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Pain management

Jan 23, 2016 9:51 AM

Hello, has anyone been referred to pain management? I had an amazing Dr and he decided to send me to pain management. Not sure why, but it was said that he was going on a new system and all his chronic pain patients
are being referred out. I have beeen diagnosed by a rheumatologist for Fibromyalgia, ddd, and osteoarthritis. I am so afraid to have to play the run around again with the pain management Dr. I had my first visit with pain management, he also says,I have bursitis in my hip, he wants to triggerpoint inject in my hip, and put fluid in my knee. He already dropoed my 3 vicodin a day to two. I told him I already have tried every medicine for Fibromyalgia and had injections. I have multiple chemical sensitivity and the regimen Im on is what works. He told me he does not long term treat with narcotics, but he will not be taking me off right away. Should I find another pain Dr? I just dont have the energy anymore.

Jan 23, 2016 10:04 AM

Yes when my pain was first thought to be a chronic pain they also sent me to pain management to get help. Since then I've also seen a gastro doctor, a neurologist, a rheumatologist and my psychiatrist and my psychologist. You have to do what you feel is best for you to get better after you factor in costs. Do what you feel will better your living conditions and actually manage your painπŸ˜ƒ I've seen so many doctors to help me figure out what we can do to manage my pain since it seems to continually get worse and to new places but I'm learning that may be normal for some RSD/CRPS patients. Getting the right diagnosis is key. For instance I'm going into testing next week to make sure I don't have Lyme disease, lupus or MS since the symptoms for CRPS are similar and they need to rule it out. I know it's hard not having the energy anymore but I try to think back to when I worked out 3 times a week with a trainer (before military) and he could push me further past my 'limits' I would normally set for myself. So daily now living with chronic pain I push myself to get up two more times than I want to that day or use two spoons I didn't think I had. <- if you know the spoon theory that will make sense. I hope you find what you need Melissa!

Jan 23, 2016 11:12 AM

Yes, I have had tests for lupus which came back borderlibe positive for. I just dont want to have to replay 3 yrs ago when I first got diagnosed. I have been doing fine with what I have been doing.

Jan 23, 2016 12:58 PM

I am on my second pain doc... the first one was a nightmare and I was stuck with him for 3 years because no one locally dispensed narcotics. He was very mean and made me cry several times;it was like he enjoyed it! When a new clinic opened up I finally moved. My new doc is ALL ABOUT injections and getting me off Percocet. Well, this is my 2rd set of injections (sciatic and hips) and they actually made things worse! Idk where we go from here. I do know you don't want to look like you're "doctor shopping" so you might want to hold off a bit and give him a chance, see how it goes first.

Jan 23, 2016 2:03 PM

Thank you! That was my fear of them accusing me of dr shopping. He did say they will not be taking me off narcotics right away. So Im going to give him a try.

Jan 23, 2016 9:18 PM

Melissa1981, Many of the regular doctors are getting away from dispensing pain meds, and some of the pain docs are too. It's this whole new theme I think. I as sent to Mayo for tests and they wanted to put me through their pain reconditioning clinic, where everyone is taken off meds. Funny thing was only one of my meds was pain med for fibro OA and such. I couldn't afford the $30,000 program so I'm doing various treatment options locally, like PT & counseling. I hope you will be able to get the support you need. Hugs & prayers all will work out well for you. πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 23, 2016 9:43 PM

I know what you mean Serena I had a dr who refused to send me to pain management. She stop nearly all my pain relief all in one hit. I was sent to hospital two days later so crippled with pain the ambo people had to ring the hospital for some to dr to out to me. OMG I was so relieved he gave me some morphin. Told him so he sent her a letter got discharged samething happened again.

Now after all that I have this dr who keeps in contact with the pain management team at our local hospital and super clinic.

Now on tramadol 4 - 6 hourly, 30mgs of Emesalon (slow relieving morphin) 3xs a day, panadol 4 - 6 hourly and sevadol 3xs a day even tho my pain still kills me at least I can still get around with crutchers or a walker now where before it just about had me passing out with pain.

Jan 25, 2016 5:53 AM

I hate this "pain management" stage. This is a big movement the govt instilled for doctors offices as well as signing a form indicating you know the risks of your pain meds and promise to only get the filled at one location. It's truly ridiculous but they are doing it to help get these drugs off the streets and "hopefully" reduce the amount of dependents on pain meds. I've been struggling with a list of 7 different back issues with severe chronic pain for the last 13 years. It truly takes over my life....but anyway taking these pain meds for so long, they send you to pain management as regulations insist. And it sucks.

Jan 25, 2016 8:08 PM

SarahStranger, I hunk you hit the nail on the head about the govt! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 25, 2016 8:54 PM

I figured the government was involved somehow. I dont really mind that I have to be on a contract because I need my medicine. Im jut afraid of them cutting me off. They make it seem that, Fibromyalgia, DDD, bursitis, and Osteoarthritis isnt painful.

Jan 25, 2016 8:58 PM

I am afraid of the same thing Melissa1981. I fear I'll lose it too and not know what to do. Not be able to control it.... It's hard for anyone who doesn't experience our pain to judge whether we need our medicine or not, am I right?

Jan 26, 2016 9:05 AM

Sarahstranger you are right.

Jan 26, 2016 9:11 AM

You're absolutely right!! It's almost as if it's being held over our heads and the threat of them taking the meds away is always right there. It's nerve wracking. I get anxiety starting a week before I even go because I wonder if they are going to tell me they need to cut something down or take it away completely. And... My next appointment is Monday. I've been going to the same pain management office for 20 years now. Try not to worry too much. Someone has to do something about our pain or hospitals are going to be full of folks who can't function because they hurt so bad. Sending gentle {{{Hugs}}} and prayers that all goes well at pain management and they are able to help you quell some of your pain. πŸ’•πŸ™πŸ»πŸŒ»

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