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Pain all the time

Oct 06, 2015 6:32 AM

My GP diagnosed me with Vitamin D Defeciency back in April 2015. Since then most days I am in constant pain. Trying to do things is really hard.
I did suggest to my GP that maybe I had Fibromyalia but it fell on deaf ears.
How do you manage to do things when you're in pain?
I take Tramadol and Oramorph for the pain.

Oct 06, 2015 8:34 AM

Calia, I'm so sorry that you're not getting relief from your pain. I understand your frustration as it took me going into my rheumatologist office crying in pain before he finally got a team of doctors to check me out. I still have many days with pain everywhere, but at least now they are all working together to find answers. I have several medical conditions as many of us do. Today I hope we find out the next step. I basically have been loading up in pain meds to knock me out for rest, then I am in bed all day and all night with only getting up long enough to eat a bit or sit in a chair a bit. My muscles are so weak. I'm telling you all of this to let you know two things, that you're not alone, and to encourage you to do whatever you must to shake your doc into realizing you need help now! And if he won't help you, find another pcp, go to the emergency room, whatever you must to get help! I realized in all this mess that we must be our own advocate. I am going to pray that you get your doc onboard and for relief from your pain. God bless honey.

Oct 06, 2015 9:00 AM

Calia, welcome aboard!! I am sorry to hear of your daily pain. I know what it's like. In the last 22 years I have been seen by so many doctors, had 28 surgeries, and am in level 8 pain most of the time. It is extremely frustrating to be in this position. When I would go to a new doctor, I always brought pertinent medical records, written questions, a notepad and was always assertive, direct and honest with the doctor. If you are dismissed or not listened to, find another doctor. I know it doesn't make it better or easier. Doctors don't want to admit if they don't know something and some are even reluctant to accept that some of these diseases exist. (Sometimes I wonder myself.. LOL!!) hang in there. Know your body and your limits. You have to work around your pain when you can and in days you can't, you can't. Don't be to hard on yourself. I'm glad that you found us. For me, feeling better comes with Checking in on my zany crew and saying hey to newbies and seeing if I can help make someone else's day better. There are days I feel horrible and can't even do that. I hope you find the support and information you are seeking here. Know you can call on the group and vent, ask questions, cry, whatever and nobody will judge you. You're not alone and we sure do understand about pain and what it does to us. I wish you the best in finding a way to deal better with your pain and all that it brings. You're in my prayers and again, welcome. 🌻🙏🏻

Oct 06, 2015 9:04 PM

Yes I am here as well . I know what you are going through pain wise. Just keep trying and don't give up. Cause you just feel worse when you quit. Ok keep us posted

Oct 07, 2015 1:22 AM

Hello, i am sorry to hear, that your pain is so much, that's not possible to make the day. My story is nearly the same and on some days i'm realy going to be completely mad, because i don't know, what to do against the pain.
Well,don't give up! What about to take a nice temperatured shower or a bath? Sometimes i'll do and it helps a little bit. If i have the time, i'll take a sleep. My brain stops thinking and beautiful music helps to relax.

Oct 07, 2015 5:31 AM

Hi Calia,
I really feel for you and I can understand how frustrating it can be not knowing why you are experiencing so much pain.
I am in the same boat some doctors say it's fibro others say it's not .. I have had pain for 5 years now . I tried ignoring it for a while but now it's getting worse to the stage that I can only work 2 days a week and can barely walk or do any normal activities. So I strongly suggest to do whatever it takes to find out what it can be see as many doctors and specialist as you can, read up as much as you can and go to the doctors and get them to test you for certain things. I also suggest to see a Natropath if you haven't already and get them to help you with putting a diet plan together. Get you doctor to refer you to a rhemotologist as they can help diagnose you if you have fibro. At one point I felt massage helped take the edge of but now days I can't just do regular massage I am in too much pain. I know sometimes the pain is so much you want to give up believe me I think about it often but we can't .. We need to keep fighting to find out why or at least find ways to manage the pain.
Best of luck in your search and do let us know if you need anything else.

Oct 07, 2015 10:39 AM

I agree with what others are saying. It's taken me 22+ years to find a good doctor who listens and is thorough. It's very frustrating to see doctors that won't listen or diminish you. Just keep searching. I read reviews online about the doctor I've just started seeing. It helped me to make a decision about making an appointment with him. I'm sure glad I did. I am also vitamin D deficient and take 2,000IU daily. Not sure that it's doing anything for me or not. I truly hope you are able to get some much needed relief and answers soon. I'm here on days that I can manage. If you need to talk or anything I'm here too. Blessings ✌️❤️

Oct 08, 2015 3:20 PM

Thanks everyone, it's good to know that I can say how it is and people understand.
My fiancé and I are going to put pressure on my GP as it gets to fiancé when I get in so much pain. He feels helpless and just helps by giving me my pain meds.
I will update when I see my GP.

Oct 08, 2015 4:13 PM

I've been diagnosed with fb since 2009, and was in denial, until I fel really bad pain, hard to get up, is was like I had warm my muscle before walking, I have been treated by my pcp, but since my sytoms have gotten wrost, she referred me to specialists, can't wait to go, and i ask have complications with degenerated disc on my neck and lumbar. .all I can is pray, keep my head up, and on my real bad days, I stay in bed. So hang in there and do your own home work.

Oct 20, 2015 2:50 PM

Any holistic remedies you've tried and had results? Plus how much vitamin D should we be taking?

Oct 20, 2015 3:41 PM

I think the amount should be determined by your doctor. They started me out on 1,000IU now I'm up to 6,000 because still low.

Oct 21, 2015 7:54 PM

Calia, Have you tried taking magnesium? Someone on here mentioned it months ago to me and I researched it. It's used for nerve and circulatory health. I take one tablet each day and if I stay off several days I can tell it. 🙏🌼

Oct 29, 2015 12:15 PM

Apparently we need 6gr de Magnesium a day and it helps the arthritis

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