Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness


Apr 13, 2018 2:28 AM

To all those struggling with pain management, who have EDS, any tips or tricks you’ve found to be effective at lowering pain for extended periods of time? Especially if you have subluxation of C1-C2?

Apr 14, 2018 1:06 AM

Heat packs, heat blankets, keep it all heated. Tylenol can be taken with most pain meds for that little extra boost as well. Lidocane patches are also a lifesaver, or icyhot patches with lidocane if you can't get prescription lidocane patches.

Apr 17, 2018 9:06 AM

Cannabis has saved my life.

Apr 22, 2018 3:25 PM

Distraction is the only thing I've found that helps me. Oh, and chainmaille has helped my hands a lot.

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