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Pain all over

Aug 29, 2016 12:09 PM

Hello, I have fibromyalgia and I'm in a flare up so everything hurts. I only take ibuprofen and Robaxin. Working is hard but I push through and cannot sleep well even though I have a numbers bed. Anyone else have this illness

Aug 29, 2016 3:36 PM

I do. And i take the same things you do.
I found that changing what i eat has made a huge difference. Food intolerances and fibromyalgia go together. If you can find and eliminate the problem foods your general pain levels will decrease. It won't go away but it will be more managable. Sugar and processed foods seems to be very common intolerances in fibro. I can't have eggs and my mom can't do gluten.
Also try to keep moving. Exercise does help, it just takes a lot of experimentation to find what type of exercise you like and that will help you and where your tolerance level for exercise is. I recommend starting with stretching since fibro and myofacial pain syndrome are also linked. If you can get the muscles to relax that will also help general pain levels.

Aug 29, 2016 4:17 PM

Omg. I'll never be able to eat anything. I think my coffee and tea days are over as that is one thing I drink daily for the past month and a half. Wow, I never realized and now I'm going to keep track of everything. I knew beef was a trigger food of mine, but never thought of caffeine. Thanks for the advice, I'm going to make changes today. 👍😆

Aug 31, 2016 12:35 PM

Welcome to our community family Benasue! I also have fibromyalgia. I have a long list of med allergies so I'm limited on pain meds. On a daily basis I take Tylenol Arthritis (or X-strength). I was on ibuprofen until I was diagnosed (dx) with Barrett's Esophagus. They started me on gabapentin for neuropathies, but I'm only taking 200 mg/day due to higher doses sedating me. I have a muscle relaxer when needed for night cramps (RSL), and Tramadol for severe pain, which I use for flares.

Due to stomach surgery I was put on the sugar buster's diet for a month, but I've continued to reduce my sugar & starches intake because of other members discussing sugar reduction. I can definitely tell a difference in my pain levels. I've identified a lacrosse intolerance so I'm now using Lactaid for any milk needs. I don't eat pre processed foods and we are currently not eating out either. I try to eat lots of fresh fruits & veggies with small meat portions. I don't seem to have an issue with chocolate or caffeine, but I also limit my intake.

I haven't been able to work since 2010 due to multiple health issues. I struggled to get through my work days from 2007 forward, so I understand how hard it is for you. My last job was sitting and standing and walking throughout the day. I wore very comfortable shoes, say on a lumbar support cushion and back support, used ergonomic keyboard & mouse, and had a foot support. I would stretch during my breaks which seemed to help. And once I got home my feet went higher than my hips (edema swelling).

I started exercising again last year, walking slowly on a treadmill. I started at 5 minutes and now I'm at 15-20 minutes a day. If I don't feel like I can do it I take a break, but I try not to skip more than 2 days. I also do gentle stretches. I plan to do hand weights after I'm released from surgery recuperation. I need to tighten my flabby arms! Lol I feel better from exercising, and they've proven it's beneficial to fibro patients.

As for sleep, or lack of, it's part of fibro. I took Ambien for years and kept having to increase the dosage. I asked my doc to help me wean off because I was dependent on it to sleep, and I began having side effects. We used my antidepressant and melatonin to do so. Then he gave me a"better sleep" plan, which I posted on here somewhere (search sleep). I started practicing his suggestions and on avg I now manage to get 2-4 hours of sleep before I wake up to change positions due to pain. My nights are mostly broken sleep nights now, with only random insomnia. I hope you can read through posts to find suggestions that might be helpful to you. Hugs love & prayers as you find your coping methods! 🙂💕🙏🌸

Aug 31, 2016 1:43 PM

Wow, what I have found out is that I am positive for the MTHFR mutated gene which is linked to many of my health issues including fibromyalgia. I have multiple drug allergies so meds are trial and error. I have suffered from daily chronic migraines and intractable migraines for years with 2008-2016 and just now getting some relief with infusion therapy. I have done the gluten free diet, and know what triggers an attack, but it changes. I work but days are harder than others especially with flare ups. I'm still researching more and stress is a major factor for me and lack of sleep. Thanks for your help as it is hard to find people who understand.

Sep 02, 2016 6:39 PM

I also have the MTHFR gene defect, as does AlwayZ & Ferretbandit. I take Deplin form of folate, which my insurance stopped covering. Folate affects the brain chemicals that involve depression, insomnia, and many other body functions and illnesses. I've been on folate supplements 2.5 years and it helps.

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