Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Pain in hands and feet

Sep 14, 2018 1:08 PM

Hi all! Iโ€™m a long time fibro sufferer, and my pain tends to be pretty present in my limbs and neck. Lately though, Iโ€™ve noticed the palms of my hands and the soles of my feet have been aching. Iโ€™ve never had extensive pain in these areas, I was just wondering if anyone else have had this, and if itโ€™s a fibro thing?

Sep 14, 2018 3:28 PM

Hi Sycamore,

I have fibromyalgia and have similar pain that you are describing. My feet also "spasm", similar to cramp but only in my toes and lasts for hours. When I ran it past my rheumatologist he said it was related to the fibromyalgia. But others may disagree. I use a foot spa when it's bad that helps.

I started getting different symptoms a few months ago, I blamed it on my fibromyalgia. In the end I was in hospital for a week with cauda equina - not related to fibromyalgia. As my Dr said at the time - don't relate everything to fibromyalgia get it checked, better safe than sorry.

Hope the pain is better today.

Take care

Love Hayley x

Sep 18, 2018 9:34 PM

Thank you so much for the wonderful reply. I think I may look into it! It is so easy to dismiss things as fibromyalgia.

Best wishes to you!!

Sep 19, 2018 3:30 AM

No worries, hope you're feeling better now! ๐ŸŒน

Gentle hugs ๐Ÿค—

Sep 21, 2018 9:12 AM

Sycamore, the only pain I've had in my feet & hands related to my fibromyalgia has been the tingling & burning neuropathy, though I've had OA all over my body many years. But last year I developed finger joint pain (random, not always the same) and several doctors believe my Sjogrens is starting to attack some of my joints, making the OA I've had for decades seem mild. They will through and ache out of nowhere, sometimes lasting only a few hours and others several days. They also feel swollen and occasionally cold (rather than warm like the OA). My palms never hurt, they just itch from my autoimmune (AI) issues, which I've developed 4 in 10 years.

I started noticing foot pain about 3-4 months ago. It's always in the bottom of my feet, the soles, more towards the center & heels, & less at the toes. It is not as noticeable except when I've been asleep or sitting too long. For instance, when I wake up at night and get out of bed I have immediate severe pain in my feet while trying to walk, but within 15 minutes the pain has calmed down to barely noticeable. It is not like when your hand or foot falls asleep...nothing like that (my docs asked). It can happen during the daytime after sitting an hour or so, and when I get up it's very similar yet not as severe pain. I've got 2 doctors who feel it could be my spine issues (DDD and OA from neck to tailbone) and possibly combined with my veinous reflux disease in my legs (circulation not adequate). Either way it's baffling, painful, and just another weird symptoms/medical issue I've come to accept along with all my other issues. I wear thigh high compression stockings all day while up, and have for a decade though I started with knee highs. My heart is completely healthy; my leg veins just don't pump the blood back up because up to the heart because of the reflux I have. I'm only 57 and wonder what it will be like in another 10 years.

I don't know if what I've described is helpful. And I'd never wish anything I have on anyone. But I've found that the more descriptive you can be with doctors, the easier and faster they can figure out the issues. Hopefully other's answers will help you figure it out. Hugs love & prayers you find out soon & get help to relieve the symptoms.

Sep 21, 2018 10:24 PM

Has anyone checked your vitamin D and potassium? I get terrible pain in my feet and fingers when either of the above are low. Also I have been CBD oil and it has completely worked for me even better than narcotics. I had huge doubts but now I am a believer. The CBD oil has also helped (completely resolved) bone, nerve and muscle pain. Typically just rub a small amount of oil on skin wherever I need it and pain is GONE in 20 minutes. Best part is it does not have a real stinky smell. Hope this helps you and that I did not ramble too much, lol.

Sep 22, 2018 10:06 AM

Wow LMB, I just got put on 50,000 IU of Vitamin D2, once weekly bc my bone fusions aren't healing. My PCP didn't seem concerned even though I have been D-deficient & osteopenic for 3 years. My endocrinologist ran extensive labs and said I'm extremely deficient, then ordered the RX D2.

Sep 22, 2018 8:04 PM

FlappysLady that is alot. Make sure you are careful and drink tons of water. I had kidney stones for a couple of years because of the RX of Vitamin D3 a doctor put me on. I was pissed when we figured out the cause, fortunately that was years ago.

Sep 23, 2018 7:51 AM

LMB, thanks for letting me know about that! I already drink lots of water, between 128-142 oz a day, due to my Sjogrens. I stay thirsty because of it. And if I don't drink at least the 128oz, my IBS-C gets really bad.

Ready to start relieving your pain?

Join Community