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On being nice through the pain

Dec 04, 2016 8:16 AM

Wow! My mood swings caused by on again off again pain make me not want to be around anyone including my amazing husband. When I hurt immensely, I hate everyone. Not on purpose. I'm actually a fairly nic and happy person. But, I have turned into someone who wants to be alone rather than bark at every one. How have you dealt with this issue?

Dec 04, 2016 8:52 AM

hi ... eeading your post reminded me of myself... things came to a head this weekend with a row and this meant we had no choice but to clear the air... im no good at talking thru my pain so have agreed to try out using text ( we have three set sentences that give him the message of my pain levels) and he's agreed to not try and "fix" my pain for me, just let me curl on sofa if i need it or be on my own if i need it

Dec 04, 2016 9:59 AM

Yes I understand this and unfortunately those closest to me are the ones who take the brunt of my moodiness.
My kids are amazing and now know when the pain gets too much for me.....they tell me to take my meds (when I'm really bad my 10 year old daughter even goes to get them for me) and go to bed for a bit or tell me to put my lidocaine plaster on to numb some of the pain.
Dealing with pain every minute of every day is hard enough but when the pain increases it makes it very hard to deal with other people especially when you know they don't suffer the pain you have and I'm glad they don't, I wouldn't wish it for my loved ones to understand either.
Finding this app has been a lifesaver for me because unfortunately everyone here understands living with pain. No one judges each other and we talk openly about things from pain to everyday chores to advice on different meds, alternative therapies and learning to stop pushing yourself and accept your limitations and to forgive yourself when things become too hard and to remind you to spend time on yourself.

Dec 04, 2016 1:04 PM

When I am in a lot of pain I'm not good to try to talk to. I live by myself but talk to friends regularly. I'm afraid I bite their heads off at times. I talk about fibro a lot on FB. My sister told me to stop because she hurts too. Now she has been dx with fibro after being told it wasn't. That it was some minor thing. I hope you get some relief. (((gentle hugs)))

Dec 04, 2016 9:19 PM

Thanks for adding to this thread. Sometimes I feel like people don't believe me either. I know that is just the way all of this works, but it makes me not want to watch them judging to see if I'm really in pain. As I mentioned I could almost be pain free one moment to begging for meds the next. I do appreciate this community. Big time love going out to all of you!

Dec 04, 2016 9:56 PM

I have awful paingry moments. And it just makes it worse when u have stop and explain to the healthy why you feel the way u do. Finally I'm starting to get to a point where my family kniws if I get quite or have a far away look it means to just leave me alone. But they still make me feel guilty for some how messing up there day or something. Honestly it seems that my dad is the only one who seems to know how I feel. Or maybe we are so much a like that he knows it's best to just stay out of my way. He is the same way especially when he was fighting his cancer. We kind of had to tag team my mom to give each other a break from her over bearing kind of love and care.

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