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Pain unbearable!! Just need to offload

Mar 13, 2018 2:34 AM

Didn’t take any anti inflammatory meds at all yesterday. I usually take diclofenac (voltarol) 25mg suppositories 3 times a day with the last one being right before I go to bed. I was concerned about diclofenac not helping fibromyalgia symptoms so I tried not taking them, worst decision I ever made!😭 Had a rotten broken nights sleep waking up with horrendous pain in back but could not move to get out of bed to take any pain meds. The pain is like a hideous intense red hot burning throbbing pain wrapped around the entire my mid section of my back. I’m soaked in sweat trying to move to get up to get some pain relief. I feel sick to my stomach with the pain! I can’t shout for anyone to help me get up as I live alone. Trying to think positive thoughts what I’ve been taught in CBT to help manage pain and right now, all I can think of is changing negative thoughts into positive thoughts do NOT make this pain any easier to manage!! I’m hoping I can get up soon to be able to take my morning meds to help with pain. Stupid fibromyalgia!!!😭😭😭😭

Mar 13, 2018 3:17 AM

Your symptoms do not sound like fibromyalgia. Have you been assessed for polymyalgia? Or spinal cord injury?

Mar 13, 2018 4:16 AM

I was assessed by my GP for fibromyalgia over a number of months and he found I have a lot of the trigger points of fibromyalgia. I was only diagnosed less than a month ago. My pain isn’t just confined to spinal area, I get pain throughout my body too. I’ve been under a neurologist for the past couple of years due to an unrelated condition but he’s decided to do an MRI scan of my thoracic and lumbar areas of my spine. If there’s been any changes in my spine that are significant, then hopefully this will help with what the next course of action is to help etc. I did have degenerative changes in spine on an MRI scan two years ago but nothing significant that would warrant further investigation or certain types of treatment. I’ve managed to roll to the edge of my bed to get up and take pain meds. Took me a good hour and I resembled a tortoise stuck on its back trying to get up but I managed it. Just waiting for the meds to kick in now and maybe get a little rest on the sofa.🦋

Mar 13, 2018 7:09 AM

I'm sorry you're in so much pain. I hope you feel better. Pain sucks.

Mar 13, 2018 7:26 AM

Thanks AnimalLover2, the pain is a bit easier to manage now as all my pain meds have kicked in. My support worker came with her boss just for a visit and were shocked at how bad I am. They are going to arrange for to help me on days when I’m struggling. I get support because I am autistic but now they’ve seen the extent of how bad things can get with pain levels, they are going to try and help me manage those days better.🦋

Mar 13, 2018 3:29 PM

Lilibet I’m so sorry that you are suffering so much. I hope your doctor is more aggressive in his treatment and diagnosing of your condition. It’s the pits when we all have a flare and the pain becomes unbearable. From my own personal experience there are times that all your coping mechanisms just break down because your pain is too much to cope with. Usually I break down and have a good cry. Then take a pain med and pray it knocks me out. This opioid addiction mania scares the heck out of me. I use my meds wisely and am afraid they will just no longer prescribe them. Again I’m so sorry that you are suffering and am glad you will get the additional help that you so deserve. 🤗🌺

Mar 13, 2018 4:48 PM

Thank you Painwarrior for that reply, I’m struggling significantly at the moment and it was a much needed message. So thank you very kindly for that. I can relate re the opioids as I take codeine phosphate but will only take small doses rather than what I am prescribed. I know it seems ridiculous not taking them as prescribed to help with pain seeing as pain levels are horrendous at th moment but I’m kind of don’t want to build a pain medication resistance to them in case my pain gets worse etc. I try to shift my pain focus by using heat when possible as I’ve found this to help. I also try to use mindfulness to help relax my body as tension doesn’t help with the pain. However, there are times when I just want to scream several expletives and flip the bird to being positive, mindfulness and all that jazz because it’s hard to stay so damn positive when you feel like your body is being ripped apart internally. I do have a dry sense of humour though that sometimes gets me through those not so good days. I hope you get the help you need and manage to get pain levels under control. I also hope your docs continue to help you with pain relief. Thank you once again for your kind support!😊🦋

Mar 16, 2018 1:43 AM

I'm glad you seem to be doing a little bit better. I also had a horrendous night earlier this week that also made me unable to move and I live alone so I can really relate to what your going going through. I'm so happy you have pain meds that help! I've been looking for anything that helps my pain for the past three years now but have yet to be successful. I'm glad to hear that you'll be getting more help, it's very important to have good support on bad days! Since none of the pain meds I've tried so far has helped I find that laughter is the best medicine. I hope you have a great day and find something to laugh about everyday ☀

Mar 16, 2018 3:33 PM

Hey Lilibet 🙂, wow a fellow Auti!! I am glad your Support worker has now seen you at your worst (although that sounds horrible to say, it means now they should be able to help you better) and they are going to try and get you more hours for support.

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