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One thing leads to another & another & another 🎠

Dec 04, 2019 4:20 PM

I saw my gastroenterologist a few weeks back, after seeing my urologist. I was referred for pelvic floor therapy, again (last was 3+ yr ago). For those unfamiliar with my history, ever since my pelvic mass was removed in 2010 (during a very complicated 5 in 1 surgeries procedure), I've been left with various pelvic floor dysfunction issues: bladder & bowel incontinence & other symptoms (OAB, IC, etc), pain in the pelvis, buttocks, thighs & lower back/sacrum.

During the initial evaluation the OT nurse was going over my extensively long history from when my first Pelvic Floor Dysfunction (PFD) symptoms started up to now, and upon learning multiple new symptoms I'm suffering from she gave me some eye opening information. For instance, she told me that even though the spine MRI didn't show specific pinched nerves, disc herniation, fractures, etc, (after a slip & fall last year) my symptoms in the pelvic floor region (& other) could still be caused indirectly from the spine, by various muscles: Multifidi muscle & Obturator Interus muscle. Specifically, the Multifidi muscle connects at the top of the spine all the way down to the tailbone at many points along the spine. She stated that my inability to pull my left foot up to my right knee (for dressing shoes & socks), or lift my left leg out to the side or backwards, as well as walking with a very pronounced limp now can all be part of a vicious cycle between the spine, hip, & knee problems. She thinks it all may be affected by this specific muscle indirectly, among other muscles within the pelvic & lower back regions. During my therapy she will be working on these and several other muscles, to loosen them because the leg rotation muscles are extremely tight & I'm not even able to walk a normal step. And she also said my connective tissue disease is a participant in all this. 😳 Feeling a bit of overload here & just need this merry-go-round 🎠 to stop. Oh well, as long as it doesn't make me barf I'm good...a little nutty but good! πŸ€ͺ

And to share a laugh...I walked into an office this morning with my open fingertip gloves on because it's been cold here (I live in middle GA, and it's making me want to move South, like TropicalπŸ₯Ά; my Sjogrens makes me less able to tolerate cold or excessive heat, especially in my joints). Anyway, this little old man looked at me and asked, "Did you get a discount on your gloves?" I looked at him with a "huh?"πŸ€” then he pointed to my gloves πŸ‘‰πŸ§€ and said, "The fingertips are missing." I laughed and explained about my Sjogrens & cold intolerance, but having a need to have my fingertips available I purchase crafters gloves with open fingertips. He then gave me the "huh?" πŸ€” look about Sjogrens, and even after trying to explain I could tell he was lost on it. But hey, it was a funny moment!πŸ˜„πŸ˜‰

Hugs love & prayers for everyone to have a good remaining week...it's hump πŸͺ day after all!πŸ™‚πŸ’žβ€πŸ™πŸŒ·

Dec 05, 2019 9:49 AM

Hate to add this, but pelvic floor disfuntion is also a symptom of Tarlov Cysts, especially if you have fallen on your fanny. Sojurens is co-morbid with Tarlovs.

Dec 07, 2019 8:53 AM

Wow, I'll have to try & remember to ask my doctor's about that when I see them. Thanks!

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