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Now wht?

Jan 22, 2017 2:18 PM

What happens when you just can't handle it anymore? When it hurts so much that you can't do anything? When you lie in bed all day and feel useless? And any minute of stress makes your pain so intense that you scream?

Jan 22, 2017 5:11 PM

Read, draw, sew or anything at all that will take you away from this if only for a few minutes. Force yourself to do it. I copy pictures out of books. People mainly. I'm rubbish at it but it's not for others to look at so it doesnt matter. I give myself 10 minutes and set a timer. This helps me to get stuck in straight away as I don't have much time. I let myself be completely immersed in it, clearing my mine if only for a few minutes. You need to think about something else apart from the consuming pain.

Jan 22, 2017 5:34 PM

What suze10 said try to distract yourself as much as possible....I colour adult colouring books, altho my 10 year old loves doing them as well and used a whole black ink cartridge photocopying loads of pages declaring that we're not allowed to colour the actual books anymore more because she loves them soo much!!!
We've also started making cards for people's birthdays....again with my daughter she's my little shadow and gets very anxious if she knows I'm not doing well with coping so I have to do stuff to not only distract me but to distract her as well....I think doing that is probably one of my saviours from wallowing too much.
Have some noise in the background whether it's the TV or music so your not in complete silence and try lots of different things that might distract yourself for even a couple of minutes. You don't need to try to do a whole hour of it, just start with a couple of minutes and if you can build it up till it takes you away for 10 minutes then have a break for an hour or so before doing it again.
If you don't try something then you could fall even deeper into a dark place you really don't want to go.
If you want to chat just message...I can't promise I'd make a lot of sense all the time between my normal forgetfulness and now a days the fogginess sometimes I don't make a lot of sense but it'd give you a laugh at the nonsense and autocorrect that ces out lol πŸ˜‚

Jan 22, 2017 7:14 PM

I do my best to get up and move (sometimes it just does not happen). Most of the time if I just take a shower or long Epsom salt bath (at least 5 Cups) 9 times out of 10 it makes me feel human again. Distraction helps get lost in a movie. I think it is pretty safe to say most of us have been exactly where you are. Anxiety and depression go hand in hand with chronic pain issues. If you need to talk you are welcome to pm me too.

Jan 23, 2017 3:54 AM

DLWolf, I distract myself as best I can, music, a mindless tv show, dancing (yes dancing), meditate or sometimes just have a good old fashioned cry😒 However, you have this wonderful group of people here (my peeps) who are always here to help.. First and foremost is my BFF. She makes my life a happy place and I couldn't love her more if I tried. Hang in there. I know it's hard when you're in pain. Especially when it get very bad. Sending healing vibes, well wishes for a good day

Jan 23, 2017 6:53 AM

This is my latest distraction finished, now I have to decide on what to do next

Jan 23, 2017 6:58 AM

That's neat Sezzy. Well done.

Jan 23, 2017 6:58 AM

That's a beautiful piece Sezzy!! You do nice workπŸ’•

Jan 23, 2017 8:26 PM

Distraction is also my best medicine. I discovered beading before Christmas, I haven't looked back sine. LOL I aso enjoy many other crafts as well, but I'm stuck in beading mode right now. :-) Reading, drawing, crocheting, cross stitch, sewing, writing, playing with my cats, there's not much I won't try. LOL I do miss hiking though.

Pain meds haven't helped me nearly as much as distraction has. I hope you find something that helps you.

Jan 25, 2017 4:58 PM

DLWolf, it's hard being where you are. I've been there more than I care to remember. Once it was because my pain meds (cymbalta) was causing more pain. Check the side effects of your meds if you have any doubts.

During the day I try to stay distracted, like everyone else. Only I can't do the crafts anymore due to finger joints & hands cramping. I read, watch TV, use tablet apps like this, Pinterest & games, ride a recumbent bike (exercise started at 5 min in 2015, only up to 20 min now), stretches, deep breathing relaxation, etc. Pacing activities with rest is very important or I end up overdoing it. And most days I do well enough. I'm never pain free, but mostly manageable. My worst pain is at night when I'm trying to sleep. It's too quiet and sharing the bed with my hubby I'm self conscious of waking or disturbing him, so I can't get up and read or watch TV. I can't go to the living area or the dogs bark and want out of their crates (no my hubby won't allow the dogs in bed, and loose, the unsupervised = TROUBLE...Lol). Because it's so quiet and I can't distract my mind, every signal of pain in my body screams "I HURT"! I just try to lay still and relax, after taking muscle relaxers or anxiety or pain med. Sometimes it helps and sometimes not. Last night was a "not.". Trying to stay positive helps, but even that is impossible 24-7-365. Sending you gentle hugs love & prayers you find ways to decrease your pain and improve your quality of life soon! πŸ™‚πŸ’•πŸ™πŸŒΈ

Jan 25, 2017 5:00 PM

Oh I forgot, the dogs are a big distraction; watching them interact playing, walking in the yard or sitting & watching them play, seeing to their needs.

Jan 25, 2017 9:30 PM

Flappys, you mention your fingers and hands cramping, do your fingers bend in directions they aren't suppose to? Mine bend backwards way further then they should. If yours do too look into silver ring splints. I couldn't afford to buy them so bought some wire and a ring mandrel and made some. I didn't even realize how much my hands hurt until they didn't.

Jan 26, 2017 9:17 AM

Scaryann, I don't think they bend backwards, other than my thumbs. But the joints are thickening and swell with squishy fluid, and some are cocking sideways. I'll look into the splint though. Thanks!

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