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Aug 04, 2015 8:58 AM

I am curious as to if anyone has any experience with the Botox injections for joint and muscle pain? I am very young to have daily, chronic pain and I have been suggested to do the "Botox".. Also knowns as a neurotransmitter blocker ... Any insight is useful. Thank you

Aug 04, 2015 9:03 AM

I am very against medication and especially toxins going into my body, however I am desperate for relief.

Sincerely ,
Uncertain

Aug 04, 2015 9:20 AM

Hello BB95. I have never even heard of the use of Botox for pain relief. Sounds a little counter productive?
I always hated medication. I watched my mother dosed up to the nines on various meds when I was in my teens. The idea that I would need as many definitely didn't appeal! Sadly, due to my various health problems, I have no choice but to take medication three times daily for the rest of my life. Three every morning, two at lunch and seven at night. They are the necessary meds that mean I can function (to some extent) like a human being. Without some of them, I would spend ever increasingly prolonged periods in hospital.
I guess, in the end, if you are in pain and it is preventing you from living your life as well as you can, then meds really aren't the end of the world. Do whatever makes you feel less or no pain. When it comes to quality of life, a slightly shortened one (maybe not, depending on the meds) is better than living in abject agony, unable to lift your head because of the pain. Always question any procedure or med a medical practitioner prescribes. Knowledge is power after all and it's better to understand your treatment than be surprised later on.
Hope someone might have some knowledge for you regarding the Botox.
P.

Aug 04, 2015 9:43 AM

Thank you !
I am curious, as to what you are taking for your pain ? What do you have to say about it?
Knowledge is power, right :) I agree 100%

Aug 04, 2015 9:43 AM

One of my friends gets botox injections in her neck for pain. She said it takes a while for them to get dosing and placement right but she says it helps her. I think she gets it done every 2 months but I'm not sure.

Personally it isn't something I would do. I seem to have reactions to everything and putting poison in my neck with the purpose of temporarily 'killing' the nerve endings so that maybe I would get some relief doesn't appeal to me.

It was the only treatment offered to me by the neurologist. And the pain management clinic recommended it too but Ithink they were grasping at straws and hoping that if they gave me a treatment I would either go away or they get more money from me.

What I found made the biggest difference was finding food intolerances. I went from major headaches every day and wanting to kill myself to mostly functional by changing what I ate. I found that the only person to look at my body as a whole was the naturopath and she found several relatively minor digestive issues that have contributed to my overall pain.

Aug 04, 2015 12:02 PM

Well, the first one that didn't cause side effects would be Nortriptyline, which I still take at 50mg daily. This also helps for sleeping. I'm on slow release Tramadol 100mg twice daily.
I take Cetirizine to counteract the side effect (itching) from the Tramadol.

Those are my main pain controllers and they have varying degrees of success. Since I wake up every day with severe lower back pain, my left elbow in agony and numb/tingling fingers, I suspect there may be an alteration to be made when I next see the GP.
My other medications are directly for other issues and not pain relief, although my Baclofen does help my body to relax and sleep better, it wasn't prescribed for that purpose. Same applies to the Carbocisteine. That helps lessen the chest pain, but that's due to the phlegm in my lungs, not fibro.
P.

Aug 04, 2015 3:29 PM

CuriosityBB95, I won't take botox though several docs have offered it for various uses. I have numerous allergies and adverse reactions, so I'm not willing to take the risk. If you like read about it at http://www.cdc.gov/nczved/divisions/dfbmd/diseases/botulism/

My
sister gets them for her migraines. Her last migraine lasted 8 days, which to me says the botox isn't working that week for her. Good luck, and I'll keep you in my prayers that your decision will be what's best for you. 🙏🌼

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