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Jan 30, 2016 5:57 AM

Hi I'm new to this site so any help will be gratefully received. I have osteoarthritis and just been told I have fibro. I really don't know much about fibro and never been tested so not sure how my dr knows this. Can you help explain?

Jan 30, 2016 9:17 AM

Shirlwain1960, welcome to our community family. I'm really glad that you found our forum. There are many of us who have been diagnosed with fibro but not sure by your description of your doctor is just putting you in a box or if you really do have it. There are several trigger points on the body that will become sensitive to touch. These will be evaluated by the doctor on examination. Also, you would need to have blood work to rule out RA or Lupus or other autoimmune issues. It's also a good idea to be seen by a neurologist, a rheumatologist, perhaps an orthopedist, etc. there is much that goes into the diagnosis of fibro and it can sometimes take years. What were your beginning symptoms? How long have you had pain? Were you in an accident or did you just begin having pain? Know that there is much information here in the community and we are all willing to share our experiences and answer questions. Know that you are never alone and this is a safe place to release any fears or worried and vent. There is no judgement here. We care deeply for one another and I have formed many very strong friendships here. We all have different diagnosis but we all suffer chronic pain. I've learned so much from my peeps. We pray for one another, offer a hand to hold, an ear to listen and we pray for one another and lift each other up. We see each other through rough days and we celebrate with one another for small improvements or accomplishments. No matter how small, it's huge for all of us and we acknowledge it!! We understand that dread and anxiety that can come with pain. Nobody is going to tell you that you to "just do it and you'll be fine." We know that's not how all this works. I hope that I have offered you some insight and been a bit helpful. Most of all I want to welcome you to our family and send you gentle {{{Hugs}}} and prayers that you find the support and information you need to get a proper diagnosis. 💕🙏🏻🌻

Jan 30, 2016 8:44 PM

Welcome to our community family Shirlwain1960! I posted a web link for the American Fibromyalgia Foundation. You can go there and find out some info.

I can't explain fibro any better than AlwayZ did. I'm actually in a fibro flare right now, along with a sjogrens flare. That means my muscles ache & cramp, I'm easily exhausted, my tender points are more tender than normal & more. When I'm flaring rest is important. There are suggestions I want to say but I'm really struggling with fibro fog right now too. Maybe others will fill in the blanks with their suggestions, like my hubby does. Lol! I oppose you will be able to use suggestions to help you figure out what method works best to help you cope, and get answers you need. Hugs, love, & prayers! 🙂🙏💕🌼

Feb 01, 2016 1:29 PM

Hi thank you for your reply. I've been suffering pain from about 4 years old. My dr Just got me to stand up placed his hands on my back near my shoulders and have pain there too. I have osteoarthritis and RA. Some of my symptoms are chronic pain, muscle burning, weakness of limbs but feel heavy like lead, muscle twitching , numbness in legs and arms and so very tired all the time.

Feb 01, 2016 4:19 PM

Most likely drs usually a rheumatologist uses a base number of at least 12/14 tender points.. So when u were standing and he was asscesing your shoulders and and body..he was possibly looking for sign aof pain in your body and joints if they were at least the number mentioned above then he could possibly say u have fibromayalgia along with your other Symptoms bit that is just how it happened with me. But welcome to the group. Your gonna love it.

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