I don't know why I do things that I know is going to put me in the bed for the next 2-3 days. I have asked my husband and my daughters fiancé to move some of my iris es to a new flower bed. So today I done it and am already paying for it. Has anyone had the muscles in their hand going into the thumb swell and have a deep dull aching in it. I planted the seedlings I started then I planted a am yrilis, I dug up the irises and replanted 15 of them. I was taking my shower my legs started trembling I thought they were going to give out on me in the shower. My shoulders, hands, legs and my feet the bottoms are burning my back is hurting. I guess I will never learn lol
I over did it two days in a row. Had to get my vehicle fixed and can't afford to pay to get it done. So didn't even bother asking anyone for help cause no one ever has time to help me. Between last night and today I'm paying for it severely. Can't hardly move and in more pain then I've been in for awhile. It's a constant 8-9 pain level. My hand is swollen and sore like you described yours. My tramadol is not even taking the edge off. Maybe someday I'll learn my limits. Though I'm having to move soon I'm sure I'll be over doing it again soon. Til then here's hoping for some relief for us all.
We are all guilty. My thoughts are get it done on the rare day that your pain is acceptable. Then I am in bed crying for 2-3 days. It sucks my body feels like it is very old. Cannot hardly wait actually to be old. Hope everyone has a nice Easter.
We all over do it.i hv my mom*4now), who has ahlzheimers, is always has been ornery n self asorbed, critical. She won't use cane or walker n grabs me, makes messes everywhere n won't clean. Hoping my sister gets her soon as sis n mom r closer n soon is worked in geriatrics, has way more patience than me tho she's got ms Fm too.
For a long time I was over doing it. Sometimes out of anger to show my pain who's stronger. But as you mentioned, I paid the price afterwards. Later on I learned from my psychologist who is specialized on chronic pain that over doing it is a very bad thing. He said your brain will learn that those activities that you are doing cause pain. Then at some point, when you start those activities you will feel pain much sooner because your brain tries to protect you from harm. A vicious circle... The way to get out of this vicious circle is a method called pacing: Do an activity and stop before it hurts a lot or even before it starts hurting (if you are lucky). This way your brain will learn that this activity is not harmful. However, it takes a long time to "unlearn" the pain. It takes a long time to learn to play piano. Try to forget how to play piano... that takes a long time. The "pain memory" works like that as well. It can get very frustrating.
I think we all overdo it on days we feel relatively well, then know we will pay for it later but when things need to be done, then we do it when we feel like it. My heart goes out to all of us overdoers. LOL
I'm 53, supposed to be in the prime of life... Ha! I occasionally overdo it still, but over the past year I've learned not to it I can help it. Since I can't take strong pain relievers it's best for me to not overdo it. I've learned how to read my body's signals that it's head enough. Now if i could just learn to nap instead of fighting it (like a toddler who doesnt want a nap...lol), maybe I'd still being so tired. But napping makes me feel old 🙏🌼
Ah overdoing it. I believe every one of us guilty of that. My mother, who has had ME since I was 14, said to me earlier today she's gone into self destruct mode. That's how we describe it. It's like, we know what we're doing is a bad idea and that not stopping is going to end up awfully, but you can't seem to stop. We've come to the conclusion it's because we know it'll make us worse and force us to stop, but it's like the only way we're allowed to? I decided the house was looking awful today and have been dropping hints at my young adult offspring. They just don't get it. So I swept through our living room and hall (it's all laminate, so much easier than carpet, carpet on stairs and upstairs though). Before I was close to completing this task, my left hip had gone into a blazing inferno of pain. It was a 9 on the Richter scale. Did I stop? Nope. Because I know that no one else will finish the job. I'm now hurting madly yet both my 'children' want to practice driving in the dark tonight. That means me and my car involved, especially since they don't yet have their provisional licenses. I have a feeling the only thing that stops our self destruction is paralysis or death. Since my mum is well in her sixties it's certainly looks that way! P.
You are right PJB. We know ourselves that it will only cause more pain later on but sometimes that's the only opportunity we have to do it. I always think I need to make the most of my 'good' days but maybe it's me thinking about it the wrong way. Should we rest more on good days to reserve energy for bad ones? But then we'd get nothing done or be able to go anywhere or do anything. If people, including family and friends, can't see the pain - they seem to think it doesn't exist! Very hard to deal with.
I'm guilty of overdoing it as well. Like PJB I was tired of seeing the floor not being swept or dishes in the sink. So I decided to get up and sweep. I live with a pain level of 5-6 even on Butrans patch and Norco for breakthrough pain for Fibro.
I started sweeping the front and dining rooms and then my arms and shoulders felt like they were on fire. Lightening bolts of pain shooting from my shoulder to my fingers. By the time I finished the two bedrooms, bath and hallway, my hips we're on fire, my legs felt like rubber, my back was giving out.
I finally made it to my kitchenette, and when I bent over to pick up the dirt I almost lost my balance from all the pain. I couldn't stand anymore, my feet were on fire. I could barely stand up straight. It had taken me almost an hour to sweep the main floor of my house. In the past I could get it done and mopped in less than an hour.
I was in so much pain I had to grab several ice packs out of my freezer, find a comfortable position on my sofa and place the ice packs on the most painful areas. I was toast for two days. Couldn't sleep at night, insomnia was bad I tossed and turned all night till 6,7, or 8 am. This was/is not healthy. I have minor children I still need to care for.
I'm finally giving in and trying fi d out how I can get a caregiver. I'm on disability and my youngest son is autistic. This is not what I pictured my life would be when I was growing up or even 2-3 years ago. I thought I'd be energetic. I'm not. I'm a couch potato. 😓
Dalyaya, I have asked for help now too. I'm on the waiting list to be assessed. Yet again I overdid it yesterday. Went for a walk with the kids in the late afternoon on the nearest coastline to us. Managed to drive the wrong way to get there and had to correct my mistake. Damn fibro fog! We walked down the hill towards the coast, which we never reached, as my legs turned to silly putty and were in the point of collapse. We sat on the grass watching the calm sea and the summer sun for a while. Basically until my arse couldn't cope with the hard ground any more, lol. It was beautiful there and I'm glad I did it, but getting up the hill was a slow business. The few other walkers couldn't believe someone was doing it on crutches but I pointed out it made it easier. Today of course is not a good day. It's around 2.30pm and I've barely moved. Everything hurts, even my breathing. But I won't call myself lazy or a couch potato. It's a very destructive way of thinking of ourselves. It's important to realise that, just because our best isn't the same as it was prior to the onset of this condition, doesn't mean it's any less valid or any less of an achievement.
We have to live within our means, physically, mentally as well as financially. It doesn't matter in the end whether others (including family and friends) believe it is our best or not. They either have to learn to understand and accept that we are limited by this condition, or choose to step away. We didn't choose to become this way and we sure as hell don't deserve to be judged by those that cannot hope to fully understand just how much we suffer. The psychological effects alone are devastating. How many of us become permanently anxious about how others will think of us, about how they will judge us, and how many become reclusive, depressed and unable to interact because we don't want to see the way others look at us, whether in sympathy or in negative judgement? I'm not saying I've managed this in any way! Quite the opposite. If it weren't for my children I doubt I'd venture beyond these walls more than I absolutely have to. I won't tell you not to feel sad since that would be insincere; I feel sad a lot, never good enough and often ashamed of my lifestyle. Just remember we, here, all suffer together and virtual hugs are plentiful. No one judges and this is our little haven where we can speak our minds (or rattle on as I often do), rant or just read and know we're not alone. Hugs all round, P.
PJB, you expressed what I feel, and likely many others, beautifully! I tried my best to walk the beach when we went to Jacksonville, because it was something my hubby and I enjoyed so much. But I just couldn't go any further after fighting to walk through the loose same and keep my balance. I would have taken my walker but my hubby said it wouldn't work. I was so devastated going back to the room. And i could see the disappointment on my hubby's face, but he wouldn't go without me. I so very much get it! 🙏🌼
I very much over did it today. Apparently I suck at implementing this pacing thing. On the plus side things got done. Garden is weeded (first time this year), first harvest from the garden done, lawn mowed, dishes done, food from garden washed and dried, supper prepped and bread in the bread maker. Now I hurt a lot and just want to sleep.
Gotobef, you did a lot. We all tend to. The downside is you'll be tired tonight & tomorrow. But the upside is you can rest because you got that much done. I hope you have a restful sleep and lots more garden veggies to eat for your effort! 🙏🌼
Melissa1981, it's good that you can push like that but remember that if you don't take care of yourself then you won't be able to take care of anyone else. Keep that zest for life and pushing yourself (with limits) and I can tell by your post, you're not going to let this take over your life. I pray that you are ALWAYS able to push it and enjoy a full and fruitful life. Best wishes to you and your family. 💕🙏🏻🌻
Just after entering my pain dairy, this is why exactly I'm in pain. Though not so severe after my medication, it hurts! Worse is not over. I lost two staff to annual leave, one stuff for her partners medical, and the probationary staff was let go as it wasn't right for him.
I'm running a family business so if my staffs are unable to fill some positions, obviously I have to fill it myself. We are doing our best being four short staffed out of 25+, looking for temp and good workers are hard.
I had to do some labour work, driving the forklift on top of my management work. Extremely in pain and going through my as needed meds really quick. Sigh.....when there is no help at hand, we do it all ourselves even though we know we will regret. So stressed and so in pain. I hope others had a better day.
Melissa1981 I understand you pushing yourself until you can't go anymore, I am guilty of doing the same thing. But I am trying not to do that any more as my husband and myself are having to help raise our granddaughter. She is 3 months old, and we are 59 and 60. I am trying to learn how to pace myself in everything I have to do.
Thanks flappy, I get my massages minimum once a week. Doing as much as I can. When the business is your own, you tend to put every ounce of energy you have left. Day in, day out, I work 7 days a week. I just can't seem to let go of work somehow. Especially now when I have to do an additional 2 staffs workload. With our pain, two persons job seems like 8 persons job for us.
I don't know if anyone is like me. I know I overdo it. I will get a good day. But then I will use that day to make a dinner for my family. They use to love when I would cook for them. So I love to do this for them when I have a good day. I know it will cause me pain but I want them to remember some part of the old me. Do you think that is vain? I hope not. I just don't want them to forget my heart. The things that I loved doing for them. I don't get to do anything for them any more. They are just asking me to move over so they can finish doing something for me because I am in the way. I hate that. It is like they forget who I am and who I was. I want them to recall that I am their father, the same person I had been many years many years ago. When I cook dinner for them, I am not trying to prove something to them. I am showing my love for them by fixing them something that was theri favorite they missed. Then I go and rest and take pain pills and lay down but my heart feels good.
Alwaysinpain- Thank you! My rheumatologist tells me all the time not to push myself, but its so hard not to enjoy lifes moments. Today I called into work because my flare is the worst I have had. I am in the worst pain ever. Im hoping its over by tomorrow. Thank you for your kind words.
by the way, when I say cooking dinner, it usually takes a couple of hours. I am not saying like a half an hour thing. It usually takes me three hours. I usually make them a big dinner of their favorite things. I do other things like straighten up and make a lunch for them. I can make dinner some nights. But to make them the things they like that I use to make when I was well takes me a few hours. They were more elaborate. But they miss them. It is mostly the prep. They could help me but I like spoiling them when I do it, like a gift.
Well until three weeks ago I was a over do re I would just go for broke weather I had it or not and even tho I'm a male I enjoyed cooking and would work for hours to make meals for my family on holidays I would cook two 24 op turkeys a ham and a prime rib roast potatoe salad and all the fixings I would be in the kitten for almost 12 hours with no help but I can't handle it any more so now I'm training my niece now I think she will. Be our new care giver sad but true
I used to love cooking meals for my family. But now I struggle to stand for half an hour to cook. I am lucky, because my middle daughter of three loves to cook too. She'll even wake my husband and I with breakfast all done now it's the school holiday. I struggle to do anything. I am registered disabled and, although my husband is my carer, hb e had been really ill and in hospital. He's recuperating but gets tired, wiped out completely, very quickly.