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Pain all over legs and hands - no diagnosis

Jan 25, 2019 3:43 PM

Hey guys, I am new here. I am writing here hoping that somebody has been in my shoes and might help me.

Since October last year i have started to get pain in my arms and legs. The pain was usually at an intensity of 6/7 out of ten, rarely going up.
The pain was not in a specific area, but was moving between my body, mostly arms and legs.
In the last month, the pain has been concentrated on my lower part of my feet and hands, mostly the palms, the wrists, the ankles and calfs.

I have been to a lot of doctors and performed tests for artritis, myositis, mri, imagistics, auto immune diseases and many others but have not found anything concluddent. The pain is persistent and is always there, is hard to be in pain every day.

If any of you has been having the same symptoms or knows what else can i do, please help.

Jan 25, 2019 4:00 PM

I want to mention that my pain is similar to the one described in fibromyalgia, but i do not have any pain at the specific points when pressing

Jan 25, 2019 4:36 PM

Welcome to the community andra. I'm sorry you have chronic pain. I don't have experience specifically with the same thing as you. Does heat help? Take a warm bath with 1-2 cups of Epsom salt. Use heating pad or electric blanket. TENS unit helps some people. Hope this helps.

Jan 26, 2019 5:14 AM

Hi Andra, this does sound like fibromyalgia pain. I have recently read, I cannot remember where sorry that the pressure points are not a very reliable test for Fibromyalgia anymore. I have finally been diagnosis with Chronic Fatigue Syndrome and Fibromyalgia and none of the Drs that I saw used the pressure point method. I hope you get some answers and the correct treatment for you very soon. Chronic pain is awful at the best of times but it's worse if you don't know what the cause is. Wishing you all the best.

Jan 26, 2019 9:05 AM

Welcome to the community Andra! I'm sorry to hear what you are going through. I'm sorry you're suffering from an unknown problem. That is very hard not knowing what's causing it. But no matter how long it takes to get a diagnosis, don't give up seeking the answer(s). I started with achy pain in my arms legs and back, then it became all over muscular pain with knots and tender points and neuropathy in my arms and legs. It took over 2 years for the doctor to officially diagnose Fibromyalgia. My pain continued to worse as did symptoms of joint pain, and that was diagnosed later from a fluke rash inside my mouth as Sjogrens. They did an oral cheek biopsy and it was worse than the worst toothache I've ever had! But I'm glad they did it because if been having symptoms of dry eyes/nose/mouth for years, and my autoimmune blood work kept coming back elevated without pointing to anything directly.

If you haven't already, start keeping notes on your symptoms, what part of the body is affected, description of the pain (ache, throbbing, dull, sharp, tingling, etc) and provide it to your doctors. There could be some connection to low vitamin or other deficiencies going on too. Although they aren't usually the cause, they can make the symptoms worse. My D is super low, as is my B12 & folate, so I take supplements for those. Because my arthritis is spreading all over my body joints, my orthopedists suggested I try taking Cosamin ASU so I did for about 2 months. I really didn't think it was helping and came off. It didn't take long for me to start using it again; it does help. You can try Epson salt bath soaks or warm showers for stiffness too. I've found that my muscles stiffen up if I'm immobile for too long so I try to get up and move around at least every 30-45 minutes.

I hope some of these suggestions can help. Hugs love & prayers you will find out what's going on and find ways to get some relief soon! 🙂❤🙏🌼

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