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Sep 19, 2015 10:04 PM

So finally my dr order a ct with contrast of my chest because I haven't been able to breathe normally and have chest pain and rib pain and the other night my boyfriend was pretty ready to take me to the hospital.

Results point to nothing. Asked for bloodwork but no response. This is all from my rheumatogist who said if I don't get better on the prescribed meds then to go talk with my pain care dr for another opinion. Tht doesn't seem like a dr who can diagnosing breathing problems and chest pain.

I will call my primary on Monday but she's terribly hard to get in and see

Any thoughts. Recs on type of dr or what might be going on?

Sep 19, 2015 10:13 PM

Do you have asthma? Last year I was having problems breathing. It took many months and tests to find out my asthma and allergy meds needed changing. Good luck. You're in my prayers! 🙏🌼

Sep 19, 2015 10:15 PM

Thus far all doc can assume is that it's a costrochondritis that isn't responding to meds

Sep 19, 2015 10:17 PM

I was tested for asthma when all of this started last year. Came back just fine. I'm wondering if I'm allergic to something in the air. But the debilitating Chest pains is where I get lost. Thanks for the thought. I could get retested I guess.

Sep 19, 2015 11:07 PM

MyDogMasksMyPain, if you have been to a cardiologist just to have a second opinion on the chest pain. I dealt with the same situation of occasional difficulty breathing and chest pain and tightness. Well, lungs were clear, heart (after EKG, Echocardiogram and chest X-rays), it was determined that they should do a CT Scan with contrast. Well, that was when they came up with the diagnosis of chostochondritis. When it flares up, it's a nightmare! I feel like my ribcage is in a vice and my chest hurts as does trying to breathe. If I touch the left side of my sternum, it is more than tender to the touch. Sometimes it will bother me for days at a time and other times it will come and go. I haven't really found any pattern to it. I hope that you can get the relief you need. It's a scary condition and I can sure understand why your boyfriend wanted to take you to the hospital. Take it easy and try not to stress because that makes it worse. Sometimes a muscle relaxant will help the symptoms subside. You're in my thoughts and prayers. Feel better. 🙏🏻🌻

Sep 20, 2015 9:20 AM

A second opinion can't hurt, but there two tests my lung doc does. One is a simple spirometer, you can buy one online and chart yourself for weeks. The other is a full pulmonary function test, which took 45-60 minutes, doing multiple things that exerted my lungs.

I forgot to mention, and it just dawned on me this morning, my pulmonologist office have gone into the areas of allergy treatments and sleep apnea. They started me on allergy shots in June'14, and I began feeling lousy following each shot in mid July. When I went for the second injx in Aug I had an attack while trying to talk with the doctor about how I felt sick & weaker after each injx. He stopped them but I still continued to give out of breath with any exercise or movement, which began in early July. Then I went to a true allergy & asthma specialist. He got so mad at the pulmonary doc, saying an AZ lab is contracting to pulmonologist to use their allergy treatments giving minimal training to staff. He looked at my test results and said 3 out of the 20 the pulmonologist said I was allergic to we're only sensitivities, and he walked through the test explaining each to me. He changed all the meds the pulmonologist had me on for allergies and asthma in December last year, and that's when I began to get better. I will now only use my pulmonologist for bronchitis, pneumonia, or the nodule in my lung. My allergy & asthma doc will be over those meds.

Another thing that was only diagnosed two months ago, by my cardiologist was the venous reflux in my calves. His techs did the US test saying I was fine. When the doc came in to review them I asked, if the test is fine what was the cause of the swelling, stinging and burning, plus the discoloration in my feet. He repeated the test and did it longer while squeezing harder, which showed the reflux. I'm now in compression stockings, and most of the symptoms have cleared up, plus I don't get as winded walking now.

Like me, you're could be a combination of things. It took me nearly a year to get it all dx, but I'm not even suffering the usual Fall hayfever. Good luck and you'll be in my prayers. 🙏🌼

Sep 20, 2015 9:29 AM

I second Costochondritis. That is the worst. I get it once or twice a year when the seasons change. It is inflammation of the cartridge attached to the sternum. I am sorry.

Sep 20, 2015 9:14 PM

Thanks all! Got my first workout in in what feels like forever. Nothing huge but it was something!

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