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Pain sleep and CBD oil?

Jan 28, 2018 4:39 PM

Hi again always so tired and can not sleep! Can’t take painkillers as I am the only main care giver of a little toddler. So the doctor always say let’s try antidepressants and let’s see how we get on. She put me on prozac now! And I still can’t sleep! I’m wide awake and tired beyond words. I tried cbd oil and may it’s not for me as I felt nothing.. I took it for weeks and I keep thinking that’s £15 for nothing! What do you guys take to try to help with sleep? The worse pain is always all over my legs and the back of my neck.. Thank you

Jan 28, 2018 4:40 PM

I meant to say can’t take sleeping pills... as I might be knocked out and my son might be need me so in case!

Jan 28, 2018 5:08 PM

Cbd wakes me up -like drinking a coke.

Jan 29, 2018 9:05 PM

I don’t sleep either due to pain , was put on ambien and I still don’t sleep. Was diagnosed with REM sleep disorder. Basically i don’t go into deep sleep and I don’t dream, sorry I have no advice since I have the same issue.

Jan 29, 2018 10:48 PM

Have you tried melatonin? It's over the counter. It worked for me really well for several months but then it did stop working. It may be temporary, but could offer some nice nights sleep for awhile...?
I also swear by talk down sleep meditations from youtube. The key is the long breaths in thru the nose and out thru the mouth and a technique called belly breathing.

I feel for you. I've been wanting to try cbd but it's expensive and can't afford to "waste" money if it doesn't work. I'm sorry it didn't help. Did you try raising the dosage? Do you have cbd with low thc available where you are? I've heard good things about 20:1 ratio. Also, Not available to me where I am. But I would really like to try it.
I think you're right about the risk of prescription sleep meds not being a good option. I'm with you on that and feel similarly. I'm currently in a bad pain, migraine and not sleeping cycle and need to find something else to add to my arsenal.

Jan 30, 2018 3:44 AM

I've been taking liquid Melatonin by Natrol for years and it is the only thing I trust.
I have really bad sleep issues. Been tested several times. No deep sleep, no dreams, etc... This Melatonin is the best. I've tried them all.
Now for CBD. Been on a journey for the last couple of years and finally found some great stuff. Now, I don't like to get high, don't like the taste, don't have a lot of money, BUT have a lot of variety pain. Nerve pain, bone pain, medium pain, strong pain, and jump out the window pain, but I live on the first floor pain; so I need stuff that really works. One thing I hate is to buy something then found out I wasted my money. So, you need some advice let me know.

Jan 30, 2018 4:15 AM

Hi RSDoglover👋 I'd love to know more about the liquid melatonin (i didnt know that was a thing) and also what CBD is working for you!

Jan 30, 2018 4:36 PM

Oh yes melatonin I heard too but can you advise us where we can buy it from? Thank you so much for all the informations really helps to see what other people take to be able to sleep through the pain

Jan 30, 2018 5:13 PM

It's at any pharmacy and in the over the counter pharmacy section at places like walmart. I've only used tablets. It's dosages are 2 mg to 20 mg. Choose what's best for you, i started with 5, wasn't enough, went to 10 that worked for awhile, eventually went to 20. Hope it helps!

Jan 30, 2018 7:14 PM

I'm learning a lot from you all. I tried melatonin years ago and it helped some but I didn't stick with it long enough to really comment. I've tried cbd oil and 8t hasn't helped so far. I've tried vaping it and taking it orally. Maybe I just haven't found the right one yet but I can't justify dumping money into something that isn't helping.

I have used marajuana in the past to help me sleep and it helped a lot but it's not legal in my state for personal use and medical is so new here that I'm not even thinking about talking to a doctor yet about it. If I can one day I would love to try the low thc cbd to see if it helps.

When I do sleep I don't seem to drop into a deep sleep and that's been a problem for a long time, well before my injury. I envy people who dream. I never do or at least don't remember them.

Wishing you all a good night's sleep. I have a doctor's appt for my disability application and I know I won't get much sleep tonight

Jan 30, 2018 7:53 PM

I understand. That's exactly why i haven't tried it yet. We struggle financially and i dont want to waste any money if it doesn't work. I'm close to giving it a try because I'm so miserable, just nervous. I hope you can afford to stick with it and hopefully find what works for you. And i hope the melatonin will help too, at least the financial investment is small, $3 to $10😄
Medical mj became legal here alittle over a yr ago, but so far nothing has happened, absolutely nothing... I'd love to try that as long as low thc variations are available and they make available alternatives to smoking it. Ya never know what you'll get when they finally roll it out.
Oh my gosh! That will definitely keep you up at night! Good luck tomorrow! I've been thru that process. Are you meeting with your own doc or the one ordered by social security?

Jan 30, 2018 8:14 PM

Thanks! I'm going to pick up melatonin while I'm out tomorrow. I'm meeting with the doc ordered by social security tomorrow. I have no idea what to expect but I'm just going to be honest about what's going on. I assume I'll get denied like most people do then have to appeal so I'm trying not to stress too much.

Jan 31, 2018 12:29 AM

Staceyx5: Sorry to hear about your struggles. Unfortunately, been there and back.
Yes, liquid Melatonin is a thing. After my nightmare after Ambien stop working, (sleep eating/walking , etc..) I still needed help with sleep. Tried almost everything.(Have severe sleep issues, outside of pain) So, I needed something that really works plus not too expensive.
Not sure how much we can write on here. If you would like, you can email me personally. Then I can go on and on and not feel like I'm taking up space.
RealRSDpain@outlook.com
Hope to hear from you soon. 😊

Feb 04, 2018 4:07 AM

U made my day,feel like you a lot and GOT a lot of infor of your question. Nice that u you asked!,
Thank u and luck. I know how u Must tacle,but i remind u U are not alone,i feel company When i SEE someone with the exact problem i my SELF Wonder, love from the universe

Feb 20, 2018 2:21 AM

I have CRPS/RSD as well. And unfortunately, we aren’t able to get into REM sleep... which is when your body gets a chance to really heal itself. Needless to say, sleeping has become a nightmare. BUT! As of recently, I’ve been able to achieve more and more (I’ve been working hard on my sleep quality). There are 2 things in particular that I have found so so helpful, boarderline miracle! That have been helping me with my sleep. 1) Melatonin *with L-theanine *~I noticed that addition made a huge difference. I take the melatonin gummies by “Olly” vitamins, and nature’s bounty. And 2) CBD capsules by hempbombs.com. Holy cow! I found these amazing friends last month and have been life changing. I take 2 and I’m literally out.
The best part? All that’s in it is CBD (great quality), magnesium, and calcium. I truly feel that the magnesium and calcium is playing a big part in its effectiveness. So it’s all natural, and has the ability to knock someone with chronic CRPS out for 6-7 hrs (yepp... that good) lol. I hope this helps others! Please let me know if you end up trying them, or ever have before! :-)

Feb 20, 2018 2:23 AM

(The hempbombs helps tremendously with anxiety, stress, chronic pain, muscle pain, and other aliments)

Feb 20, 2018 4:26 AM

Adding THC will help with pain and sleep in my experience. An Indica or Hybrid Strain really knocks me out at about 10-15 mg. Where I am there are patches that stick to you and last all day but are very expensive. :/ So, I'm awake. I'm so sorry for your insomnia!

Mar 08, 2018 12:36 AM

Try o.g kush and it will help you with the sleep and the pain

Mar 08, 2018 7:27 AM

i take amitripaline and gabapentin before bed it stops the restless leg syndrome. it also knocks me out cold! caint sleep without this mixture. an it works awesome. it use to take me 2-4 hrs to fall asleep an then id still wake up an roll around an suffer restless leg. so now im happy i get my rest. good luck!

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