Well, I had my appointment this morning. Not exactly what I was hoping for but, the doctor told me I needed to go through medication trials before she can refer me to actual pain management (insurance stuff).
I've been prescribed diclofenac 50mg for pain and tizanidine 4mg for the muscle spasms.
Not too hopeful about the pain med since it's just another NSAID but we'll see, I guess. It's just that I've had anti inflammatories before and they did absolutely nothing for my pain but make me constipated all to hell (lol).
Have any of you been on these before? And if so, did they work?
I have heard a lot of people that diclofenec has worked on real well but not on me. I have used a lot of the anti inflammatory drugs, even the top of the line ones. But I always come back to ibuprofen. It works the best on me and is the cheapest. Cost really isn't the factor at all. I go with what helps my pain the best. Best wishes for pain relief.
Hello, I am very new to this app. I am on Tizanidine 2mg every four hours with Trama do 50mg every 8 hours. The combination of the two help a little. It takes the pain level down a notch but I'm never completely out of pain. I've just learned to accept that being in pain is a part of my life journey.
Tizanidine I've never hard of that is it a pain killer. I take 100 mg of tramdol twice a day and paracetamol 200 mg 3 times aday it takes the pain of a little for me to do small jobs. But I take others as well.
Ah yes the fun of trying so many meds. I didn't enjoy that. For the most part, my current batch aren't bad. Nothing touches the pain when I'm extra ill (which has been a lot over the last four months) and I think the doctors are reluctant to put me on morphine. I'd try the patches but I suspect my current concoction is already pretty potent. I'll put them in the order of longest to newest. Salbutamol inhaler Omeprazole (acid reflux) Nortriptyline (to help sleep after more than two years of not sleeping properly) Tramadol (pain levels. It's crept up over the last few years and on slow release 100mg twice daily.) Cetirizine (to counteract the itchiness caused by the tramadol) Carbocistean (for my asthma and bronchiectasis) Baclofen (for muscle twitches that had gotten out of control) Montelukast (asthma and inhaled allergies) Spiromax 160/4.5 mcg (changed from Symbicort to save the surgery money. This was done when my chest was bad from infections and without so much as a phone call) Levothyroxine (hypothyroid)
The fibro can floor me with pain levels, especially most recently with repeated chest infections that wouldn't clear. Walking was almost intolerable. Now saving for a wheelchair since they rarely give them out on the nhs these days. The constant shortness of breath has caused a knock on effect on my other conditions and have been on antibiotics of various types six times with three of them in the last six weeks. Each time has also included steroids. So my system has no fight left in it. My gut bacteria must be close to zero now and I have to carry a steroid card with me because I've had so many. Currently on eight a day. Fingers crossed the meds work this time and I can get back to some semblance of normalcy. I hadn't heard of Tizanadone but I'm guessing it does a similar job for you as my baclofen. P.
No gizmo. It never crossed my mind tbh. I've got a few avenues to look into. I found some charities that help finance expensive items so long as an OT or social worker etc also sign the paperwork. But I'll try the Red Cross too. Thank you. P.
UH, the kind of muscle spasms I have are mostly in the back of my neck/top of my shoulders. The muscles get so tight and painful it feels like they're being torn apart. Meant to explain in the last post, sorry.
The muscle spasms are difficult to deal with. I usually end up dropping things, randomly making a line up a page if I'm writing or drawing and sometimes my iPod goes for flying lessons if my hand twitches whilst I'm holding it. I find the baclofen doesn't make me too weary which is great since so much else does. On the downside it does affect all muscles and can make them less effective, leading to weakness long term. I believe that but can't be sure which things are to blame for what! I see from your added post that you suffer in your back and shoulders. That is tough. The pain can be nasty there. You have my sympathies. Mine affects my limbs more, as explained above with flinging things about. Means my legs don't always behave too and I used to just randomly fall over before. Now I have meds and two crutches to keep me upright. Back spasms completely floor me. Utterly paralyzing until they stop and so painful. I do hope yours is feeling better today. P.
I am on tizanidine 4 times a day it works to a point I have less knots. They give it out rather than flexerall as a muscle relaxer as flexerall can cause afib. My husband actually got afib at 34 from flexerall. anti inflammatory drugs don't work for me either so I understand that. I opted out of pain killers because they weren't working either but we're causing a lot of other issues.
Tizanidine was something I used to take at the full dose for my spasms I get from being quadriplegic, It didn't help but it did give me really bad heart palpitations. Diclofenac is another NSAID, bad on the stomach with prolonged use. Like yourself PJB trying lots of different meds to try and find something that helps is just one of the added "un-bonuses" we get when we have chronic pain.....😩 I have lots of different pain medications and anti-spasmodics, anti-epileptic(a normal for nerve pain, like Gabapentin and Pregabalin)I'm on Fentanyl patches which is like morphine but stronger, but again if your Body gets used to something it just won't help.
I am not taking any of the mentioned medications. I have tremors which they are trying to determine what type. They have ruled out Parkinson's. I have spasms which is a new phenomenon for me. I have wondered if a muscle relaxer would be beneficial in any type of way? I know when I have taken them in the very long past I have fallen to sleep without regard to where I am. Tramadol In the past might as well had been candy for me... It did nothing for me and did not touch my pain. These tremors are bothersome. How do you deal with them in public? My handwriting looks like I am trying to forge someone's signature. Shammagrenn, I wish I didn't have to take pain meds. Actually I wish I didn't have to take any of these medications. Flappy what are you doing for your tremors?
I don't know about others, but for me, my spasms are pretty uncontrollable and it's better for me if they come out. When we're out and about if it happens it happens and it basically looks like I'm Michael Flattley from Riverdance..... I'm not embarrassed anymore, because I can't do anything about it.
I also have tremors, but they are believed to be coming from the pseudotumor. Hopefully once the pressure comes down, then they will be more manageable. Like JAHMAC said, there's really nothing I can do about them, so not embarrassed.
And there's the rub JAHMAC, the fact that any med might work for a while, but will need an ever increasing dose for the same effect, until it finally does more damage than good. Then there's coming off meds! My current (and not for much longer if I get my way) GP is very reluctant to even consider taking me off the tramadol because, and I paraphrase, I've been on it so long my body is dependent on it. I don't believe that for a second. I've only been on the slow release type for about 15 months. If it doesn't work, why still take it? It does make a difference still, it's just reaching that point now where it's not enough any more. In regards to the muscle spasms, I find if I let them do whatever I'm a risk to all and sundry. Especially to myself! It's exhausting to constantly be twitching and shaking. I simply cannot function like that so I'm glad for the relaxant tbh. Just hope it continues to work long term. I still twitch but it's manageable, except when I'm writing or drawing. Then I end up looking messy. I hate that it can be so random. But always worse when tired. I sincerely hope everyone is having a good day today and our bodies behave like angels. 😇 P.