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Pain injection poll, help please!!

Jul 25, 2016 7:07 PM

I am seriously taking a poll. My pain is going on week 2 of a steady 10, only thing different is I had the cortisone injection in my back-low, by the top of the tailbone, to see if I would get relief. I liked the lidocaine, knocked my pain from an 8 to 5, but the next morning, and since it has been a 10. I let the pain clinic know what's going on, and they said no worries I can have another injection at the 2 week mark. Um, if it didn't work why would I want another, but then I keep thinking, but I could have lidocaine....seriously!!!! Any thoughts???? Please?????? 😢

Jul 25, 2016 9:52 PM

I had Cortisone injections in both feet about 30 years ago. I didn't walk for 6 weeks after. Nobody goes near me with a needle now unless it's my employer-mandated flu shot.

Jul 25, 2016 10:36 PM

I have had the knee one, not that it did anything, I just want to know who looked at a rooster and said that! we can take his comb, chop it off, liquefy it, purify it, and inject it into knees and say it will help cushion when you walk lol. I'm sorry about your experience Hsmommy1, that's horrible!!! *hugs*!!!!! 🌺

Jul 26, 2016 12:46 AM

Sometimes the pain gets worse before it lets up, but often,and unfortunately, it's because it hasn't helped. It's your choice whether to get another injection,likelihood is that you won't get relief, it's hard because we all search to have that relief in pain, maybe discuss with you GP, let them know that the lidocaine was temporarily helpful, it'll help them in maybe trying you on different pain relief

Jul 26, 2016 2:40 AM

Thanks, JAHMAC. My fear is the injection aggravated everything and the pain clinic will say, 'we tried, want more/different pain pills?' And I will say 'nope, will need to learn to live with a new baseline for pain, but thank you for trying'. I give them an E for effort......I keep saying I have no back pain, it's hips, thighs/quads, knees, shins, ankles, feet, and the right shoulder drs 'fixed' (rotator cuff tear, the bone instead of being round was pointed & sharp so any time I used my arm/shoulder I tore/shredded the muscle. They can fix the left one any time. No thanks, it doesn't hurt lol) and they only fixed it because I complained of hand pain (still have hand pain) dr said carpal tunnel, test said no, scan said rotator cuff tear, which was 'fixed'--15 yrs later, still got the achy hand, Dr did an xray to see if I had arthritis in my fingers, apparently about 15 yrs ago I broke my wrist. They can go back and fix it if I want. I said I'm good. LOL. We keep saying good thing I have a good sense of humor and don't yell (much 😉)

Jul 26, 2016 2:54 AM

Hello... i have had many spinal injections from facet joint blocks to cordal epidurals for pain.

These are used as a diagnostic tool as well as pain relief. If the pain was not helped... it just means they now know thats not the right place to relieve ur pain.

So when my complex pain is not greatly improved... we know to move on and inject the next nerve root until the pain is considerably knocked out. I usually get 4-6 places injected at once.

Then once they hit the right place and my pain is reduced... they then know exactly where to go when it wares off... for either more injections to that area or for the next stage - nervve ablation to that nerve root where they microwave the nerve root which lasts much longer (up to 3yrs)...
I have had nerve ablation cervical and lumbar.

So just trust they know what they are doing... and ask them to explain everything thru with u regarding ur case... but dont be afraid ⚘

Jul 26, 2016 8:28 AM

Thanks, Lulabel!!! I do trust my pain clinic team. If not, I wouldn't let them near my spine with a needle!!! But you are right, if I trust them to do what's right, I need to trust them to continue to advise me in the best care. Thanks for your advice!! 🌸

Jul 26, 2016 9:55 AM

Ur so welcome ⚘⚘⚘

Jul 26, 2016 1:51 PM

Poods, I'm so sorry you are hurting so bad still. I went through a series of 3 injx, at each location of my spine, twice; C7-T1, T11-12, L2-3, L5-S1. It was a total of 24 injx over a 2 year period. Typically I would go home and have more pain for 24-48 hours, making sure to ice the area treated to reduce swelling around the nerves. And it worked beautifully 23 times. The one time it did exactly like you are describing was when the doc actually did a facet block injx and it hurt like crap until I returned in 3 weeks, when they did another block that actually blocked the previous pain. I told him not to ever do the same type injx again, and he didn't. My injx were done between 2012-2014, and I only started to have a recurrence of pain in the neck, thoracic & sacral areas in October 2015. My neck is a mess now due to foraminal, facet & spinal column stenosis, OA, and retrolisthesis, which I'm having a diskectomy for on Aug 8th. Please don't give up on the injx yet. And remember to ice on & off afterwards. It was explained to me that the nerves weave in & out between muscle fibers, tendons, & ligaments, and when there is swelling it will increase the pain. I can not tolerate an ice packs directly on my skin anymore, not even wearing clothing between. I've become intolerant to extreme temps. I wrap the ice pack in a towel twice, out I use a knotted tube shock filled with uncooked rice & frozen. Hugs love & prayers you will get much better results & relief when you get the next injx! 🙂💕🙏🌸

Jul 26, 2016 3:24 PM

I have not had injections in my back but I have had them in my shoulder. They were only temporarily helpful . I use inversion for my back and hip pain, it helps me tremendously. I have RA (everywhere), all of my T-spine is fused and I have a 19 in rod inserted in my spine, misc hooks and clamps ect. osteopenia, multiple nerve issues because of back surgery. Sclerosis of my SI joints. Also I have broken my tailbone a few times (gymnastics). For me hanging upside down has been the most helpful for low back and hip pain.

Jul 27, 2016 5:46 PM

Thanks, FlappysLady81 & LMB!

I have iced-15 min on, 15 off....then I increased to 30 min on, 30 off... then 60 on, 60 off (it's been hot here in MN LOL) I also have been laying on my stomach or right hip. My daughter is a massage therapist (stinker can find every knot I have, even when I don't think I have any). I also walk around smelling like I work in a peppermint factory because I put Ben Gay on my knees, thighs & hips so often during the day (I tried prescription stuff, didn't work, have tried essential oils without rosemary (allergic, go figure!!) and it is ok but Ben Gay works the best. I have a dr appointment on Aug 2, so I will ask him as well. Thanks everyone!! 🤗 I appreciate you guys so much!!!

Jul 27, 2016 10:55 PM

Poods, hi! I haven't been on here much lately so I don't know your dx. But a warning. I have tailbone pain that radiates down the legs etc. I have a rare disease, Tarlov cysts. These cysts are part of your nerve roots usually forming in the S region and on the tailbone. If you have these it is now beleived to never have phy therapy or any form of shots to the spine. These types of treatments tend to aggravate the cysts. If you have had any mri of the lower back get a copy from the reading doctor of his report. 90 % of doctors say they cause no pain, but will agree that in 1 to 4 % of patients with them will have symptoms. In our group there are over 1000 people known to have them in the world. But believing doctors think the numbers are much higher due to missed dx.

Aug 12, 2016 3:44 AM

Zetarlov, I see my pain clinic dr TODAY and will be asking her if my scan mentions cysts on the S Region (which my phone wants to auto correct to Santa Region LOL!!!) I will let you know what is said!!! Thank you!!!!!

Aug 12, 2016 3:47 AM

Good luck Poods 🤗 wish u all the best x

Aug 12, 2016 4:11 AM

My scan says (so you know, I took out my name, and referring info):

CLINICAL INFORMATION: This is a 49-year-old woman with lower extremity radicular symptoms.
TECHNICAL INFORMATION: MRI lumbar spine was obtained on 1.5 Tesla magnet including sagittal T2, sagittal T1, axial T2, axial T1 and sagittal STIR images.
INTERPRETATION: There is mild convex to the right curvature of the upper lumbar spine. There is straightening of the lordotic curvature in the sagittal plane. No marrow edema within the lumbar vertebral bodies. There is no lossï of vertebral body height. The conus is at the L1 level and is normal in appearance.
L5-S1: Disc bulge without central spinal canal or neural foraminal stenosis. Facet joints are unremarkable.
L4-5: Moderate degenerative disc disease with disc bulge which contacts the left L4 nerve root in the lateral foramen. No central spinal canal stenosis. Mild left-sided facet arthropathy.
L3-4: No central spinal canal or neural foraminal stenosis. The facet joints are unremarkable.
L2-3: No central spinal canal or neural foraminal stenosis. Facet joints are unremarkable.
L1-2: No central spinal canal or neural foraminal stenosis. The facet joints are unremarkable.
T12-L1: No central spinal canal or neural foraminal stenosis. The facet joints are unremarkable.
T11-12: Moderate degenerative disc disease and disc bulge. No cord deformity or central spinal canal stenosis. Foramen appear patent.
CONCLUSION: Mild convex to the right curvature of the upper lumbar spine. Straightening of the lordotic curvature. Specific findings according to level including:
1. L4-5 moderate degenerative disc disease with disc bulge which contacts the left L4 nerve root in the lateral foramen. Mild left-sided facet arthropathy.
2. Small disc bulges at L5-S1 and T11-12 levels without central spinal canal stenosis or neural impingement.

Aug 12, 2016 4:16 AM

LOL apparently, I am unremarkable--I also had a xray of my hips, and they aren't sure why, but I have bone spurs but no reason for them, so it is recommended I see an orthopedic surgeon. I will put it on my "to do" list, but not high, because every time I see an orthopedic surgeon, they want to 'fix' me, and I get it, I understand it, but seriously I think I'm perfect the way I am, just back off and see how perfect I can be LOL.

Aug 12, 2016 4:33 AM

Looks like u need facet joint injection of steroids to reduce the bulge contacting the left L4 nerve root... at L4/L5... am i reading that right @LMB ?
Did they offer u an injection at any point? I have had similar scan readings but a long time ago... so forgive me if my head is up my ass 🤗

Aug 12, 2016 11:00 AM

That's what I had!!! Your head is right where it should be--my pain however is not!!! It's all in my legs, hips, ankles!!! NO back pain--and I have really good flexibility (which is impressive but apparently not overly impressive LOL,

Aug 12, 2016 11:02 AM

My pain, after that injection has increased, and I'm not sure it's because it's where it should be and my body really doesn't know what to do with the pain relief, or its really not a relief, and it's trying to show me noooooo, don't do this again. Know what I mean????

Aug 12, 2016 2:04 PM

It can take up to 6 weeks to settle in... the steroid acts as an anti inflamatory ... in theory by shrinking the bulging disc... but i had immense pain after mine from the injection sites... i had 6... which blew me away. It settled and slowly the discs shrunk giving overall less pain. 😊

Aug 14, 2016 12:04 PM

Poods, after reading this feed, you need an mri of your sacrum and cox (tailbone) area of the spine. That is the area that controls the radiating pain down the legs and to your toes. If you feel like you are sitting on rocks , or have uncomfortable sensations down the leg that is similar to siatica nerve issues ask for an Mri of that tailbone. An Xray won't see damage to the spinal area here.

Aug 15, 2016 7:40 AM

Good news (maybe lol) no mention of Tarlov Cysts and she doesn't see them--but I did tell my pain clinic provider how much I recommend this app!!! I wait until early afternoon so I can move a bit before deciding where my pain is at, so it's not a 'well I woke up and my pain is a 10 so my day is shot' sort of thing, and it really does help to try to somehow help someone else!!!
Zetarlov, my biggest issue, is when I was younger my knees would dislocate, and until a dr took an xray to see why it wouldn't stay where it should be, they didn't know I didn't have that groove for it to sit in. So, when I was young (12 & 13) my dr wrapped my tendon around my knee after removing the cartalidge and making a notch for the knee to sit in. To my knowledge, that hasn't been done before or since in that way. I'm 49 now (50 in Nov) and bone on bone for 38 yrs was not the plan--my dr thought I would be in a wheelchair long before this, I'm just too stubborn. One dr even said not sure how you are moving, you shouldn't be and your back should be in excruciating pain (no pain, thank you just my hips on down lol)...I have a chiropractor that swears he can fix me as soon as he can turn my tailbone the right way (it's a little off, but hurts when it's adjusted too much). We keep getting parts of what's wrong, by the time they figure it all out, I'm hoping it can help someone else out lol. My son has Ankylosing Spondylitis--he's 27 and his spine is fusing from the bottom up. I'm trying a gait accessment tomorrow, to see if something other then a can will help. Sorry for the long post. The results I posted were either mri or ct scans--only xrays I had were of my hips which said I have bone spurs but no reason for them--go figure!!!!!

Aug 15, 2016 8:18 AM

Oh, mercy, I was just throwing out my rare disease that is ignored as a in your head illness. Have you thought of doing a blog , if there is another doctor trying to treat another person si imular to you it could help. Ask for copies f your medical treatment since you were a child, and use recollections from your parents. I blog and several otheres do with my disease and it has helped others talk with their doctor. Atleast it helps them prove it's not in their head..

Aug 17, 2016 6:25 PM

Thanks zetarlov!!! I tend to look for an 'in your head illness' lol!! I will need to look into a blog, but it will need to wait. I'm helping out with my mom, she didn't want to go into transitional care and my sister and I are sharing her care!!!

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