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Other issues causing fibro connection

Feb 10, 2016 9:05 AM

So I know i have posted on thyroid and fibro before but I am starting to believe even more. A Web thyroid group I belong to has been looking at this connection for some time. I am hypothyoidism with Hashimoto's. I finally jumped in and told my doctor that while my thyroid is in the new low test area for normal that each person differs where they feel better and I would like to be lower in the normal range. This is after dumping synthroid thank God and don't get me started there. So i am on armour now and noticed lots of positive improvements. The brain fog has lifted some. Let me say that I was getting so bad I couldn't finish a sentence. Anyway we increased the dosage a little more and again I am feeling brain fog improvement. On pain I am back in the steady 6/7 range and after being down and out at my worst 9/10 with no relief I have to say i feel way better. Not my old self or where I should be for my age by any means but when living with cronic pain any improvement is good. Other improvements are less anxiety although when I have it it seems worse, decrease in puffiness and while I am still not sleeping worth a crap it does seem like the sleep I do get is much better.

Feb 10, 2016 9:33 AM

I am on synthroid also and for a while my thyroid was not closely monitored. Mostly due to me not going to appointments. But now I'm getting testing done again. So I guess my question is.. What do I need to be looking for. I've never been on a ything else other then synthroid. This has been over ten years now. What questions do I need to ask my Dr to see if synthroid nis the best for me

Feb 10, 2016 10:02 AM

I am on synthroid because 13 years ago they removed the left side because of a mass and then 3 years ago they removed the rest in which I had cancer in 2 spots.

Feb 11, 2016 4:00 AM

All doctors push synthroid period. They will tell you it is the best, effective and so on but that is not always the case at all. I took synthroid for years but still felt like crap. The move to armour has been great. At first my body didn't know what to do with all the T3 so I had to take half a pill when I woke and half before lunch. Anyway the new range for thyroid tsh was introduced but a lot of doctors and labs still use the old higher numbers. There is so much information that you have to know. Thank God I am a research fanatic. I am putting a couple links below. Bottom line look at the list of hypothyoidism symptoms if you are still suffering from them your medication is not working.

Feb 11, 2016 6:15 AM

Shammagren I don't have a thyroid at all. But when they test my levels they say they are normal. I have been on synthroid 112mcg for 2 1/2 years. I even went a month without taking it and didn't feel no different. A lot of the symptoms I have but I don't know if me not having a thyroid is the reason.

Feb 11, 2016 6:24 AM

Shammagren thank you for the links, because I have never seen an Encrinologist and my first appt is in a couple of weeks. We have a lot to discuss I see from reading the links.

Feb 11, 2016 3:52 PM

Pained lady don't get your hopes up with an endocrinologist they typically look for bigger issues than hypothyoidism. The one I seen just told me I was fine. Later I seen a naturopath who looked at all my past results and said i was never good on my medication and that I had hashimotos, a nodule and my numbers were off

Feb 11, 2016 9:26 PM

Thank you for the links. I'd love to learn more about a connection between fibro a s hypothyroidism. I'm on Amour too- 3 docs and 2 freaking years to get it!! My T3 is high now and my TSH & T4 barely normal....but brain fog and energy MUCH MUCH better!! Less hair falling out, less leg swelling...sooooo many good things once I started Amour!! Now, if I could lose the prednisone & hypothyroid weight!!

Feb 12, 2016 4:29 PM

Gardener I have had the same great on armour with slight sexual interest increase. I studied the numbers and found mine could be lower in the normal with this latest increase I have lost a couple pounds. Will see if it last 6 weeks or I am going to ask for another increase. For what I eat there is no reason I shouldn't be losing the weight.

Feb 12, 2016 4:35 PM

I'm with you on the weight loss. I made changes, I'm walking more but I have a slow steady gain. I'm now 40lb over weight!! How can I lose that when exercise is hard due to pain?? Sooo frustrated! Docs tell you to lose weight but don't really help beyond saying "eat less". I don't eat badly already!!! So what else can I do?

Feb 12, 2016 4:53 PM

40 pounds I am over 100. I just threw away all my skinny clothes they were depressing. Most weight loss is diet. I am only able to walk a half mile a few times a week vs. My old 5 plus miles which didn't help lose weight anyway. I use a program to track food on my phone and try to stay under 1400 calories a day. Do you know your thyroid numbers? Like I told my doctor as long as I am in the "range" can we play around and see where I feel best. I was at the higher end of the middle 1.67 tsh and norm is .3 to 3 I am shooting for a 1 because years ago my naturopath said for me I would probably do better at that number. I am hoping she is right because I am ready to be back to being half the woman I am now.

Feb 13, 2016 5:54 AM

Thanks Shammagren for the link

Feb 13, 2016 7:58 AM

Thank you Shammagren! I have been suffering from fatigue, brain fog, aches and pains for over 15yrs. I have taken all kinds of blood tests, which have been normal. I have thought that I was just lazy and I need to step up my game. I was in the Marines and I always tried to stay active, but after my second child- which during the c-section I lost a lot of blood and almost crashed, all I wanted to do was sleep-so I just figured my body just needs to get back in shape, plus I'm getting older, but reading your info....I believe something is wrong with my thyroid. My mom has problems with hers, and a majority of my family have to have naps to power through the day, and always low on the vitamin B12. I have to find a doctor to listen to me, because feeling this way is not living. Thanks so much!

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