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Operation isn't an option

Jul 15, 2014 3:08 PM

I was told about three years ago that my spine wasn't going to be operated on, by the orthopaedic consultant. Last year my back became much worse, and I was referred to a neurosurgeon, he wanted another MRI done which showed degeneration on multiple levels, the worst being L2/3 then L4/5. I had another epidural which did nothing, went back to tell him the result and he said that an operation was out of the question, due to damage on multiple levels, and he didn't have a place where to start, as when I had the discography, the results were inconclusive. So he referred me for pain management by the pain clinic. Has anyone else been refused an op and has had to go down the pain clinic route..?

Jul 15, 2014 3:50 PM

I'm at the point that you are now. although, I had surgery last year on L4/5 for a ruptured disc, but I'm still in exactly the same amount of pain. I've been under two different pain clinics, facet joint injections and epidurals haven't worked so I'm now at the point of figuring out what now.
pain clinics are helpful, just give them a chance to try.

Jul 15, 2014 10:21 PM

I just had surgery yesterday, not sure who most of you are talking to, I have had 3. surgery's. I gues you just need a good surgent, I am in Hartford hospital, and all is great with my doctors, they see the problem and at go after it as if it were an enemy to be delt with, so try traveling to a Mayo clinic. or Hartford to see someone...

Jul 16, 2014 6:56 PM

I am in th UK, so travelling to the Mayo isn't an option. I went to a pain clinic before which helped, but then I only had one chronic pain to treat, now in have 3 or 4 chronic pains to look at. I have arthritis in my neck and stenosis at C6, original pain that is semi under control caused by DVT in my calf, I had a stroke in 2011 and that has left me with constant pain in my right arm and leg and then my lower back which is inoperable. I see pain Dr on the 24th, so not long to wait, see what he has to say..

Jul 23, 2014 10:14 PM

you really needed to be on top of any medical problem that may scare you. see your doctor and explain what exactly what the problem is. yes I have had 3 surgery's, the fitsrt ones cause was unknown, but the minute I had felt pain I went ASAP to see my doctor, the second was because of a fall that damaged the 1rst surgery, all were 34&5 lumbar. now the 3rd was l5 s1 because I fell through a floor. " I truly am cursed" but anyways, if you wait or just tell your doctor you hurt "here" he can only do so much because of the laws and requirements with insurance company's, for example when the doctor walks in the room and asks, how are you and you say " o just fine" well that is what he must right down on his computer. and the insurance company sees that your not in any reall danger or pain. they take what you say as if that's how you feel. so only tell your doctor the facts of your pain and where it is and how much it hurts.
so take every little problem you may have in a medical sense seriously, and tell your doctor exactly what you are feeling and keep a diary or love one into the room with you to help explain your symptoms. the faster you jump on the first pinch in your leg for example is when you should ask for a MRI or an expert to be referred to you. miss work if you have to, get fired if you have to, do what ever you have to do to keep all appointments. because ignoring and waiting is only going to cripple you and keep you socially ignored followed by depresion. remember tell the doctor exactly what and how you feel. like I said before, when he/she walks in the room and asks how are you, tell them nothing but what pain or problem your having. with the way obomacare is now, this is true when speaking with a doctor! good luck, and see other doctors if one can't help you, and if the doctor only gives you pain medicine and says no other needs of surgery or theropy is needed, turn down the medicine and seek out another doctor.

Jul 23, 2014 10:24 PM

just asked my doctor by email, he says in London the best hospital for spinal cord injury, is London Spinal Cord Injury Centre, it's there you have to go to it, it's not going to find you. good luck,
if you want to get better, then get better by doing what ever it takes to get better.

Jul 24, 2014 3:23 AM

Surgery isn't always the answer!
I had one Dr say no way, another two agree it was best solution. Then after three different specialist consultations, and worsening symptoms, so I submitted to the specialist advice and underwent one of the worst experiences of my life.
My pain is worse, I medicate, and will for the rest of my life to manage pain that has only deteriorated with the surgery and I was recently informed it appears they may have fused the wrong level.
I wish I had never had it done!
A pain clinic program, of which I have since attended, being available prior to my surgery would have been amazing and so much more informative and helpful.
Please, before you go under any knife consult and research widely.
The specialist may be refusing surgery, hoping that a pain clinic might eliminate the need for an invasive painful and irreversible procedure.

Jul 24, 2014 10:23 PM

well everybody is different, and the injury that each person has is different, some may not need to have surgery and some need it. well I needed it.

Jul 25, 2014 12:53 PM

I'm glad it has worked for you :)

Aug 02, 2014 4:25 AM

I got denied for surgery after my discogram, too much widespread damage for a surgical intervention to do any good. thus the referral to the pain clinic which would be great if my bloody insurance would cover it. since they don't and I can't afford out if pocket (350$/visit!) I'm dealing with the various specialists and my gp, which they do cover. I don't know about y'all but the discogram was horrible for me. super agonizingly painful at every step, and this was with a doc that I had for my steroid injections and everything so I trust that he wasn't just a crap tester ya know?

I hope every day that science will advance to give me a new cns and pns (well, sans my brain.) heck I'd be very happy to be a cyborg at this point. then I wouldn't have as much fuss about nerves that don't work and discs that tear anymore...

Aug 02, 2014 9:11 PM

this just does not sound right. find another doctor and get as many opoins as possible. and pain clinic is what... see a doctor. look around and be sure to explain your pain. if the MRI says you have a disc problem then it is a problem that surgery can fix. it sounds like insurance is the real problem.

Aug 03, 2014 6:25 AM

I've had so many specialists and doctors to get second and even third opinions at this point that I am forced to admit that since they are all saying the same thing it's true. this is with two different insurance companies and spending a while as self-paid too. the issue is that there are 5 discs that are equally bad and if I did the surgery I'd be trading one problem for another as fusing that much if my spine would take away a lot of mobility and there is a huge chance of rejection if I did the disc replacement on that many discs. I agree though that a lot of people with a couple if messed up discs could be helped by surgery but can't because most insurance companies will only pay for 2 discs worth of surgery. and even I can't afford to pay out if pocket for the rest - it would cost as much as my freaking house. so few options available with this kind of thing leaving a lot of us to just deal with the pain as best we can

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