I'm sorry for your pain. However I've found that this group is very compassionate and knowledgeable. We all have various levels of pain and lots of helpful advice is here. I'm new to the group and to this life of pain. So I'm learning also. But I'm believing that your pain will lower and beorw manageable.
Pain is different for each person, it's difficult for all though, that's one thing we all have in common. I have DDD, JHS, OA, Fibro and more, and even though some days I feel so low, I remind myself that there are others out there who are so much worse than me, and I am grateful that I can still at least do some things. If your pain is becoming too much it may be worth seeking a referral to pain management, I've found them invaluable in dealing with my pain. Although it's still not on an even keel (I don't think the pain ever will be it's about managing it), I have had so much support and advice. So try and see if that's possible for you, be honest with your gp, give them your worst day scenario and ask if they can refer you on to more specialist care. The thing with pain medication is that there are 3 levels of authority regarding issue of meds. Your gp can be good but there's only so much they can give you, they are limited to the strengths they can prescribe, so the next step are pain nurses in the pain clinic. They can give you stronger pain meds but again are still limited to what they can prescribe so the next tier is pain management consultants. That's the level I'm at just now, they have the authority to give you much more and have access to a wider range of medication. So having that referral may give you more options that you could try. It's very much about trial and error, what works for one may not work for another, so you need someone to work through your pain with you and try different things to see see if they can get you pain under controllable or at least at a level that you can cope with. Sending you lots of hugs and I hope that the advice may be of some help to you xx
I feel it is best to know more about your condition and the medication, treatment, and therapies available then perhaps your doctor. I know that is a bold statement. But usually, we have more time to do the research about what is going on with ourselves. Once we get a diagnosis and we know the area of the body that is involved, we can take a reasonable amount of time to learn everything there is to know about it. I do this by researching such things as the National institute of Health, Mayo Clinic, Cleveland Clinic, Taber's Medical Dictionary, Drugs.com, and many many more research aids. After I was done researching those things, I went to google, and I put in a net search that did a daily search for my topic every day. For instance, "new drugs" "chronic pain" in one search. I would receive anything on the internet that was new that day that met that criteria. I would have the choice to click on it after it would give me a slight description. We have to be proactive. Doctors can only pay so much attention to us when they pay attention to several hundred in their practice. They don't have time to thoroughly research all of our cases. Most patients have some big problem in their lives. So knowing some new therapy or drug that may now work on us and being able to ask our doctor about it is actually helping them. I wouldn't feel the same about narcotics. They may feel you are trying to keep up newest and latest mind altering drugs. No matter how far from the truth that could be.
Marvin, I thought it was neat how you keep in mind that there is many others that hurt worst than you. I do that too. People try to tell me my problem is worst then others. I usually ask them how they can measure that pain compared to someone else who is going through financial pains or emotional torture of another who seems to be having it worse that I do. I do it to try to make them think that I can't take the award on worst pain felt. The reason I brought this up. Is in the bible it makes a point that the one isolating himself seeks his one selfish desires. I thought that it was a neat point. Basically it shows that even though depression is tragic, it is also selfish without someone wanting to be. They usually think just about themselves. I think if they were thinking straight, they would not be doing that. Well at least maybe most. I don't know. But it shows how we can be depressed and think things are worse just for us. Like the world is against us in particular. That can be hard for us to fight when we are in pain every day. Because it almost literally feels true. But logically we know no one is against us. Just things happen. So I think it is cool how you handle that.
Thank you profiler, honestly that's a lovely thing to say. I understand the way you describe depression with relation to pain, it's as though someone with pain and depression have this all consuming belief that its solely their own, as though their pain is worse than anyone else's on the planet. In some way I can see this, although I also think there are anomalies that pop up from time to time. I don't think it's, as you rightly say, completely intentional. Pain can feed our fears, our thoughts and our negative feelings, when pain becomes so all consuming like that, we can sometimes feel angry, why us, why did this happen to me. I hurt so much more than the next person with chronic pain.
But the anomalies, although do sometimes feel that way at times, seem to understand that it's not just them who suffer, for them, their pain could be intense, burning, gut wrenching, but the next person could be a lot worse off, they could suffer more than they do. I honestly believe it's about taking control of your pain, and accepting it, accepting that you cannot change the hand you have been dealt. I suffer from severe anxiety and depression, I have been through all the different stages over the years and one thing that depression has taught me is that we are all unique, we are all different, and as such, our pain, our emotions and how we deal with these things, will all be different. As such we should treat others with respect and dignity, and acknowledge that we are lucky with what we have, not wallow in what we don't have. It's not always easy though to stay in that mind set but if you can do so most of the time, although I know pain will never be completely gone or under control, you can at least have some enjoyment in life :) I hope that made sense as I've had quite a few painkillers today and my heads all fuzzy xx
Welcome Graciepoo! I'm sorry you suffer from scoliosis. I don't have it but my mom and sister have it minimally in their low backs. Many here have it or have rods in their spines, so they're better able to relate. I do have fibromyalgia, OA, fused cervical discs & damage on multiple discs in my spine, among other things. As others have mentioned, CP is different for each of us. What works for some doesn't work for others. I'm allergic to a long list of pain meds so I'm very limited to using them. I have Tramadol, muscle relaxers, antidepressants and anxiety meds, along with other problems meds. But my greatest spine pain relief came from a pain specialist, via epidural steroid injections (ESI's). It's been over 2 1/2 years since my last injx and I'm still managing fairly well, though my flared ups with nerves pain is getting more frequent again, along with headaches. I use hear more than ice, and love my voltaren gel. I hope others will join the post who are familiar with scoliosis. I've learned over the past five years to place my activities with rest, letting my body rest in between however long it needs. Good luck and you'll be in my thoughts and prayers. 🙏🌼