Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Pain meds not working

Dec 05, 2015 12:32 PM

I'm taking a good amount of meds and nothing stops my pain. I feel hopeless! I'm a failure to my children. I've had many moments of not wanting to live anymore. I wouldn't be here anymore if it wasn't for my children. I have fibro btw can't type anymore

Dec 05, 2015 12:54 PM

I am in the same situation as you, pain mess don't work no more and don't want to increase as be no good for my kids, but I still look on the positive side now as with having children it makes life special and I take everyday as precious as the last, as I am lucky to be here as ended up having an accidental overdose last year and died twice but if it wasn't for my daughter telling her mum I was talking gibberish and the quick actions of my wife it could all of been different, and I would of left a loving supportive family behind, all because I felt guilty as I felt if I was in less pain I could of been back at work, but the thing they need most is just me alive, keep positive as you never know what's around the corner and it could be a miracle cure.

Dec 05, 2015 12:57 PM

I need a miracle

Dec 05, 2015 1:06 PM

Cspinelli, I can fully understand. I have 3 kids one of which is special need's, there have been a lot of times I have thought the same thing, but it turns out that the kids will be there for you, just like you had been their for them. Don't ever think your a failure to your kid's, you are doing what you can with your condition (s). I know pain limits a lot of stuff we do. Pick a night and do family game night, board games or take the time to learn to play their favorite game on the Xbox or Nintendo or what ever it is they play. I'll be praying for you! 🙏

Dec 05, 2015 1:31 PM

In no way is it your fault that the medicine does not work! I have always had that problem because of genetics so I don't take pain meds, but use alternative methods to help me deal with my CRPS. I hope you can find ways to relieve your pain without the meds too! My doctor has told me that a medical pump that puts pain meds into your system can work for me but I'm not ready for another surgery. Maybe a pain pump would help you, you might want to ask your doctor! Good luck friends!

Dec 05, 2015 2:00 PM

It's not your fault, found something you can share, even if it's small.
Whether a hug, telling/reading a story together, or taking a walk, you can be close just by doing something.

Dec 07, 2015 11:17 AM

Cspinelli, You are not a failure just because you're pain limits what our when you can do things. Your children need you, and would be much worse off without you. Children are resilient and pick up on things better than adults give them credit for. My granddaughter took it upon herself to adjust our activities so that it was easier on me; she's 9 now, but I've been this way since 2010. She brings her books, toys, dolls or games to the table or up on boxes, or in the bed so we can interact together. She washes and peels and cuts fruits & veggies for me.

Help your children to help you. Teach them your struggles and take time out for quiet play or whatever the need. When my girls were younger we would have an "FFY" night; fend for yourself, meaning sandwiches, or cereals, or hot dogs & chips or pizza, anything they could fix themselves. Back then I didn't have half of the problems I do now.

Just because you are limited in what you do or how long you do it doesn't make you a failure. It quality that counts, not quantity. And the meaning of quality to a child isn't the same to an adult. The littlest thing is like gold to them. Just be honest and try to help them understand. I'm sure they'll say having you there is what's important!

Please let your doctor know what you're feeling, both physically and emotionally. You may needed a change in medications. If between on cymbalta for 7 months when I began suffering more pain. Over 2months one my mold totally went down and I was thinking about dying being easier. It was caused by the cymbalta. You will be in my thoughts and prayers! (((Hugs))) 🙏🌼

Ready to start relieving your pain?

Join Community