Hi. Does anyone get pain in both their hands and feet? I find that the pain wakes me up in the middle of the night with stiff/painful fingers and painful toes. During the day I find my toes burn (especially when I stop and sit down). Over the last week the soles of my feet have really hurt when walking (luckily the pain is much less when sitting and putting my feet up). It actually feels like I am walking on bones. I am presently charting the pain locations and levels to see if there is a pattern. Would love to hear if anyone else gets problems with just these areas.
I get a burning sensation in my hands, and they swell - plus my grip is affected, I constantly drop things! my toes will spasm, and burn, particularly during the night, and I get extreme pins and needles. I get really strange sensations in my leg down to my foot - sometimes like iced water being poured down my veins, or like insects crawling under the skin. you're not alone! lol x
So sorry to hear that you too have problems with your hands and feet. Thanks for replying.
Amazingly I too had pins and needles in both hands during the night last year. It was so bad it felt that I had both hands trapped in the door and my elbows had been hit by a hammer (extremely painful during the night). I ended up having both hands operated on last year for carpel tunnel and this has helped the pins and needles/nerve pain at night. One good tip I discovered was, when the pins and needles start in your hands, drop your hands/arms over the edge of the bed - this really helps.
Have you got a diagnosis for your problems? I'm waiting to go back to the Rheumatologist.
initially I was diagnosed with degenerative disc disease in my lower back 4 years ago after a car accident.... but I've just got steadily worse, with pain becoming more widespread, on top of ibs, chronic fatigue, and a long list of other symptoms, I was diagnosed 1 year ago with fibromyalgia. it was a rheumatologist that diagnosed me - I had 16 out of the 18 tender points. I have a prolapsed disc at l4/5 which is now compressing the nerves, so lots of sciatic pain. am just debating on having a discectomy - but am concerned it will make my fibro worse. what about yourself?
Hi Sarper. Wow what bad luck having a car accident. Difficult decision over having a discetomy - have you managed to talk to others on forums of their experience of this? I know what it is like with chronic pain and fatigue. It is a vicious cycle, no sleep due to pain waking me up and then tiredness and more pain with exhaustion.
I was diagnosed with fibromyalgia in Jan this year by a Rheumatologist. I agree with him over the trigger points, as I nearly thumped him with the pain. It was a strange appointment as he announced I had fibromyalgia and the proceeded to pass me a leaflet and that was that. No explanation or advice of what to do, except come back to the next appointment for the results of blood tests. Well I am having to wait six months for my next appointment. It is a shame that the NHS does not have a specialist team who deal solely with fibromyalgia issues.
I am not too sure whether it is fibromyalgia which is causing the problems with my hands and feet as I have started developing nodules in the palm of my hand which are rather tendor to touch. I feel that my feet too are going the same way, but no nodules can be felt. At least the pain is repeatable and amazingly bilateral. I've searched the internet but with no answer to my problems. The Rheumatologist suspects Palindromic Arthritis but I am not convinced.
My problems got worse since I had my second ovary removed, but I don't want to blame surgical menopause on the pain in my hands and feet as I do not want to go on HRT.
Have you tried Caspian cream? This is a pepper based cream which is available on the NHS. I believe it is for nerve pain. I am going to ask for this for my nerve pain next time I go to the Rheumatologist.
forgot to say. If you haven't got one, buy memory foam for your bed. It is marvelous for painful joints on the back (I had whiplash to my back years ago and it really helped) - this was before the joints in my hands hurt!
I am a member of a fibro forum on Facebook, and I did ask for people's experiences, and then wished I hadn't! lol. a lot of pretty negative experiences, but trying to keep an open Mind until my second opinion...
my GP referred me to a pain clinic rather than a rheumatologist. had different types of injections, but nothing worked. they eventually referred me to Salford royal hospital on a pain management course. it was a 3 week residential course focussing on living with chronic pain. can really recommend the course - worth asking about. they give you lots of tips for dealing with pain as well as relaxation techniques.
I got the book fibromyalgia for dummies when I was diagnosed. I found it really helpful, as when you google stuff it's scary! fibro can definitely cause pain in the hands and feet, but also different types of arthritis can be linked to fibro as part of the 'syndrome'.
elective surgery does seem to make fibromyalgia flare up seemingly, from my discectomy research (Google fibro & elective surgery if interested).
haven't heard of caspian cream. will ask my GP at my next appointment.
I do have a fab memory foam mattress - worth every penny!
I live in Oldham, and I'm under Rochdale pain clinic and they referred me. I don't know about catchment areas - but I know other hospitals run similar programs, a real holistic approach to pain management. definitely worth a conversation with your GP since you can choose where to get treatment. the Salford program puts the attendees up in a hotel nearby and taxis you into the hospital daily, to give you a break from family home stresses and allows you to spend time with people struggling from the same issues - so that would cater for someone living a distance away. I made some valuable friendships with people that understand. I hope you find somewhere that offers something similar.