Looking for advice on how to get some relief for my fibromyalgia. What do some of you take? What works and what doesn't? I've heard there's nothing that helps.. I've been exercising but the next day I can barely move or walk up the stairs.
Thanks in advance!! I'm 28 and have children, so it's hard for me to just "rest" with toddlers. I'm always on the go with them and I find myself in more and more pain.
Hello Boo123 (Love the name you've chosen). I'm a fairly new diagnosee and I feel like I've tried blinking loads. I initially had amitriptaline which I didn't like as it made me gain lots of weight. After that I tried pregabaline but only got to 100mg twice a day, I didn't get any relief from that. Then it was gabapentine 300mg 3 times a day, no joy. Then Duloxetine which I hated, I felt terrible on that, was taken off it and made to go cold turkey which was horrendous. I'm currently taking 300mg of pregabaline twice a day, with 30/500 co-codamol 4 times a day and nortriptaline 50mg at night, this last combination has been the best for me personally but still not sufficient for me to function properly. What I will say is that we are all different, we all have different tolerances to medications. A lot of us are better exercising but a lot of us are worse for it. You will probably get a lot of your exercise running about after your family. Have you been seen by a Rheumatologist yet? They usually recommend medications and obviously you'd speak to your Dr regarding them. Have you been referred to a physiotherapist? They generally know which form of exercise will be best suited to you and your tolerance levels. Just a little advice, try not to do too much, you will only exhaust yourself. I know it's easier said than done but in my own experience if I get carried away and overdo it, I definitely pay for it over the next few days, so it's not always worth it.
Have you tried soaking in tub with warm water and 1-2 cups of epsom salts. Heating pads help. Electric blanket helps. I take 200mg of Lyrica 3 times daily and 100 MG tramadol 3 times daily. Physical therapy helps some people. A tens unit helps some people. Good luck finding out what helps you.
Hi Boo123, it's going to be hard for you to run after your toddlers and not over do things. If they still take a nap in the day rather than do chores that will make you worse, use that time to rest and even sleep when they do.
At the moment I'm taking extra vitamins and minerals to help several things..... • I take magnesium citrate 100mg tablets which I've found has helped reduce the muscle twitches I get. It hasn't taken them away completely but they have definitely reduced them and reduced the intensity by just under half. Magnesium also helps calm the nervous system and also helps with fatigue. • I take a vitamin D supplement that my doctor prescribed as I'm borderline vitamin D deficient. Vitamin D helps the your body absorb calcium and iron (I think iron but I'm feeling foggy so I could be wrong on that one). • I take an iron supplement called Blue Iron as I'm bordjú6erline anemic but I can't take normal iron supplements that the Dr prescribed as it upsets my stomach with cramps and diarrhoea. Blue Iron suspension seems to be easier on my stomach. Iron also helps relieve fatigue. • I take evening primrose oil supplement to help my moodiness....if I'm in a mood my daughter asks me if I've had my evening primrose oil caps and 6/10 times I'd forgotten it. • I take a vitamin B complex to help with fatigue and boost your immune system. • A multi vitamin and mineral supplement to boost up any that I'm short on. • I take garlic tablets to stop being bitten by knats and such. It really does work because I was hardly bitten at all last year whereas I've always been bitten up till last year. •The meds I'm on are amitriptyline at night and morphine mst twice a day....these are the the only pain meds that actually seem to work for me....if the pain is really bad then I take co-codamols 8/500mg and use a 5% lidocaine plaster. I also take prochlorperazine 5mg for vertigo atm as well. I do light stretches And try do light exercise as well like walking for about 5 minutes....I'm going to build up slowly. I also use a wheatgerm microwave beanbag to try and ease some of the pain and tightness in targeted areas like my neck and shoulders. I used to soak in a hot bath for 20 minutes with 1-2 cups of Epsom bath salts but now I really struggle to get out of the bath so I soak my feet in a foot spa for 20 minutes with a cup or two of Epsom bath salts (it leaves my skin really soft). I also use a magnesium spray directly on the areas of pain and massage in.
I've found the meds like pregabline, carbamezapine, gabapentine and another one I can't remember what it's called, don't help me and in fact they make me worse!!!!
Everyone is different so what works for one might not work for another xx
Thank you everyone for your replies!! I am currently on amitriptyline only 10mg and find it is not doing anything!! I go to the gym 4 times a week as my doctor has told me to stay active. But between the gym and my children I find myself being more exhausted and in more pain. Sometimes I can get a little relief from a warm bath and heating pad but the pain never completely goes away. I have also started taking vitamin D supplements and calcium supplements as well.
My doctor said we could try lyrica but I would have to stop taking my migraine pills and depression pills as I can't take all 3 together. I suffer from migraines so I don't want to be taken off of that medication. I also suffer from depression from losing my dad recently.. so I feel like im at a loss no matter what I do.. Fibro is such a terrible disease to suffer from.
Unfortunately I've learned over the many years of battling fibro that each persons body is different and we all react differently to the medications. I wish i had answers but because I'm either allergic or had horrible side effects to most fibro meds in stuck going the narcotics route. Now i am also battling a long list of spinal conditions, and add of last month, ms.
Boo123 I'm really sorry for the loss of your dad, losing close family is never easy and you never get over it you to live with a little piece of your heart gone and with time you'll be able to think of all the times you spent together and laugh and cry and be thankful for the time you spent together. Try not to hold in your feelings in otherwise it will make everything worse. I know it's difficult but try to set aside time everyday where you know you won't be interrupted and use that time to let your feelings out, if you want to cry then cry, if you're angry and want to scream then scream into a pillow and beat it up. If you need to talk but don't want to talk to anyone around you then either come on here and talk to us, we will support you in anyway we can or you can talk out loud to a picture of say your dad or write down your feelings, this one you can either write it and keep it in a jurnal or you can tare it up into little pieces or burn it.
With meds it's trial and error as to what will work with your body. When you go to the gym have you spoke to the trainers to see what exercises would be best for you? Do you do classes like yoga? Some exercises can leave you on more pain so it's best to speak to the personal trainers or any class instructors to make sure you're doing exercises that will benefit you and not cause you more pain plus looking after your children you might need to do easier exercises and do more stretches.
Unfortunately for most of us we have a constant underlying level of pain 24/7 and there's not much that can be done about it.
Are you on amitriptyline for migraines? I was on 10mg for migraines before I get trigeminal neuralgia but now I take 110mg amitriptyline and unfortunately amitriptyline does interact with a fair few other meds.
I take 40mg of Zomorph twice a day and it does nothing , I can't walk or stand up and hold in a wee all day so I don't have to go. I'm at uni and only young and can't keep missing lectures but the dr won't give me anything stronger or the liquid /short relief version because it's too 'dangerously addictive and easy to overdose' but I wouldn't do that. Would anything else work? Painkillers don't help me and the pain clinic discharged me because nothing helps so have up on me.
sorry, finger slipped... 19, migraines from 9. I went the same tound you did with quite a few more drugs. Gained 100 lbs from Amitriptyline in 6 mos. so it is a nasty word in my home and Nortroptyline is no better for me. Calcium channels abd Beta blockers were only partly successful.
There are only 1080 headache specialists in the US i'm lucky to be finally working with one again who knows her stuff!
I'm finally on Botox as a long term preventative for the worst of the migraines, Topomax for the general preventative, Dihydroergotomine Injection I give myself for rescue ( I can't take any of the imitrix type meds I get serotonin reuptake syndrome and they make me suicidally depressed with my antidressant)!
So also take 400mg of Magnisium CITRATE <<< for migraine ( helps with bowels if you are taking opiates as well) and 600 mg of Co Q-10 for migraine. Then for rescue and for fibro since NAPROXSYN is the ONLY NSAID that doesn't cause rebound migraines if you get migraines (and according to the headache specialist use of opiates for over 8 days per month will do the same thing which lilled my arthritis treatment!) I use 220mg of Aleve 3 times a day for Fibro and take 10 mg of flexeril with 5 mg ambien and 11/2 mg of melatonin at night so that I can sleep. This is all a nasty and dangerous combination at night and I have worked up to it over many years. Most people take things like doxepin to sleep well. or the melatonin on it's own is good. oh, yeah, i recently added 4 - 6 mg of tizanidine to that mix and I take 225 mg of Effexor as my antidepressant at night. Sleeping well and on a strict schedule is as important to migraines as it is to fibro. But you want to be able to wake for the kids so the ambien and tizanidine are probably not for you. I also use Animalover2's tricks of epsom salt bath soaks 1/2 cup and heat and cold as well as wrapping the affected areas and ldocane and heat patched and cold compresses. Recumbent bike, aqua aerobics, and walking. Am thinking about starting Belly dance again and Yoga!