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OT evaluation

Apr 02, 2016 7:12 AM

So, I had my occupational therapy eval on Wednesday.

The therapist was really nice and thorough and clearly saw why I was referred there from physical therapy. The bad thing is, even she's not optimistic about the exercises she gave me and said I probably need to be sent to a hand specialist.

I can tell they really want to help but it seems like it's out of their range of expertise. My physical therapist was a good one too, so, it's not a case of being handed off to people that don't want to help me. Now that I'm showing physical problems, I'm being taken seriously and they want to treat it.

A few things noted at the eval:

-wrist flexion extends to 100 degrees

-left MCP joint pops out of place with little pressure, right with a little more pressure

-instability is starting in right wrist

-all fingers hyperextend, which prompted the therapist to give me a ring splint for my left thumb


And that's all I can think of atm. Pretty sure there was more but my brain refuses to work right now lol.

Therapist told me she's heard of stuff like my stuff before but hasn't actually dealt with it. I was kind of the specimen of the day, and it was funny watching her and her partner's face lol. Really got a kick out of that.

So, yeah. Basically, my body is dumb. I have genetic testing coming up on May 4th, so that might officially confirm whether I have EDS or not. Still not sure what's going to be done for my wrist but we'll see, I guess?

For now, I'm kinda stuck wearing a wrist brace (prescribed by neuroscience center doctor) to keep it stabilized. It doesn't help the pain but it does keep it from going stupid when I hold things lol.

OKAY I think that's it. Sorry for such a long post.

Apr 02, 2016 7:17 AM

Oh. I forgot to mention that my left arm atrophied and the hand is a few centimeters smaller than my right. Therapist told me it's common for people to have two different sized hands but in my case it's too drastic a difference.

Apr 02, 2016 10:21 AM

Oh I know how it feels being the specimen of the day lol! I always try to make the best of it and teach people as much as I can about my condition so that it will help others with it in the future.

I hope you can find someone that has dealt with your condition before though because you do need help yourself too!

Apr 02, 2016 3:10 PM

The hand therapy they have today is freaking awesome!!! You want a special therapy for your hands. They go through quite extensive education to become specialized. So I hope by sharing this small tibit of information that it might soothe your mind.love and blessings, Terri.

Apr 02, 2016 4:42 PM

Lynxbun, I hope this OT will be able to get you in with a hand specialist. Hugs & prayers! 🙂💕🙏🌼

Apr 03, 2016 8:09 AM

Lynxbun, my wrist started dislocating around the beginning of December, by the end of December it was dislocating 20+ times a day! I finally got a doctor to order custom wrist splints and got them made in January. I wore the one for the right hand 24/7 until just last week, now I am trying to wear it only at night because it gets in my way. The left hand I only wear at night. While my wrist still dislocates about 10 times a day, it's not nearly as painful as it was in January. I still can't lift anything heavier than a coffee cup without the splint on though.

My OT didn't even know what oval 8 splints were when I asked if I could try them. It turns out that there is only one hand specialist OT in my area, and the OT I was seeing wasn't her. Then I found out that I had already seen the one that is the hand specialist, she is the one that made the Spica splint that I can't wear because she made it wrong. Now I'm not sure I even want to see her to try the ring splints.

Good luck!

Apr 03, 2016 8:11 AM

I forgot to say that PT had me working the muscles in my arm to help with the hands. Mostly isometric exercises to keep injuries down.

Apr 03, 2016 8:18 AM

I just realized I said it was the MCP joint popping out. Well, that does too, but I meant to say CMC lol.


@scaryann

Oi. What a headache. And thanks, haha.

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