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pain and tiredness

Apr 30, 2015 12:04 PM

Hi. I'm new to this app. I've been experiencing pain in joints (fingers,shoulders,neck,back,hips,knees,actually pretty much all over some day). I'm tired constantly. Been back and forward to gp and have eventually been referred to consultant. Someone suggested fibromyalgia. Anyone know anything about that? 😀

Apr 30, 2015 4:25 PM

Mich1983, welcome to our community. Yes, I have fibro as well as osteoarthritis and recently dx (diagnosis) of sjogrens & hypothyroidism. Fibro causes muscle aches, pains and cramps. My sjogrens at present causes mouth, nose, throat & eyes dryness, with tiny bumps on my tongue. I've also had swelling glands that I wasnt able to connect until I researched sjogrens, but it also can cause body pain. My joints hurt from osteoarthritis and possibly the sjogrens. Fatigue & pain are caused by all of these.

Rest is my biggest ally with these, not overdoing it. When I say rest I mean inactivity rest. I take otc pain meds and rx pain meds when I hurt bad. Because of addiction in my family I use dx meds as little as possible and tolerate a lot of pain. I also use voltaren gel, clipped or microwaved rice socks (rice in tube socks, knotted). Many on here have fibro and many other issues. You can ask questions, complain, share joyful things, whatever. You don't have to feel guilty for hurting and talking about it. I hope you find this community as helpful and compassionate as I have. Without meaning to, family and friends can sometimes be cruel. If they don't suffer then how can they possibly understand? But this community understands. I'll keep you on my prayer list.

Apr 30, 2015 6:25 PM

I was diagnosed with Fibro and dealt with it for years until I started developing other symptoms and was eventually diagnosed with Lyme. Honestly they share so many similarities l can't say for sure whether or not I have Fibro. Not sure it really matters as long as we know about the Lyme which has very different treatment of course. The pain is pain and treated in similar ways. I would caution you on letting them just label it Fibro though unless they really have exhausted everything else. Fibro can be, not always it is real, but can be a catch all diagnosis they make when they can't come up with anything else.

Apr 30, 2015 8:31 PM

Hi there! I agree with limey. I do think fibro is an easy umbrella diagnosis many doctors used without exhausting all possible other illnesses. I started reading about Ehlers Danslo Syndrome ( long story as to why) and have come to the conclusion that EDS is probably what many fibro patients have. It is considered a rare disease but I think it's just rarely diagnosed instead of rare in incidence. It is usually diagnosed by a knowledgeable rheumatologist or any knowledgeable physician for the matter or a geneticist. I have asked most of my current doctors ( internists, neurosurgeon, rheumatologist, pain specialist etc... And none new much about it nor had the ability to diagnose it. It's crazy really. Check into it. Not that I wish for you to have it but it's fascinating as to how widespread in the body the symptoms of EDS are.

May 01, 2015 3:59 AM

Aww thanks so much for your comments folks. Had no idea there were so many other causes for similar symptoms. Glad to have someone to talk to receive this. Feel that I'm complaining all the time wit family.

May 04, 2015 10:06 PM

I think most of us know that feeling all too well. I know I do. It can be such a slippery slope worrying about "complaining" too much and then feeling like your on an island with I
No one to talk to or worse yet when we are told we are comai I g too much or too soft that sort of thing. You have plenty of ears and shoulders here.

May 04, 2015 11:31 PM

Welcome Mich1983 we are all in similar situations here. We can lean on each other here. If you need to let loose with ranting or need to talk to someone there is always someone here to listen. Everyone here is compassionate people who care for each other. I belive we have become a second one family linked together by all of our health problems and pain that we all share in. I am so thankful I found this site it has been a blessing to me. I have fibro, Syringomyelia, Syrinx, Osteoarthritis, among other health problems. Like Lymie and Sandi beach said don't let them pigeon hole your diagnosis. Will be praying for you.

May 10, 2015 3:21 PM

Thanks so much folks. X

May 10, 2015 4:32 PM

I was first thought to have Fibro, but my primary care doctor said it was just carpal tunnel.
Later, I had to stop taking ibuprofen and the pain was concentrated.
My neurologist said he thought it was CRPS, and referred me to the children's hospital.
I've done PT with CRPS as the diagnosis, but am still waiting to be officially diagnosed at the end of June.

May 11, 2015 10:33 PM

Ferretbandit, I hope that you get the answers you need so that you can be treated appropriately. I really would love to hear that you are able to have p/t, minimum of pain killers and that you will get better. Thinking of you and you're in my prayers

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