feeling sorry for myself, idk. Thank you for replying! haha!! I'm sure I'll get over this 😊😊

Jan 19, 2016 6:20 PM

I understand being emotional . it's OK.. As u know chronic pain is an evil beast. And several of us have il family members and what not. So reply times take a while . just be patient. If I may ask what has the administration replied? I only get a few private messages here and there when I sent them a message. Your special if u get the adm to reply to your post.

Jan 19, 2016 6:29 PM

Well... When I first started posting I got a few replies. I'm sure Im not special πŸ˜‚πŸ˜‚
And yes I've been in exexcruciating pain for months. My TMJ has been bothering me for a while!! So guess I'm in that emotional stage! But thanks for picking up on it and writing! I appreciate it a lot!!!! πŸ‘πŸ‘Œ

Jan 19, 2016 6:32 PM

Also..I'm not sure if u have done this yet or not but your new to me as a member so try introducing yourself in a new topic. Tell us a bit about u. That may help with your replys too.

Jan 19, 2016 6:38 PM

Okay!! I did an introduction but I was in severe pain so didn't spend much time telling my story. So I think I'll try that!…… once my hand stops hurting! lol! Thanks again newfibrogirl! I appreciate your feedback very much!!

Jan 19, 2016 8:25 PM

Hello, TiredOfPain, I am so very sorry that you don't feel supported. Normally, when there are posts from "Newbies" I try to be the first or as close to first to get in there and welcome them. I am so sorry, fro my heart that you feel unsupported. I never want anyone here to feel that way. ALL of my peeps are important to me. This is a wonderful community family and we all support one another here with prayer, with a hand to hold or a shoulder to cry on. We give one another suggestions on what works for us so maybe trying it would help someone else get some relief. I am sorry from the bottom of my heart for missing your post. I have been sick since November and am dealing with pneumonia, a left ear infection, my chest hurts from coughing and I have just got the cold from hell on top of everything else so I've not been on as much and I will try harder not to miss anyone. You will find after being here that there is someone always around to reach out and help you when you are having a bad day and to celebrate with you when you have a good day or accomplish something you did t think you could do any longer. There are folks here for all different diagnosis but we all share the commonality of chronic, irretractable pain. There are never any judgements here. We all "get it". There is support, love, empathy, sympathy, compassion and understanding. If you don't thing you can get through somethings and it's 3 in the morning, post. Many of us (including myself) suffer from insomnia so there is almost always someone up. So, welcome to the family, again I apologize for not being here when you needed someone. I'm sending you lots of love, gentle {{{Hugs}}} and prayers that you decide to stay here and get to know us all. You will find that you are a welcomed member of our family here Best WishesπŸ’•πŸ™πŸ»πŸŒ»

Jan 19, 2016 8:48 PM

When I did my welcome post a few days ago only one person replied the first day and a few more the next. I had to be patient but now quite a few people responded :)

Jan 20, 2016 8:12 PM

Tiredofpain, I'm sorry but I'm just getting online, after 2 days away. I typically do this from time to time as one thing or another prevents me time or energy to get online. When I do it may take me all day, or longer to read and respond to everyone's posts. I rarely don't comment, especially if I'm familiar with the topic or the poster. I think I responded to a couple of your other posts tonight. I'm sorry you haven't felt supported. In what ways do you need support; advice about treatments, suggestions, a shoulder of support our maybe just a listening ear? I'm here to offer whatever I can. Please don't give up posting. Introduce yourself and your illnesses or nerds, so we know how to support you. Hugs & prayers! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 22, 2016 8:52 PM

Everyone I'm so sorry!! I must've had a bad emotional day. Please forgive me!!
Thank you for all your concern!!!

Jan 22, 2016 9:05 PM

I've had bad emotional days too! I get it! I hope you are feeling better supported now.

Jan 23, 2016 8:37 AM

TiredOfPain, there's no reason for you to be sorry. It's how you felt. You may have been having a bad day, there may have been a lull in community members being on at the time you posted. But never be sorry for expressing how you feel. Just know that you are one of us and we're here for you when you need support. {{{Hugs}}} πŸ’•πŸ™πŸ»πŸŒ»

Jan 23, 2016 12:31 PM

I'm sorry as well. I joined this group for support, but I haven't been too supportive myself. I'm only on here intermittently, maybe once a month or so? Everyone on here is very supportive and understanding no matter what the problem. I just have been trying to lean on people outside this group and use it mainly for questions. If you stick it out, this group is wonderful ☺.

Jan 23, 2016 1:12 PM

Serena, know that no matter what, you can always lean on us. We're here to help all of our pain family members. {{{Hugs}}} πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Jan 23, 2016 1:17 PM

Thanks so much Alwayz! My hearing for disability is the 9th next month and we bought a house across the street from my parents so we could help take care of them. The house needs a lot of work and just looking at it makes me tired! We have a lot of friends already volunteering to help and I feel really grateful and happy that we have such support, but I want to be a part of this process. I don't want to be sitting at my parents house telling everyone thanks from a lawn chair in pain, you know? Idk how much of this I will be able to tolerate. Just sitting in bed I'm in pain! 😒

Jan 23, 2016 1:50 PM

Serena, you do what you can and then take breaks accordingly. You don't have to watch from the sidelines but don't push yourself to the point of agony. It will only take you longer to recuperate and then it will be hard to do anything. I'll keep you in my prayers that all goes smoothly with your hearing and the move. Hang in there, we're all stronger than we think. {{{Hugs}}} πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Jan 23, 2016 8:56 PM

It's ok TiredofPain, we all have days like that. Hugs & prayers! πŸ™‚πŸ™πŸ’•

Jan 24, 2016 5:27 AM

Hey tired, I am sorry that I have not replied to you. I have been off for a few days. But I understand where you are coming from. You came here for some understanding and comments when maybe you were not getting that from people around you. Just be patient with us. We really look out for our own. I am sure it was an oversight. You said you were nobody special but you are special to our group. We try to make everyone feel special here. You are deserving of empathy and understanding just as the rest of us are and I am sure you will receive it here. We have a great group.

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