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Overwhelmed- not dealing well

Aug 02, 2015 6:33 PM

I am so tired of all of this pain and not feeling well. It seems I have tried every type of dr over the last 10 years and so many different treatments (none that have lasted relief). Not sure what to do anymore. I know many of you will say to hang in there but it seems that is all I have been doing for the last 10 years. Hoping something helps only to be disappointed. What type of dr is helping you all? Is there something that allows you to feel ok? I am not asking for good health only manageable

Aug 02, 2015 7:05 PM

Honestly, currently flaring and all, I just so want to take all the meds I have on hand and swallow it all but I know I can't. Waking up to my young kids sometimes make the pain bearable and also helps me to strive harder. Good luck mate.

Aug 02, 2015 8:50 PM

I dont take any meds. Most of them im allergic to or dont help or even make things worse. I have been dealing with this for over six years. What helps me to cope sometimes is going to a chiropractor who understands me . I hurt more for about a day or two then i start getting some relief for a bit. She wants me to come every week but cant afford. I have tried massage and that helps also a tens unit.

Aug 03, 2015 12:23 PM

Ianfair, Like Tina01, I have a very long list of med allergies and adverse reactions, so I function on Tylenol Arthritis or Aleve every day. And sometimes I have to use Tramadol at bedtime, or a muscle relaxer. I started with various issues & symptoms 7+ years ago but I worked until 2010. I had to leave work for surgery, but then spirals downward with many diagnoses contributing to my pain. The last year I worked it took everything I had to get through my work day, it was a very physically and mentally challenging job. Since 2014 I've had sjogrens, hypothyroidism, dementia & tremors added to the fibro and other pain dx. I've also found out I don't metabolize and absorb B Vitamins of benzodiazepine meds. My psych doc increased my antidepressant until the serotonin levels were balanced; low serotonin affects the pain receptors. Low B can cause fatigue and pain and memory issues. I'm also deficient in iron and D vitamins. I've been using L-Methylfolate, D3, Iron and multivitamin supplements, as well as additional magnesium (suggestions from others here). I also try to stay stress free or use relaxation techniques to calm down. I'm trying to get 10-20 minutes of gentle exercise each day, even if it's just gentle stretches. Although I'm not pain free, it's more manageable than this time last year. I've also had epidural steroid injections all down my spine; they decreased my pain levels from 7-8 to a 4-5 range average. It's not one thing but many things I have done that's made my daily pain bearable. It's likely the same for many others to. 🙏🌼

Aug 03, 2015 1:34 PM

Im not sure what your illness is so there's a chance this might not work for you, but i cant stress enough to everyone how much what food I put in my body affects my level of pain.
Anything that is known to inflame the body i stay away from (any kind of added sugar, dairy, processed foods and limited red meat are my main ones)
With your pain so high right now this maybe be difficult or impossible for you to follow because you pretty much have to have two suppers a day and i know how hard it is to cook when in pain. I swear its worth the attempt.
When i first went off dairy i didnt really notice that it helped because it was so gradual. Then after a month we went out of town and after i ate it again my pain was significantly worse and it was truly an eye opener. Over the years ive been able to add more things to the list because i personally have an intolerance or allergy to some things like sesame, nuts , and eggs.
It can be very hard for me to follow at times because im an emotional eater so when im in pain i want to eat sugar and it just makes me feel worse its a vicious cycle.
I would recommend just trying to stick to fruits, veggies, fish and chicken for a while and keep a food diary. Treat it almost like your supposed to do when finding a food allergy; by taking it down to the basics then gradually adding things back in and see what hurts you.

Pinterest has been a life saver for me when it comes to recipes otherwise I would have been screwed! Lol
And changing my eating has not only made my RA better but also helped me with other things like clear skin and my circulation. I have had raynauds since i was 16 and my toes are always were blueish purple but not anymore and i haven't had an attack in my fingers for years! I dont get headaches anymore unless drug induced; it has for real been a game changer.

Aug 03, 2015 5:27 PM

Thats really interesting. Im going to take that one onboard

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