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Pain, Lack of sleep, and fear.

Feb 11, 2016 6:57 AM

In the past four days, I've gotten a total of maybe 8 hours of sleep. I am beyond exhausted. I am not thinking straight. I'm at my wits end. Each time I feel close to sleeping, I'm shaken awake because of the pain. It's the worst. I can't even focus long enough to update my pain entry. I'm feeling lonely. I'm afraid because I don't know what else to do.

Feb 11, 2016 8:07 AM

Tiff123, I am so very sorry for your pain. I understand what you're going through and feel your pain. It's distressing what lack of sleep does to your mind AND your body. You feel confused, sometimes almost drunk because you're so sleep deprived. The weakness and anxiety that comes with it is also difficult to deal with. I can tell you that I have been dealing with pain for almost 23 years and have had 29 surgeries because of deteriorating joints. I have degenerative joint/disc disease, cervical spondalytic myelopathy, scoliosis, lordosis, long thoracic nerve palsy, spondylosis, sciatica, SI Joint disfunction with fractures, I need 2 knees and I have no recognizable joint in my left shoulder. I can no longer sleep in a bed (almost 9 years now) so I am limited to a recliner. This is not ideal either because it restricts your movement and it doesn't give your spine the chance to decompress. I also suffer with depression and anxiety which you are feeling, I'm sure, because you can't sleep. It's a viscious cycle and it just goes round and round. Understand that it does get better (and worse and better, etc.) I don't know what you've been diagnosed with and what doctors you have been to but you may want to consult your pcp and get a recommendation to a good orthopedic doctor, neurologist and rheumatologist. There are many tests needed to determine what the source of your pain is and it does take quite some time to get definitive diagnosis at times. Please try to hang in there, I know how frustrating it is. Know that you are not alone. There is a tremendous pain family here that is always standing by to share experiences, chat, answer questions, offer advice and support you through the tough stuff. Never worry about venting or getting things off your chest as we understand. We live it every day and we get it.. We truly understand. Something that is a Godsend when people in your life, whether family, friends or coworkers don't understand. It's really not their fault.. It's difficult to get it if you don't feel it. Please feel free to always come here and give us a holler when you need to. Please let me know how things go and more of your story. Welcome to the family and I hope you find the support, advice and answers you seek. {{{{Hugs}}} and prayers headed your way. 💕🙏🏻🌻

Feb 11, 2016 11:01 AM

I am so incredibly grateful for your response. Thank you. Thank you for sharing your story with me. I can't imagine being reduced to a recliner... I have Fibromyalgia and a long with that some depression and anxiety. My symptoms just seem to be ever increasing in amount as well as intensity. I am grateful for this support network. Thank you for your hugs and prayers ans know I send them back in return. 💖🌸

Feb 11, 2016 11:09 AM

Tiff123, always remember that we are here for you. I'm merely a keystroke away and am here most every day to check on my peeps to see who needs help. If you can't sleep, I'm usually up as well. This is a community of love, understanding and support. I hear you about the issues getting worse and more frequent. It does happen. It's sad but true.. However, whatever the reason we have been dealt with these horrible issues, it somehow makes us stronger. I hope you have a blessed and peaceful day with less pain.. Thanks for the return hugs and prayers. 💕🙏🏻🌻

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