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one dx down more to go

Jan 21, 2016 11:04 PM

Finally got dx for fibro, and carpal tunnel. Have to do nerve test to see how bad it is. I asked rheumatologist to refer me to different neurologist. I just saw one on the 6th, after waiting 4 months to get in to see him. He scrambles my brain when I try to talk to him, tried to show him my print outs of my pain entries. He just kind of glanced at them and said to his trainee "see this kind of pain is in explainable " The only thing he said that I understood was maybe an underlying infection, talk to pcp about 30 day supply of strong antibiotics. He ordered MRI on cervical spine. They set my next app for April, said if something showed up on MRI, they would squeeze me in earlier.

I had made appt with pcp, asked for them to get my info from neurologist and from MRI. Can't get anything from neuro said 2-4 weeks. I called Mon before my MRI we'd to let them know my sister had recently been dx with MS. She wanted me to also have this checked. Still haven't got call back week and half later.

I do have 3 more degenerated discs, 2 spurs and stenosis in cervical spine as well as the lumbar. The mri also showed protrusions in the thoracic spine and they recommend MRI on that area as well. I guess that neuro doesn't see anything important to get me in any sooner then April.

My whole body it's in complete agony, except my head. I'm tired all the time, I work every day. If I didn't I would sleep all day. I know I should be exercising more but it seems really difficult to do so when my body hurts so bad. My hands are so bad I can't open bottled drinks.

Sorry to be so long winded. I'm just very frustrated right now.

Jan 22, 2016 9:52 AM

Rockysbaby, I'm glad you at least got some answers through your dx. That doctor sounds like the one I went to. I wasn't cut open bleeding or having a seizure in his presence so my complaints weren't worthy of his time! I hope your PCP will get the report so you can know before April, and your rheumy doc gets you a better neurologist.

Exercise has been beneficial to me, walking a treadmill & gentle stretches. The stretches reapply help my fibro muscle pain & knots. I started slow and short time limits walking the treadmill, first 5 minutes, then 10, 15 & now I'm at 20 minutes. It never fails that my body screams at me the first 5 minutes, but once I'm past that point it's like my body limbered up and it's easier to achieve my set time. On days I don't feel good I either reduce to 10-15 min or skip, but I never skip more than 2 days. Even sick with my head cold I made sure to get exercise every few days. Just try doing something gentle at first, and if you can't do it 2 days in a row don't beat yourself up. It took me six months to get a routine when I first started. Many others on here voices they feel better with a little exercises. Slow & steady, 🐒 that's the key!

You'll be in my thoughts and prayers as you wait to be seen and heard your results. Hugs!!! πŸ™‚πŸ™πŸŒΌπŸ’•

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