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Aug 26, 2015 12:48 PM

What is the most effective pain relief

Aug 26, 2015 2:40 PM

I've heard people who have fibromyalia experience weight gain, has anyone experienced that and does anyone know why?

Aug 26, 2015 3:03 PM

Pain relief depends on your body. For me, DMSO does wonders, but some people get no effect.
I don't have Fibro, but I know that weight gain can happen from a lot of things. If you stop moving because it's painful, if your meds have weight side effects, stress, etc.

Aug 26, 2015 3:43 PM

It is difficult...I have inflammatory arthritis and I can't take anti - inflammatories which is ironic, other than obvious pain relief it is actually quite good to keep active as well...I have found from my physio that exercising is difficult but in the long term it helps my joints to stay more loose rather than being constantly stiff...which had a big impact impact the past...you just need to find light exercise that you can do regularly and see how you go as impactor has massively helped me :)

Aug 26, 2015 5:33 PM

Hi jillyanne, I have fibro and use a number of medications to help with the pain. I believe people find different meds that work for them but for me I've found Tramadol slow release tabs are good, although I suspect a little rise in strength would improve their effectiveness right now. I also use Nortriptyline to help the night pain and to help with sleep. Ironically I also have to take an antihistamine to prevent the itching side effect from Tramadol and have to avoid certain antibiotics as some interact with the Tramadol and give some unpleasant reactions as a result. Having gone through that I would recommend extreme care with some antibiotics if you're on the Tramadol.
As for the weight thing..,,well sadly I have put on weight, which I'm not happy about but not unexpected. Since my mobility has been greatly reduced by fibro, I can no longer manage the level of exercise I previously managed. To be fair I did do a lot of exercise prior to this! Now my exercise is managing a shower or getting dressed or doing a little housework (pffff). As a result of the greatly reduced exercise, I put on weight as it took a while longer to adjust the eating habits. To start with I lost weight, by losing muscle mass.
Do hope this is a little helpful to you.

Aug 26, 2015 5:47 PM

I find that some walking some each day is my only exercise now, weather permitting. Or How much pain I'm feeling for the day,I used to be able to use a stationery bike but it began hurt my buttock and leg pain more. And stretching is my only other pain relief too.

Aug 26, 2015 5:53 PM

Honestly the only exercise I get is to walk around too but my physio is Tai Chi which is literally just moving and stretching certain ways it's very light and I do have bad days where I can't do anything and it does cause pain to begin with but only because if I leave it too long my joints just stiffen...also I use codeine as pain relief but careful with that as it can be addictive and cause headaches it you use it too regularly and I also take amitriptyline to help me sleep and this works great I sleep right through, but the side effect of major drowsiness/drunken feeling can take a few weeks to wear off I hope you find something that works for you!

Aug 26, 2015 6:15 PM

I'm taking 20mg of amatriptline to help with sleep which it seems to work, I take ibrufen and paracetamol or cocodamal for pain but it don't work very well, I'm thinking of joining a yoga class and maybe go to my local swimming pool to see if that helps.

Aug 26, 2015 6:23 PM

@jillyanne I have to alternate between taking 10mg and 20mg of amitriptyline as I haven't quite gotten used to the side effects so sometimes I can't take the higher dose like if I need to get up early the next morning I can't take the higher dose and I would say if you can join a class then do as it improves your mood aswell when you do something but just be careful with yoga as there are different types so only do what you can do and swimming is great as you don't bear weight on your joints but it is very tiring just have to try things out to find what works :)

Aug 26, 2015 7:04 PM

Also this may or may not be helpful for some, but having an inflammatory condition it's immensely helpful for me...It differs but I use an ice pack on my sore areas to reduce inflammation and therefore pain for about 10mins for some a heat patch or hot water bottle works better, but heat can sometimes intensify the problem and I can't stand heat on my tender areas so it could be worth a try...a chiropractor suggested it to me and it can work wonders when I'm having a particularly bad flare up hope that's helpful too :)

Aug 27, 2015 9:55 AM

Doc keeps saying exercise, but I keep hurting myself when I do it....I honestly think gentle stretches is the best relief for pain. Obviously it has to be specific stretches that releases tension from the areas you are getting pain from.

Aug 30, 2015 7:57 PM

I have fibro and yes I've gained weight, 30+ lbs in 8 months. But besides fibro I also have been diagnosed with Sjogrens and Hypothyroidism, both require additional meds. I think my weight gain is a combination of less exercise ability and all the meds. 🙏🌼

Feb 04, 2016 11:59 AM

I haven't gained any weight from the fibro, in fact I've had the exact opposite happen.

My pain meds kill my appetite to the point where Hubs has to practically force me to eat the one time a day I do. Sounds like a dream, I know, but it's not really. I love food! Or I used to love it. Oh well, my diabetes is officially in remission from it at least.

My elliptical helps with pain if it's muscular in nature, but it feels like I'm dying if it's nerve pain. Nerve pain gets bed rest and my handy dandy heating pad. Nerve pain sucks.

Also thermacare wraps help if I have to go to work. I also smell perpetually like wintergreen candy canes from the bengay, bit it helps the best for me out of all the creams.

Oooh! And petting a puppy always helps! My hand will start to cramp up and I'll grab one of my dogs. It's a win-win for both of us. My jack-zhu is a bit of a cuddle whore, so he begs for cuddles 24/7.

Granted this is what works for me, it's different for everyone.

Feb 04, 2016 12:49 PM

I've lost weight with my CRPS. I had so much muscle now I'm all skin and bones!

Feb 04, 2016 1:49 PM

I also have CRPS, I have found no relief

Feb 04, 2016 7:37 PM

Tahoe, the only thing that has given me relief that's from doctors is my spinal cord stimulator that stimulates my legs. MMJ gives me the most relief though out of anything.

Feb 04, 2016 7:40 PM

I'm reluctant to do the spinal stimulator, I got crps from tennis elbow surgery, what if it were to spread. I haven't had the best of luck with surgeries. MMJ?

Feb 04, 2016 7:42 PM

Talk about pain relief meds from your doctor. Talk to him and ask what else you can do as you are still experiencing a lot of pain. My ai disease has not been officially diagnosed (however we are 90% certain it is Lupus of some sort and fibro). I got in a car accident 8 mos ago while I was in a bad flare to begin with. The flare still hasn't stopped since then. Therefore I'm currently on much higher meds than what I think others said. I take Morphine Sulfate Contin (MS Contin) (30 mg 3x/day) and Oxycodone (10 mg 6x/day). But that's what my Dr and I determined was best. I also use marijuana (with my doxtor's knowledge and consent) to help as well. I have my trusty heating pad for deep muscle pain and nerve pain. I use ice if I'm swollen. Sometimes I alternate ice and heat. You gotta just do what you can to make it better. Try the heating pad and the ice. Talk to the Dr. Determine what is best for your body. No 2 body's are the same and no 2 people feel the same pain. What is killing me might not bother you much and vice versa. So it's something you have to fins for you. I also enjoy walking, yoga, loving on my pets (dogs, cats, bird, bunny) and certainly my kids.

As far as weight goes I was very over weight when my Dr and I finally got this mess of a body I have figured out. I'm 5'1 and was 252 lbs. I intentionally did some things to loose weight and lost 78 lbs last year and I am still going strong. I know it sounds trendy or whatever but I used garcinia cambogia. And no not the expensive stuff online. Walmart carries it for $12.00 for a month's supply. I started with just taking the garcinia cambogia every day. No exercise or food modifications at all. At the time I was too painful. As the weight started coming off the pain got better on my joints. That was a happy day! Then I added eating healthier and finally I started going to the gym. I go every day that I can but I don't always do a ton. Some days all I can do is ride the bike or walk on the treadmill. But hey that's something and it's good for mental and emotional health too.

You could be gaining weight for a number of reasons. Now you have to decide what you want to do with it. Do you want to work and fix it or ignore it for now? I will tell you it has been 1,000,000% worth it! And its helping my pain and health.

Good Luck and God Bless! I hope this helps. If anyone wants more info on the garcinia cambogia please give me a shout.

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